Frustrated with Cf

[Iamqueenofeverything]

i usuall have a good attitude about my cf but sometimes i just need to vent to ppl who understand and not feel sorry for me.

if you want to vent, please do but also leave something you are grateful for because of Cf such as what you have learned..

right now i am doing 18 days of home ivs. because of this, i have missed out on two of my good friends birthday parites and some other parties like a baby shower for my singles minister's wife. i am missing out on my accountilbilty group where a group of girls hold each other accountible to our Christian faith so we can grow stronger.

i am sleeping so much because i have no energy and the meds require me to get up early and keep me up late at night. I am missing out on my job because of all the meds and treatments i need to do.

i hate missing out because i feel like my boss is disappointed in me.

i also hate when i cant keep up with my friends and family.

on the positive side, i can email my doctor and he can admitt me via email and phone calls. i am grateful that i can do all my days of iv meds at home and that i can be on my dad's insurance. i have loving and suppotive family and friends who pray for me. i am grateful i can adminster my ivs myself.

 

[Iamqueenofeverything]

i usuall have a good attitude about my cf but sometimes i just need to vent to ppl who understand and not feel sorry for me.

if you want to vent, please do but also leave something you are grateful for because of Cf such as what you have learned..

right now i am doing 18 days of home ivs. because of this, i have missed out on two of my good friends birthday parites and some other parties like a baby shower for my singles minister's wife. i am missing out on my accountilbilty group where a group of girls hold each other accountible to our Christian faith so we can grow stronger.

i am sleeping so much because i have no energy and the meds require me to get up early and keep me up late at night. I am missing out on my job because of all the meds and treatments i need to do.

i hate missing out because i feel like my boss is disappointed in me.

i also hate when i cant keep up with my friends and family.

on the positive side, i can email my doctor and he can admitt me via email and phone calls. i am grateful that i can do all my days of iv meds at home and that i can be on my dad's insurance. i have loving and suppotive family and friends who pray for me. i am grateful i can adminster my ivs myself.

 

[Iamqueenofeverything]

i usuall have a good attitude about my cf but sometimes i just need to vent to ppl who understand and not feel sorry for me.
<br />
<br />if you want to vent, please do but also leave something you are grateful for because of Cf such as what you have learned..
<br />
<br />right now i am doing 18 days of home ivs. because of this, i have missed out on two of my good friends birthday parites and some other parties like a baby shower for my singles minister's wife. i am missing out on my accountilbilty group where a group of girls hold each other accountible to our Christian faith so we can grow stronger.
<br />
<br />i am sleeping so much because i have no energy and the meds require me to get up early and keep me up late at night. I am missing out on my job because of all the meds and treatments i need to do.
<br />
<br />i hate missing out because i feel like my boss is disappointed in me.
<br />
<br />i also hate when i cant keep up with my friends and family.
<br />
<br />on the positive side, i can email my doctor and he can admitt me via email and phone calls. i am grateful that i can do all my days of iv meds at home and that i can be on my dad's insurance. i have loving and suppotive family and friends who pray for me. i am grateful i can adminster my ivs myself.

 

[Proxy]

CF is a pain,I just got out of hospital a week ago yet I am still declining, I continue doing everything im told to do but when I have no progress its extremly frustrating.I have one week to get better before im admitted again, all I think about is that im getting sent back and I have no control over anything.
Im on full time oxygen again when I worked so hard to get off of it years ago, it feels like a personal failure, its unpleasant having a leash on your face all the time.
I get tired from everything, even taking a shower, today I bickered with someone about my diet and the small confrontation wore me out so much I needed to lay down.
At night I sleep for about 13 hours, I only get up cause I need to do my therapy, I feel like I am sleeping my life away and im a waste of space.

