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  1. M

    S. Maltophilia and promixin

    No, I have never seen any reports like that our nurse just looked up on her RX list and it said Bactrim was used to treat SM and thats what she is on now.... and seems to be working <img src="i/expressions/face-icon-small-smile.gif" border="0">. Maybe I should request that report. Do you get...
  2. M

    S. Maltophilia and promixin

    No, I have never seen any reports like that our nurse just looked up on her RX list and it said Bactrim was used to treat SM and thats what she is on now.... and seems to be working <img src="i/expressions/face-icon-small-smile.gif" border="0">. <br /> <br />Maybe I should request that report...
  3. M

    S. Maltophilia and promixin

    Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt. My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My daughter has...
  4. M

    S. Maltophilia and promixin

    Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt. My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My daughter has...
  5. M

    S. Maltophilia and promixin

    Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt. <br /> <br />My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My...
  6. M

    daughter keeps getting sick!!

    Thank you for all the responses. It has been a great help. I feel like I am always trying to play detective and figure out what I can do next to make her better. I called the CF clinic Again and talked to the nurse about some of your suggestions and also asked her about a certain bacteria she...
  7. M

    daughter keeps getting sick!!

    Thank you for all the responses. It has been a great help. I feel like I am always trying to play detective and figure out what I can do next to make her better. I called the CF clinic Again and talked to the nurse about some of your suggestions and also asked her about a certain bacteria she...
  8. M

    daughter keeps getting sick!!

    Thank you for all the responses. It has been a great help. I feel like I am always trying to play detective and figure out what I can do next to make her better. I called the CF clinic Again and talked to the nurse about some of your suggestions and also asked her about a certain bacteria she...
  9. M

    Benecalorie and Beneproteine

    My DD 11 years old drinks carnation VHC drinks (shakes) they are 560 calories each and are not that big.She can drink one down in 30 seconds. She gets a case of(24)free each month with her Creon enzxymes through the CF Pharmacy, but I usually order 2 more cases a month from a company called MD...
  10. M

    Benecalorie and Beneproteine

    My DD 11 years old drinks carnation VHC drinks (shakes) they are 560 calories each and are not that big.She can drink one down in 30 seconds. She gets a case of(24)free each month with her Creon enzxymes through the CF Pharmacy, but I usually order 2 more cases a month from a company called MD...
  11. M

    Benecalorie and Beneproteine

    My DD 11 years old drinks carnation VHC drinks (shakes) they are 560 calories each and are not that big.She can drink one down in 30 seconds. She gets a case of(24)free each month with her Creon enzxymes through the CF Pharmacy, but I usually order 2 more cases a month from a company called MD...
  12. M

    daughter keeps getting sick!!

    Hi, She takes albuterol X3 day, TObi, Cayston, Pulmozyme. she started the Cayston 6 months ago.... I can't tell that it is hepling any. She is actually pretty great during the day. Only coughing every now and then. It is just at night that she coughs so much and spits up so much mucus. She just...
  13. M

    daughter keeps getting sick!!

    Hi, She takes albuterol X3 day, TObi, Cayston, Pulmozyme. she started the Cayston 6 months ago.... I can't tell that it is hepling any. She is actually pretty great during the day. Only coughing every now and then. It is just at night that she coughs so much and spits up so much mucus. She just...
  14. M

    daughter keeps getting sick!!

    Hi, <br /> She takes albuterol X3 day, TObi, Cayston, Pulmozyme. <br />she started the Cayston 6 months ago.... I can't tell that it is hepling any. She is actually pretty great during the day. Only coughing every now and then. It is just at night that she coughs so much and spits up so much...
  15. M

    daughter keeps getting sick!!

    Hi Everyone, This is my first time on this website and I am desperatly seeking some advice. My 11 year old daughter with CF just keeps getting sick... what I mean by that is she has been hospitalized 7 times since January 2009. With the latest hospitalization at the end of August 2010. Her PFT...
  16. M

    daughter keeps getting sick!!

    Hi Everyone, This is my first time on this website and I am desperatly seeking some advice. My 11 year old daughter with CF just keeps getting sick... what I mean by that is she has been hospitalized 7 times since January 2009. With the latest hospitalization at the end of August 2010. Her PFT...
  17. M

    daughter keeps getting sick!!

    Hi Everyone, <br />This is my first time on this website and I am desperatly seeking some advice. <br />My 11 year old daughter with CF just keeps getting sick... what I mean by that is she has been hospitalized 7 times since January 2009. With the latest hospitalization at the end of August...
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