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We have used colistin many times in the past. To limit the amount of foam, make sure you are injecting the sterile water in slowly and also removing an equal amount of air from the vial. We also found that using 6 cc of diluent helps with not only the foam problem, but also helps the powder...

Hi imchatn, Thanks for your reply. If it's okay, I will PM with more questions. Thanks! Shay

Thanks BikerEd. I sent you a PM with more questions if you have the time. :)

Thanks so much for your replies to my post! I have sent you all private messages with more questions. If you have the time, we would love to hear more :)

Hi Everyone, My daughter's pediatric CF clinic is in quite a turnover phase with much of the staff, including her physician. Since she is almost 18, we are considering transitioning to the adult clinic at the Hospital of the University of Pennsylvania. I would love to get feedback from those...

Sorry, I'm really not sure about the price difference. Our insurance requires that we get this from a specialty pharmacy and I am paying the same copay as I did with Tobi. I don't know how much the entire prescription was...

My daughter is trying it for the first time this month. (She has been 28 days on/ 28 days off Tobi.) Two weeks in, she hasn't noticed any difference between the generic and the brand.

Hi everybody. My daughter and I will be traveling by plane this summer. I was wondering what the baggage policy is for her Smart Vest. It packs up into two black canvas bags. Would these be counted as a carryons? I am wondering how we will get purse, laptop, and Smart Vest on the plane. I...

Hi mom2owen. We had our daughter's g-tube removed just about two years ago. We consulted with our general surgeon at the time. He said we could remove it ourselves and gave us some petroleum gauze dressings to cover it with for the first couple of days. He advised us to not have her eat any...

My daughter has occasionally noticed some ringing in her ears...Is there anything the audiologist can do other than tell you to avoid Tobramycin and Amikacin which is just not an option for my girl?

Hi Everybody, Just looking for advice here. Our family has had a change in insurance coverage and our new insurance is requiring us to get our daughter's inhaled meds through Walgreen's Specialty Pharmacy instead of from Foundation Care Pharmacy. Now Foundation Care will not allow us to keep the...

I would LOVE to blame the doctor but it was kind of tricky. She had been on Singulair on and off for years. Never really seemed to have a problem. It was just this last couple of years that we have noticed that she is very sensitive to these chemicals. Things she was able to tolerate before...

I am thinking that there must have been substantial evidence for the FDA to have reviewed this type of side effect and to have listed them in the warnings for Singulair. I don't think it's a common side effect, but i think it must be happening. And probably more than it is being reported. It...

I absolutely believe that these adverse reactions are not typical. I do believe though, that in my daughter's case, the singulair is exacerbating a problem that was set into motion with the prednisone and helped along with the usual teenage angst. A perfect storm. It DID seem that from my...

Thanks for the reply jbrandyn. She absolutely is seeing a shrink. I was just shocked when I got online and saw all the horror stories from patients and parents about this drug. I wanted to see if any other CFers had a similar experience.

Hi everybody, I am mom to a 15 year old daughter with CF. She has not had an easy path with her CF so far although I'm certain some have had a lot worse. But at 15 she has a port (usually on IV antibiotics 2-6 weeks/year) and has CFRD. She also had a gtube from age 5-14. Even with all those...