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    looking for friends with CF

    welcome to the group. u will find alot of information on this site and alot of friends. I am 43 years old with DDF508 and in the process of trying to get on the transplant list. I was recently dx with CFRD last November, but my main problem is pain all over my thoraxic area. BTW, my name is...
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    I dont do my treatments

    <strong>tnessa.....we are all here on this blog to help and support one another. Depression is real and when it collides with CF, yea, there have been times I didn't want to do my treatments anymore. Stay strong and know we are all here for each other.</strong>
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    I dont do my treatments

    <strong>tnessa.....we are all here on this blog to help and support one another. Depression is real and when it collides with CF, yea, there have been times I didn't want to do my treatments anymore. Stay strong and know we are all here for each other.</strong>
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    What song do you relate your CF fight to

    Having lived with CF almost 44 years, I think I have a song or two for each decade. I like Bon Jovi's "It' My Life to Elvis' "My Way" to KISS "Reason To Live". Right now, Thriving Ivory's "Angels on The Moon" describe my life right now
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    Can smell the bacteria......

    I can smell and taste it when it comes from sinuses. CF/43yr/DD508/pre-trans
  6. D

    Can smell the bacteria......

    I can smell and taste it when it comes from sinuses. CF/43yr/DD508/pre-trans
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    borderline sweat test results?

    <strong>I am in agreement with Edan regarding this website. It's very informative from ppl that have CF, instead of reading your standard textbook written by doctors that probably don't have CF....just sayin</strong>
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    borderline sweat test results?

    <strong>I am in agreement with Edan regarding this website. It's very informative from ppl that have CF, instead of reading your standard textbook written by doctors that probably don't have CF....just sayin</strong>
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    Pink Floyd

    <strong>I agree with you about Pink Floyd being Mozart 100 years from now. They have an album or song for every mood. My favorite album is The Wall.</strong>
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    Pink Floyd

    <strong>I agree with you about Pink Floyd being Mozart 100 years from now. They have an album or song for every mood. My favorite album is The Wall.</strong>
  11. D

    what to use to soothe irritated airways

    <strong>I agree with Bleedorgange. I could not handle the TOBI b/c of the excessive coughing, plus the taste made me cough even more. 7% Saline is better as far as not being harsh on the throat and airways AND alot cheaper. I also had bronchospams with TOBI. Does your daughter nebulize Colistin...
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    what to use to soothe irritated airways

    <strong>I agree with Bleedorgange. I could not handle the TOBI b/c of the excessive coughing, plus the taste made me cough even more. 7% Saline is better as far as not being harsh on the throat and airways AND alot cheaper. I also had bronchospams with TOBI. Does your daughter nebulize Colistin...
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    Disability Question-Handicap Parking

    Just ask your pulmonary/CF doctor that you need a handicapped parking decal. All your doctor is say no. If he does say no, then ask your primary care doctor if you do have one.
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    Disability Question-Handicap Parking

    Just ask your pulmonary/CF doctor that you need a handicapped parking decal. All your doctor is say no. If he does say no, then ask your primary care doctor if you do have one.
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    Alternative treatments for MRSA

    <P><STRONG>I am willing to try anything to rid myself of MRSA, plus my multiresistant pseudomonas strains. My last hospital visit, I was told there was nothing left antibiotic wise. They referred me to pallative care, etc., but i refuse to give up (Im 43 years old).On top of this, I now get C...
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    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list.  I really don't knnow how I feel about this.  The reason I say this is because:  all I'm doing is trading one problem or another, still have to take a...
  17. D

    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list. I really don't knnow how I feel about this. The reason I say this is because: all I'm doing is trading one problem or another, still have to take a bunch...
  18. D

    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list. I really don't knnow how I feel about this. The reason I say this is because: all I'm doing is trading one problem or another, still have to take a bunch...
  19. D

    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list.  I really don't knnow how I feel about this.  The reason I say this is because:  all I'm doing is trading one problem or another, still have to take a...
  20. D

    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list. I really don't knnow how I feel about this. The reason I say this is because: all I'm doing is trading one problem or another, still have to take a bunch...
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