But,I am thankful I have free healthcare and am blessed that because of CF I realised things about life I may not have known otherwise,like cherish every single day because you never know..

that was my vent ^^

 

[Proxy]

CF is a pain,I just got out of hospital a week ago yet I am still declining, I continue doing everything im told to do but when I have no progress its extremly frustrating.I have one week to get better before im admitted again, all I think about is that im getting sent back and I have no control over anything.
Im on full time oxygen again when I worked so hard to get off of it years ago, it feels like a personal failure, its unpleasant having a leash on your face all the time.
I get tired from everything, even taking a shower, today I bickered with someone about my diet and the small confrontation wore me out so much I needed to lay down.
At night I sleep for about 13 hours, I only get up cause I need to do my therapy, I feel like I am sleeping my life away and im a waste of space.

But,I am thankful I have free healthcare and am blessed that because of CF I realised things about life I may not have known otherwise,like cherish every single day because you never know..

that was my vent ^^

 

[Proxy]

CF is a pain,I just got out of hospital a week ago yet I am still declining, I continue doing everything im told to do but when I have no progress its extremly frustrating.I have one week to get better before im admitted again, all I think about is that im getting sent back and I have no control over anything.
<br />Im on full time oxygen again when I worked so hard to get off of it years ago, it feels like a personal failure, its unpleasant having a leash on your face all the time.
<br />I get tired from everything, even taking a shower, today I bickered with someone about my diet and the small confrontation wore me out so much I needed to lay down.
<br />At night I sleep for about 13 hours, I only get up cause I need to do my therapy, I feel like I am sleeping my life away and im a waste of space.
<br />
<br />But,I am thankful I have free healthcare and am blessed that because of CF I realised things about life I may not have known otherwise,like cherish every single day because you never know..
<br />
<br />that was my vent ^^

 

[ej0820]

wow...

the combination of you two sound like me. I'm on my fifth (? I've lost count...) week of IVs at home and am EXHAUSTED. I, too, am up late and up early just to do meds and it's really taking a toll on me. I'm so nauseous from these meds and nothing is helping it. I, too, feel like I'm sleeping my life away and becoming more and more a waste of space and whatever air I can get in and out. My work is so accommodating to me and very understanding of time I need off to do all these meds, but I too feel like I'm such a disappointment to my managers.

CF has, however, given me the opportunity to meet so many wonderful people like you guys and has allowed me to meet some of the most inspiring people ever!

 

[ej0820]

wow...

the combination of you two sound like me. I'm on my fifth (? I've lost count...) week of IVs at home and am EXHAUSTED. I, too, am up late and up early just to do meds and it's really taking a toll on me. I'm so nauseous from these meds and nothing is helping it. I, too, feel like I'm sleeping my life away and becoming more and more a waste of space and whatever air I can get in and out. My work is so accommodating to me and very understanding of time I need off to do all these meds, but I too feel like I'm such a disappointment to my managers.

CF has, however, given me the opportunity to meet so many wonderful people like you guys and has allowed me to meet some of the most inspiring people ever!

 

[ej0820]

wow...
<br />
<br />the combination of you two sound like me. I'm on my fifth (? I've lost count...) week of IVs at home and am EXHAUSTED. I, too, am up late and up early just to do meds and it's really taking a toll on me. I'm so nauseous from these meds and nothing is helping it. I, too, feel like I'm sleeping my life away and becoming more and more a waste of space and whatever air I can get in and out. My work is so accommodating to me and very understanding of time I need off to do all these meds, but I too feel like I'm such a disappointment to my managers.
<br />
<br />CF has, however, given me the opportunity to meet so many wonderful people like you guys and has allowed me to meet some of the most inspiring people ever!

 

[entropy]

<img src="i/expressions/face-icon-small-sad.gif" border="0"> Proxy...

Sending healing vibes your way <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[entropy]

<img src="i/expressions/face-icon-small-sad.gif" border="0"> Proxy...

