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  1. T

    Who are you in a nut shell

    Hi. My name is Teresa We live in Birmingham, AL I am a mom of 5 (Todd, Andrew, Christopher, Olivia, Shelby) and I have been married for 23 years. Shelby, 10, was diagnosed at 9 years old so we're still very new and wanting to learn as much as possible. Her mutations are df508 and 2184insA She...
  2. T

    PFTs going down fast

    A little update. I spoke to Shelby's pediatrician yesterday afternoon to get a referral for at least another opinion. She felt as y'all do. We need a new doc and she's going to take over and find someone that's a better fit for us. This took a load off me so I can concentrate on Shelby and my...
  3. T

    PFTs going down fast

    A little update. I spoke to Shelby's pediatrician yesterday afternoon to get a referral for at least another opinion. She felt as y'all do. We need a new doc and she's going to take over and find someone that's a better fit for us. This took a load off me so I can concentrate on Shelby and my...
  4. T

    PFTs going down fast

    A little update. I spoke to Shelby's pediatrician yesterday afternoon to get a referral for at least another opinion. She felt as y'all do. We need a new doc and she's going to take over and find someone that's a better fit for us. This took a load off me so I can concentrate on Shelby and my...
  5. T

    PFTs going down fast

    A little update. I spoke to Shelby's pediatrician yesterday afternoon to get a referral for at least another opinion. She felt as y'all do. We need a new doc and she's going to take over and find someone that's a better fit for us. This took a load off me so I can concentrate on Shelby and my...
  6. T

    PFTs going down fast

    A little update. I spoke to Shelby's pediatrician yesterday afternoon to get a referral for at least another opinion. <br />She felt as y'all do. We need a new doc and she's going to take over and find someone that's a better fit for us. This took a load off me so I can concentrate on Shelby...
  7. T

    PFTs going down fast

    Hi Lamp, no we are in the Deep South, Birmingham, AL where humidity is king. The doc did put her on flovent for asthma. When the Cushing's happened she was taken off all asthma type med and we were told she did not have asthma because her pfts did not significantly rise after an albuterol...
  8. T

    PFTs going down fast

    Hi Lamp, no we are in the Deep South, Birmingham, AL where humidity is king. The doc did put her on flovent for asthma. When the Cushing's happened she was taken off all asthma type med and we were told she did not have asthma because her pfts did not significantly rise after an albuterol...
  9. T

    PFTs going down fast

    Hi Lamp, no we are in the Deep South, Birmingham, AL where humidity is king. The doc did put her on flovent for asthma. When the Cushing's happened she was taken off all asthma type med and we were told she did not have asthma because her pfts did not significantly rise after an albuterol...
  10. T

    PFTs going down fast

    Hi Lamp, no we are in the Deep South, Birmingham, AL where humidity is king. The doc did put her on flovent for asthma. When the Cushing's happened she was taken off all asthma type med and we were told she did not have asthma because her pfts did not significantly rise after an albuterol...
  11. T

    PFTs going down fast

    Hi Lamp, no we are in the Deep South, Birmingham, AL where humidity is king. The doc did put her on flovent for asthma. When the Cushing's happened she was taken off all asthma type med and we were told she did not have asthma because her pfts did not significantly rise after an albuterol...
  12. T

    PFTs going down fast

    Stacey and Teri, Thanks for the replies. I don't have a lot of options with clinics. There are some within 3-4 hours of us but they are not considered to be as good as ours and our insurance may not pay. This is definitely something I'm considering even if I have to pay out of pocket...
  13. T

    PFTs going down fast

    Stacey and Teri, Thanks for the replies. I don't have a lot of options with clinics. There are some within 3-4 hours of us but they are not considered to be as good as ours and our insurance may not pay. This is definitely something I'm considering even if I have to pay out of pocket...
  14. T

    PFTs going down fast

    Stacey and Teri, Thanks for the replies. I don't have a lot of options with clinics. There are some within 3-4 hours of us but they are not considered to be as good as ours and our insurance may not pay. This is definitely something I'm considering even if I have to pay out of pocket...
  15. T

    PFTs going down fast

    Stacey and Teri, Thanks for the replies. I don't have a lot of options with clinics. There are some within 3-4 hours of us but they are not considered to be as good as ours and our insurance may not pay. This is definitely something I'm considering even if I have to pay out of pocket...
  16. T

    PFTs going down fast

    Stacey and Teri, Thanks for the replies. I don't have a lot of options with clinics. There are some within 3-4 hours of us but they are not considered to be as good as ours and our insurance may not pay. This is definitely something I'm considering even if I have to pay out of pocket. <br />...
  17. T

    PFTs going down fast

    This is my first post but I have lurked here since December 2008 when my 9 year old daughter, Shelby, was diagnosed with CF. At the time of diagnosis her FEV1 was 116. In November 2009 it was 90. As of yesterday it was 68. I have talked, yelled, and anything I could think of to get her doctor...
  18. T

    PFTs going down fast

    This is my first post but I have lurked here since December 2008 when my 9 year old daughter, Shelby, was diagnosed with CF. At the time of diagnosis her FEV1 was 116. In November 2009 it was 90. As of yesterday it was 68. I have talked, yelled, and anything I could think of to get her doctor...
  19. T

    PFTs going down fast

    This is my first post but I have lurked here since December 2008 when my 9 year old daughter, Shelby, was diagnosed with CF. At the time of diagnosis her FEV1 was 116. In November 2009 it was 90. As of yesterday it was 68. I have talked, yelled, and anything I could think of to get her doctor...
  20. T

    PFTs going down fast

    This is my first post but I have lurked here since December 2008 when my 9 year old daughter, Shelby, was diagnosed with CF. At the time of diagnosis her FEV1 was 116. In November 2009 it was 90. As of yesterday it was 68. I have talked, yelled, and anything I could think of to get her doctor...
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