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  1. T

    Daegan is back in the hospital :(

    It's hard not knowing what's wrong when our children are sick. I hope you finally get a diagnosis so he can get the correct meds and start feeling better. You and Daegan are in my prayers.
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    Does it normally take that long

    Hi Jessica, our center definitely is much faster. My daughter was diagnosed on Dec. 15 two years ago and I called on Dec. 23 and asked for two of my sons to have the genetic test done and I was told to bring them in that day. I was floored, but very grateful, that they were so responsive. If...
  3. T

    Does it normally take that long

    Hi Jessica, our center definitely is much faster. My daughter was diagnosed on Dec. 15 two years ago and I called on Dec. 23 and asked for two of my sons to have the genetic test done and I was told to bring them in that day. I was floored, but very grateful, that they were so responsive. If...
  4. T

    Does it normally take that long

    Hi Jessica, our center definitely is much faster. My daughter was diagnosed on Dec. 15 two years ago and I called on Dec. 23 and asked for two of my sons to have the genetic test done and I was told to bring them in that day. I was floored, but very grateful, that they were so responsive. If...
  5. T

    THINKING OF MOVING TO CF CENTER

    That will be quite a drive but I think you will be glad you changed. Dr. Hoover is Shelby's doctor. He is doing a great job with her. Lacrecia, the nurse practitioner, has been with us since diagnosis and she has held me together through some tough times. I can't say enough good things about...
  6. T

    THINKING OF MOVING TO CF CENTER

    That will be quite a drive but I think you will be glad you changed. Dr. Hoover is Shelby's doctor. He is doing a great job with her. Lacrecia, the nurse practitioner, has been with us since diagnosis and she has held me together through some tough times. I can't say enough good things about...
  7. T

    THINKING OF MOVING TO CF CENTER

    That will be quite a drive but I think you will be glad you changed. Dr. Hoover is Shelby's doctor. He is doing a great job with her. Lacrecia, the nurse practitioner, has been with us since diagnosis and she has held me together through some tough times. I can't say enough good things about...
  8. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  9. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  10. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  11. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  12. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  13. T

    THINKING OF MOVING TO CF CENTER

    Hi, my daughter goes to the pediatric CF center at Children's in Birmingham. We do like it very much. The staff (doc, nurse practitioner, nurse, rts, etc) are wonderful. It sounds like you may be talking about the UAB adult clinic and I have heard a lot of good things about it but have no...
  14. T

    Nebulized antibiotics

    I had never heard this, although Shelby does her nebs with the air purifier on like Cheryl's daughter. I'm kind of disappointed. She has been on TOBI twice and I sat next to her while she did it.(She's 10 but only diagnosed at 9, so still learning everything) Inhaling the second-hand TOBI...
  15. T

    Nebulized antibiotics

    I had never heard this, although Shelby does her nebs with the air purifier on like Cheryl's daughter. I'm kind of disappointed. She has been on TOBI twice and I sat next to her while she did it.(She's 10 but only diagnosed at 9, so still learning everything) Inhaling the second-hand TOBI...
  16. T

    Nebulized antibiotics

    I had never heard this, although Shelby does her nebs with the air purifier on like Cheryl's daughter. I'm kind of disappointed. She has been on TOBI twice and I sat next to her while she did it.(She's 10 but only diagnosed at 9, so still learning everything) Inhaling the second-hand TOBI...
  17. T

    Perhaps a dumb question ;) Mouthpiece vs. mask

    Harriett, Shelby, almost 11, still uses her bubbles the fish mask for albuterol and pulmozyme. She only uses a mouthpiece for TOBI. She gets a rash around her nose and mouth when using a mask with TOBI. From what I could tell she is getting more of the med in with the mask. She likes to...
  18. T

    Perhaps a dumb question ;) Mouthpiece vs. mask

    Harriett, Shelby, almost 11, still uses her bubbles the fish mask for albuterol and pulmozyme. She only uses a mouthpiece for TOBI. She gets a rash around her nose and mouth when using a mask with TOBI. From what I could tell she is getting more of the med in with the mask. She likes to...
  19. T

    Perhaps a dumb question ;) Mouthpiece vs. mask

    Harriett, Shelby, almost 11, still uses her bubbles the fish mask for albuterol and pulmozyme. She only uses a mouthpiece for TOBI. She gets a rash around her nose and mouth when using a mask with TOBI. From what I could tell she is getting more of the med in with the mask. She likes to...
  20. T

    Sweat Test Results

    Hi Alisha, I also would have a hard time believing a sweat test is that reliable. My daughter's was 108 and she does have CF, but my son, Christopher's was 69. By this number he should have CF but the full Ambry panel only showed one mutation. Because he does have numerous issues (lung and...
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