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    pre-trans quality of life

    <P>I just had my lastest PFT's done and they are below 30%, which should qualify me to start on thhe process of being on the transplant list. I really don't knnow how I feel about this. The reason I say this is because: all I'm doing is trading one problem or another, still have to take a bunch...
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    People on the new drugs: How do you REALLY feel?

    I have never of these drugs and I'm curious to know how they effect your lungs, etc.  I will keep this topic subscribed, so I can keep up with latest.  Thank you
  3. D

    People on the new drugs: How do you REALLY feel?

    I have never of these drugs and I'm curious to know how they effect your lungs, etc. I will keep this topic subscribed, so I can keep up with latest. Thank you
  4. D

    People on the new drugs: How do you REALLY feel?

    I have never of these drugs and I'm curious to know how they effect your lungs, etc. I will keep this topic subscribed, so I can keep up with latest. Thank you<BR>
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    Viokase is not being made anymore

    <P>I used to take Viokase when I was I child.  They now have enzymes in pill forms here in the US.  I take Creon.  There are quite a few pill form enzymes on the market here.  I think they even have a liquid form.  </P> <P> </P> <P>Google Creon, Ultrase, Zenpep.  Hope this helps.</P>
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    Viokase is not being made anymore

    <P>I used to take Viokase when I was I child. They now have enzymes in pill forms here in the US. I take Creon. There are quite a few pill form enzymes on the market here. I think they even have a liquid form. </P> <P></P> <P>Google Creon, Ultrase, Zenpep. Hope this helps.</P>
  7. D

    Viokase is not being made anymore

    <P><BR>I used to take Viokase when I was I child. They now have enzymes in pill forms here in the US. I take Creon. There are quite a few pill form enzymes on the market here. I think they even have a liquid form. </P> <P></P> <P>Google Creon, Ultrase, Zenpep. Hope this helps.</P>
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    RT's refusing to do CPT

    <P>The hospital I go to, the RT's no longer use hand percussion since they have the VEST.  The VEST used to be wonderful, but now it does not do it's job.  I have asked one RT if she wanted to see if she still "had it" as far as doing the percussion, and she said, "no thank you".  </P> <P> </P>...
  9. D

    RT's refusing to do CPT

    <P>The hospital I go to, the RT's no longer use hand percussion since they have the VEST. The VEST used to be wonderful, but now it does not do it's job. I have asked one RT if she wanted to see if she still "had it" as far as doing the percussion, and she said, "no thank you". </P> <P></P> <P>I...
  10. D

    RT's refusing to do CPT

    <P>The hospital I go to, the RT's no longer use hand percussion since they have the VEST. The VEST used to be wonderful, but now it does not do it's job. I have asked one RT if she wanted to see if she still "had it" as far as doing the percussion, and she said, "no thank you". </P> <P></P> <P>I...
  11. D

    Anybody try AQUADEKS???????????

    Thank you for the information.  I already have a script for AbDEK, so I'm wondering if I have to get a new script for the AQUADEKS.  Going to call the CF pharmacy now.
  12. D

    Anybody try AQUADEKS???????????

    Thank you for the information. I already have a script for AbDEK, so I'm wondering if I have to get a new script for the AQUADEKS. Going to call the CF pharmacy now.
  13. D

    Anybody try AQUADEKS???????????

    Thank you for the information. I already have a script for AbDEK, so I'm wondering if I have to get a new script for the AQUADEKS. Going to call the CF pharmacy now.<BR>
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    Creon shortage?

    <P>Go to the FDA website.  It will give you a list of the drugs.  I try to monitor the site at least once a week because their is already one of my drugs that ran out this past March.  We can not afford to "police" the rest of the world and make sure they have drugs, when our own nation is...
  15. D

    Creon shortage?

    <P>Go to the FDA website. It will give you a list of the drugs. I try to monitor the site at least once a week because their is already one of my drugs that ran out this past March. We can not afford to "police" the rest of the world and make sure they have drugs, when our own nation is headed...
  16. D

    Creon shortage?

    <P>Go to the FDA website. It will give you a list of the drugs. I try to monitor the site at least once a week because their is already one of my drugs that ran out this past March. We can not afford to "police" the rest of the world and make sure they have drugs, when our own nation is headed...
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    for those who have yet to decide on transplant

    <P>I am in the same predicament.  I don't know if I want to trade one problem for another.  You still have to take all this anti-rejection drugs, which lowers your immune system and u still have to be careful of being around sick ppl.</P> <P> </P> <P>I am 43 Delta F508 and now totally resistant...
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    for those who have yet to decide on transplant

    <P>I am in the same predicament. I don't know if I want to trade one problem for another. You still have to take all this anti-rejection drugs, which lowers your immune system and u still have to be careful of being around sick ppl.</P> <P></P> <P>I am 43 Delta F508 and now totally resistant to...
  19. D

    for those who have yet to decide on transplant

    <P>I am in the same predicament. I don't know if I want to trade one problem for another. You still have to take all this anti-rejection drugs, which lowers your immune system and u still have to be careful of being around sick ppl.</P> <P></P> <P>I am 43 Delta F508 and now totally resistant to...
  20. D

    Heading back to 60+ FEV1 from 26.

    <P>I am sooo happy for you.  Godspeed and I love your quote about never letting CF dictate what you do.  For the past 5 years, I have let it dictate my life.  It is hard to make plans ahead of time b/c I don't know if I am going to get sick, etc.</P> <P> </P> <P>I need to be around more positive...
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