Sending healing vibes your way <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[entropy]

<img src="i/expressions/face-icon-small-sad.gif" border="0"> Proxy...
<br />
<br />Sending healing vibes your way <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[minimedic304]

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than anything....i am trying to fight back because i dont think i can handle a transplant physically or mentally....and i know 2 cf patients that just passed away in the last two weeks and that is on my mind.....cf sucks

 

[minimedic304]

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than anything....i am trying to fight back because i dont think i can handle a transplant physically or mentally....and i know 2 cf patients that just passed away in the last two weeks and that is on my mind.....cf sucks

 

[minimedic304]

i am 30 and feel like i just hit the wall with my cf....i suffered two collapsed lungs in one month...have to get two chest tubes....and now i am on iv antibiotics for another two weeks...i havent left my house much for over 1 1/2 months....i cant take care of my son and pisses me off more than anything....i am trying to fight back because i dont think i can handle a transplant physically or mentally....and i know 2 cf patients that just passed away in the last two weeks and that is on my mind.....cf sucks

 

[sexxiej]

its been one month since my last hospitalization, but its a fight everyday.. im so sick and tired of my stomach constantly hurting.. my enzymes arent working and i cant get my diabetes under control...i've lost my job due to my cf and being in the hospital, i cant keep my frikkin weight up, im constantly sleepin all the time..i stay up all through the night coughin my lung up..its gettin to the point im startin to cough up blood..im sick and tired of being sick and tired...and the fact that i have osteoprosis my bones are KILLING ME...i seriously just wanna cry..


everyday is a learning experience with cf..i wouldnt change that for anything...cf has taught me how to appreciate things in life and not take it for granted

 

[sexxiej]

its been one month since my last hospitalization, but its a fight everyday.. im so sick and tired of my stomach constantly hurting.. my enzymes arent working and i cant get my diabetes under control...i've lost my job due to my cf and being in the hospital, i cant keep my frikkin weight up, im constantly sleepin all the time..i stay up all through the night coughin my lung up..its gettin to the point im startin to cough up blood..im sick and tired of being sick and tired...and the fact that i have osteoprosis my bones are KILLING ME...i seriously just wanna cry..


everyday is a learning experience with cf..i wouldnt change that for anything...cf has taught me how to appreciate things in life and not take it for granted

 

[sexxiej]

its been one month since my last hospitalization, but its a fight everyday.. im so sick and tired of my stomach constantly hurting.. my enzymes arent working and i cant get my diabetes under control...i've lost my job due to my cf and being in the hospital, i cant keep my frikkin weight up, im constantly sleepin all the time..i stay up all through the night coughin my lung up..its gettin to the point im startin to cough up blood..im sick and tired of being sick and tired...and the fact that i have osteoprosis my bones are KILLING ME...i seriously just wanna cry..
<br />
<br />
<br />everyday is a learning experience with cf..i wouldnt change that for anything...cf has taught me how to appreciate things in life and not take it for granted

 

[windex125]

I know I've posted this before, and although I do not remember anyone agreeing with me on this. I have used anti-depressants over the past 8yrs . They have helped me over the rocky times. They are not a happy pill in a bottle, by any means. I also have not stayed on longer than 7-8mts. Then I take a break, it just helps me personally deal with all the fustration of doing everything I can to stay well, and still get sick. All the meds, the treatments, the exhausted feelings but most of all the hacking and the amount of phelem that comes out of me is quite unbeleivable, it truly discusts me at times. Beleive it or not I really try to keep a postive attitude as much as I can, and I have become the therapist to many friends, a job I never wanted. But all I am suggestioing is that it has helped me in the past. It's not a bad thing. Also talking without meds is just as good as long as the person truly understands CF. I wish you all the best, we work very hard. I wish we got paid for all the hard work. Pat/55-CF

 

[windex125]

I know I've posted this before, and although I do not remember anyone agreeing with me on this. I have used anti-depressants over the past 8yrs . They have helped me over the rocky times. They are not a happy pill in a bottle, by any means. I also have not stayed on longer than 7-8mts. Then I take a break, it just helps me personally deal with all the fustration of doing everything I can to stay well, and still get sick. All the meds, the treatments, the exhausted feelings but most of all the hacking and the amount of phelem that comes out of me is quite unbeleivable, it truly discusts me at times. Beleive it or not I really try to keep a postive attitude as much as I can, and I have become the therapist to many friends, a job I never wanted. But all I am suggestioing is that it has helped me in the past. It's not a bad thing. Also talking without meds is just as good as long as the person truly understands CF. I wish you all the best, we work very hard. I wish we got paid for all the hard work. Pat/55-CF