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I am a professional fishing guide in Orlando. I own my own small business. I worked prior to this as a paramedic for nearly 10 years. I also run a foundation to help patients with cystic fibrosis pay for medications...kevin a przybyl breathe easy foundation. <br /> <br />do something...

When you feel sick your body could care less about eating ...so as a cf patient it takes at least 3500 calories to maintain your weight... i need about 4000 and 4500 to gain....so recently i started a medication called megace....it increase your appitite 20x...or you can use marinol.... i added...

When you feel sick your body could care less about eating ...so as a cf patient it takes at least 3500 calories to maintain your weight... i need about 4000 and 4500 to gain....so recently i started a medication called megace....it increase your appitite 20x...or you can use marinol.... i added...

When you feel sick your body could care less about eating ...so as a cf patient it takes at least 3500 calories to maintain your weight... i need about 4000 and 4500 to gain....so recently i started a medication called megace....it increase your appitite 20x...or you can use marinol.... i added...

I am so happy to be alive.... i month ago was the closest I have been to dying....but for some reason I am still hear.....having a amazing day with my wife and son...and today was the last day of IV antibiotics !!

I am so happy to be alive.... i month ago was the closest I have been to dying....but for some reason I am still hear.....having a amazing day with my wife and son...and today was the last day of IV antibiotics !!

I am so happy to be alive.... i month ago was the closest I have been to dying....but for some reason I am still hear.....having a amazing day with my wife and son...and today was the last day of IV antibiotics !!

no prednisone, no cfrd, the only change has been coming off of pain meds from 2 weeks ago from my pneumothorax and chest tube i had....i am wondering if like under armor clothing would help the discomfort of feeling soaked with normal clothing....i am not athletic and i am a walmart shopper so...

no prednisone, no cfrd, the only change has been coming off of pain meds from 2 weeks ago from my pneumothorax and chest tube i had....i am wondering if like under armor clothing would help the discomfort of feeling soaked with normal clothing....i am not athletic and i am a walmart shopper so...

no prednisone, no cfrd, the only change has been coming off of pain meds from 2 weeks ago from my pneumothorax and chest tube i had....i am wondering if like under armor clothing would help the discomfort of feeling soaked with normal clothing....i am not athletic and i am a walmart shopper so...

so over the past i have had aweful night sweats.... i am looking for ideas on what is causing it...and better yet are there any clothing options that can keep you somewhat dry and warmer

so over the past i have had aweful night sweats.... i am looking for ideas on what is causing it...and better yet are there any clothing options that can keep you somewhat dry and warmer

so over the past i have had aweful night sweats.... i am looking for ideas on what is causing it...and better yet are there any clothing options that can keep you somewhat dry and warmer

Ok, so I was prescribed cayston for the first time and I just received everything....this is a pretty complex medication, and between my life and having to take pulmozyme and now being on 2 iv meds 3 times a day....this is way to much...... is this drug even worth it...has anyone here seen any...

Ok, so I was prescribed cayston for the first time and I just received everything....this is a pretty complex medication, and between my life and having to take pulmozyme and now being on 2 iv meds 3 times a day....this is way to much...... is this drug even worth it...has anyone here seen any...

Ok, so I was prescribed cayston for the first time and I just received everything....this is a pretty complex medication, and between my life and having to take pulmozyme and now being on 2 iv meds 3 times a day....this is way to much...... is this drug even worth it...has anyone here seen any...

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than...

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than...

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than...

I was born and raised in buffalo, NY And was seen by cf center at childrens and then the adult cf center. I moved to Orlando 6 years ago for better care. I want to know how the care is now... I know dr Cronin is gone but how is it with out him..... Anyone see any pulmonalogist's there instead...