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  1. M

    TOBI podhaler

    I've been using TOBI Podhaler since September. In terms of preference, I much prefer the Podhaler because it saves a lot of time over using the nebulizer. The Podhaler treatments are about 5 minutes twice a day. As most people with CF, I have a number of other medical treatments, so I welcome...
  2. M

    Pancreatic sufficient

    I was diagnosed at 34 and am pancreatic sufficient. My doctor told me it is possible, but unusual to become pancreatic insufficient. I was having digestive problems a few months ago, but they seem to have been caused by an IV antibiotic. No problems now.
  3. M

    Pancreatic sufficient

    I was diagnosed at 34 and am pancreatic sufficient. My doctor told me it is possible, but unusual to become pancreatic insufficient. I was having digestive problems a few months ago, but they seem to have been caused by an IV antibiotic. No problems now.
  4. M

    What is your FEV1 Score?

    My FEV1 has been bouncing between 45% and 50% for the last few months. I'm 44, don't use oxygen, but try to do cardio almost daily along with hypertonic saline and flutter.
  5. M

    What is your FEV1 Score?

    My FEV1 has been bouncing between 45% and 50% for the last few months. I'm 44, don't use oxygen, but try to do cardio almost daily along with hypertonic saline and flutter.
  6. M

    changing baseline pft's

    I started looking at my breathing results as the real number rather than a percentage a few years ago when my clinic changed their data source for the percentages. For example, I recently had an FEV1 of 1.9, which was 45% of expected. I focus on the 1.9 number. I've found this helps keep my view...
  7. M

    changing baseline pft's

    I started looking at my breathing results as the real number rather than a percentage a few years ago when my clinic changed their data source for the percentages. For example, I recently had an FEV1 of 1.9, which was 45% of expected. I focus on the 1.9 number. I've found this helps keep my view...
  8. M

    Tobi podhaler

    lizlas - my new IV is Tygecil. I was on Amikacin IV, which was working well. However, they took me off of it in July due to hearing problems.
  9. M

    Tobi podhaler

    lizlas - my new IV is Tygecil. I was on Amikacin IV, which was working well. However, they took me off of it in July due to hearing problems.
  10. M

    Tobi podhaler

    lizlas - my new IV is Tygecil. I was on Amikacin IV, which was working well. However, they took me off of it in July due to hearing problems.
  11. M

    Tobi podhaler

    I've completed four weeks on the TOBI podhaler. I use it two weeks on and two weeks off rather than the traditional four weeks on and four weeks off. Here in Canada, the Podhaler is the same price as traditional TOBI - $3,400 for a one-month supply. You have to take four capsules of TOBI twice...
  12. M

    Tobi podhaler

    I've completed four weeks on the TOBI podhaler. I use it two weeks on and two weeks off rather than the traditional four weeks on and four weeks off. Here in Canada, the Podhaler is the same price as traditional TOBI - $3,400 for a one-month supply. You have to take four capsules of TOBI twice...
  13. M

    Tobi podhaler

    I've completed four weeks on the TOBI podhaler. I use it two weeks on and two weeks off rather than the traditional four weeks on and four weeks off. Here in Canada, the Podhaler is the same price as traditional TOBI - $3,400 for a one-month supply. <br /> <br />You have to take four capsules...
  14. M

    anyone had chloramphenicol, or Tigecycline(Tygacil)

    I'm currently on Tygecycline for mycobacterium abscesses. I started it in late August, so I've been on it for about eight weeks. My health has gotten worse while on it, but I'm not really blaming the drug itself. My health was already declining when I went onto it. <br> <br>For me, the worst...
  15. M

    anyone had chloramphenicol, or Tigecycline(Tygacil)

    I'm currently on Tygecycline for mycobacterium abscesses. I started it in late August, so I've been on it for about eight weeks. My health has gotten worse while on it, but I'm not really blaming the drug itself. My health was already declining when I went onto it. <br> <br>For me, the worst...
  16. M

    anyone had chloramphenicol, or Tigecycline(Tygacil)

    I'm currently on Tygecycline for mycobacterium abscesses. I started it in late August, so I've been on it for about eight weeks. My health has gotten worse while on it, but I'm not really blaming the drug itself. My health was already declining when I went onto it. <br> <br>For me, the worst...
  17. M

    Mycobacterium help

    I have been on Zythromax for many years both prior to and after my abscesses diagnosis. I used to take it MWF as is common for CF patients, but I have taken 500 mg daily ever since I started treatment for the abscesses. In terms of Tracy's post above -- I was on IV Amikacin for treatment...
  18. M

    Mycobacterium help

    I have been on Zythromax for many years both prior to and after my abscesses diagnosis. I used to take it MWF as is common for CF patients, but I have taken 500 mg daily ever since I started treatment for the abscesses. In terms of Tracy's post above -- I was on IV Amikacin for treatment...
  19. M

    Mycobacterium help

    I have been on Zythromax for many years both prior to and after my abscesses diagnosis. I used to take it MWF as is common for CF patients, but I have taken 500 mg daily ever since I started treatment for the abscesses. <br /> <br />In terms of Tracy's post above -- I was on IV Amikacin for...
  20. M

    Mycobacterium help

    I was diagnosed with mycobacterium abscesses in the spring of 2008. I also grow steno and pseudomonas. My doctor has told me that some people have MAC without it causing them problems. Every time I go to the clinic (which is often), they test my sputum for all three infections. I always keep an...
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