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    Working part time or less. What led you to decision?

    So I've posted before about being re-evaluated for my long-term disability benefits. I enrolled 2 years ago to work part time. I'm an engineer, worked full time for most of 8 years. I noticed a correlation between long hours and feeling worse with a gnarlier cough by the end of the day...
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    Lots of Nebulizers – Need Advice on Keeping them Clean

    Here's a definitive source saying steam works: http://www.ncbi.nlm.nih.gov/pubmed/23267773 The reason they say Don't put the altera/eflow in the microwave is because it has metal pieces on it. The other fully plastic air-compressor nebulizers (Sprint, LC plus, etc.) are fine to put in the...
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    Lots of Nebulizers – Need Advice on Keeping them Clean

    Wow! I didn't know people stock up like that. I'm 36 and have boiled nebs maybe 5 times. Way too much effort. I use a plastic reusable microwavable sterilizer for baby bottles. I use 3 nebs each day. I rinse them out with tap water just to get off residue, dismantle and put all 3 in the...
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    online dating and CF disclosure

    Thanks Dank (and everyone else). I've decided not to put it in there. I think I have some pretty shining qualities highlighted in my profile, have interesting & adventurous pics, I'm at least decent looking and it's still tough making progress with dates on there. I think being 5'7 and not...
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    19 year old CF son not taking care of himself

    I think it helps to see what's going on with CF research. I love reading the CFRoundtable, an adult CF newsletter, they highlight the latest R&D going on with CF. It's incredibly encouraging. Also gives stories and insight from people w/ CF, the whole newsletter is written by adult CF...
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    Pulmonary MRSA and Cystic Fibrosis

    I've had it for 5 years, heavy colonization. We've tried to kill it to no avail. I can't say it's really increase my exacerbations all that much, it's just another bug in the cesspool that is my lungs. Based on just the few posts here, it's impact varies by person. There's some good treatments...
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    Where do you keep all your medical equipment and medicines? And where do you do them?

    I keep my neb/vest stuff in the living room between my desk & TV stand. I like having the option of computer and TV while I neb for 2 hours every day. A double cabinet approach might work best for the vest, with some cushioning on the bottom to absorb the vibration noise. (I'm a mech engineer...
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    Traveling with all of our meds/eqp :(

    I think you're packing way too much, 48 bottles of saline sounds overkill. I usually make my own sinus mix, 1 part baking soda to 2 parts sea salt. I put it in a single empty pill bottle (or 2), and bring a 1/2tsp measuring spoon, along w/ an empty neilmed bottle. Or just bring the packets...
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    Private long-term disability interview

    Thanks David, I googled a bit and now I'm more nervous. I was only mildly so before. I saw my CF doc a few days ago too and mentioned it to him. He suggested preparing a list of all my symptoms over time and treatments that were done. He also prescribed a couple antibiotics since I've been a...
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    Californians: GHPP and Dental

    Any other suggestions?
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    Californians: GHPP and Dental

    I have GHPP only, and they say they cover dental here: http://www.dhcs.ca.gov/services/ghpp/Pages/GHPPProviders.aspx But they need a CGP number, I talked to a few and nobody knew what I was talking about. I called 1-800-Dentist who hooked me up with Western Dental, who seem the go-to for CA...
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    Private long-term disability interview

    Oboe, I'm assuming they let you keep the SSDI? I received a response from my case worker, which answered what to expect. I wish I knew what their criteria was. They've already gotten my medical history. They're a business and obviously would rather keep the money they're giving me. At least I...
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    Private long-term disability interview

    Quick update. So now they want an "independent physical" done by some doctor nearby. No other details. Again, this scares me. Has anybody had to deal with one of these physicals? What did it include? What was the outcome? I asked them what it would entail and that I "assume" they're familiar...
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    Coughing alot but no need for hospital. need tips/ advice on how to control it.

    Is it like an itch in your lungs and you just Have to cough to relieve it? I've been getting that in the last year, Very annoying and mostly when I go to bed. I'll cough a bunch, it'll subside, I lay down, then it returns, repeat. My doctor thinks it's infection dropping from the sinuses and...
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    online dating and CF disclosure

    Welshwitch, good ideas. I'm always sneaking my enzymes & hiding my nebs if girls come over. I'll probably still hide the vest, that's like a 4th date unsexy device. SaturnGreed, I'm really interested to hear the difference in your brothers results before and after, and what he wrote. It may...
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    online dating and CF disclosure

    Thanks Aboveallislove, as mentioned at the end "I'm looking for keeps". So yeah, serious relationship and "love", as your name conveys. Though some casual hookups along the way to finding that wouldn't hurt. I usually try to drop it casually, sugar-coat a little or even weave it into a joke...
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    online dating and CF disclosure

    Wow a month you waited? I definitely can't hide it that long, if I see them regularly. I'd feel the need to explain the coughing, I can't hold it in that long. I dated this girl last year that I Really liked, we met at a party, had a date, talked on the phone for hours. She invited me as a FB...
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    online dating and CF disclosure

    So I've been playing the online dating game off and on for about 2 years now, on top of getting out in the world and meeting people. I was talking to a friend yesterday, telling him I get a little nervous when I feel the need to explain my coughing. With the online dates I tend to hold back a...
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    What do you do when your spouse/partner gets sick?

    I used to just be Very careful and have my partner be careful too to wash their hands a lot and we'd both do everything we could to boost our immune systems. Super health eating and drinking, rest, etc. A couple times I managed not to catch it, we did share a bed still but didn't really touch or...
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    Wanting to make friends with CF?

    CF friends are often awesome. I had a bunch growing up, we'd have CF events at the children's hospital. I even dated one I met in the hospital. Most (maybe all) have passed, that I know of. I've made some new friends a few years ago at the CFRI adult retreat, I highly recommend it. Though it...
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