Search results

  1. N

    Can you have CF without a mutated gene and failed sweat test?

    having two novel mutations would be rare bot certainly possible. it would simply mean that your daughter has two mutations that haven't been discovered yet. does your daughter have any lung/pulmonary symptoms, such as a history of productive cough, frequent infections, sinus problems, or...
  2. N

    Can you have CF without a mutated gene and failed sweat test?

    having two novel mutations would be rare bot certainly possible. it would simply mean that your daughter has two mutations that haven't been discovered yet. does your daughter have any lung/pulmonary symptoms, such as a history of productive cough, frequent infections, sinus problems, or...
  3. N

    Can you have CF without a mutated gene and failed sweat test?

    having two novel mutations would be rare bot certainly possible. it would simply mean that your daughter has two mutations that haven't been discovered yet. does your daughter have any lung/pulmonary symptoms, such as a history of productive cough, frequent infections, sinus problems, or...
  4. N

    Can you have CF without a mutated gene and failed sweat test?

    having two novel mutations would be rare bot certainly possible. it would simply mean that your daughter has two mutations that haven't been discovered yet. does your daughter have any lung/pulmonary symptoms, such as a history of productive cough, frequent infections, sinus problems, or...
  5. N

    Can you have CF without a mutated gene and failed sweat test?

    having two novel mutations would be rare bot certainly possible. it would simply mean that your daughter has two mutations that haven't been discovered yet. <br /> <br />does your daughter have any lung/pulmonary symptoms, such as a history of productive cough, frequent infections, sinus...
  6. N

    De-Saturation

    hey hannah, it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer...
  7. N

    De-Saturation

    hey hannah, it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer...
  8. N

    De-Saturation

    hey hannah, it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer...
  9. N

    De-Saturation

    hey hannah, it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so for a CFer...
  10. N

    De-Saturation

    hey hannah, <br /> <br />it's pretty common for CFers to need O2 at night as they get older. as skye said, we sometimes de-sat at night due to the deep relaxation of sleep -- actually, everyone de-sats to some degree, and it's "normal" to drop anywhere from 2-7 percentage points overnight. so...
  11. N

    Acute Rejection

    Pre-tx here, but my clinic has warned me again and again that acute rejection is really common in the first 3 months and almost always completely treatable. Apparently the first months are actually the MOST common time to get rejection, even though it feels like it's too soon -- the lungs are...
  12. N

    Acute Rejection

    Pre-tx here, but my clinic has warned me again and again that acute rejection is really common in the first 3 months and almost always completely treatable. Apparently the first months are actually the MOST common time to get rejection, even though it feels like it's too soon -- the lungs are...
  13. N

    Acute Rejection

    Pre-tx here, but my clinic has warned me again and again that acute rejection is really common in the first 3 months and almost always completely treatable. Apparently the first months are actually the MOST common time to get rejection, even though it feels like it's too soon -- the lungs are...
  14. N

    Acute Rejection

    Pre-tx here, but my clinic has warned me again and again that acute rejection is really common in the first 3 months and almost always completely treatable. Apparently the first months are actually the MOST common time to get rejection, even though it feels like it's too soon -- the lungs are...
  15. N

    Acute Rejection

    Pre-tx here, but my clinic has warned me again and again that acute rejection is really common in the first 3 months and almost always completely treatable. Apparently the first months are actually the MOST common time to get rejection, even though it feels like it's too soon -- the lungs are...
  16. N

    i have the "vest" and cant use it

    i have the First of all, make sure YOU own it and that it's yours to sell -- with insurance sometimes this is tricky, even if you've had the thing for a couple of years and no one's ever bothered you about it. Just check to make sure it is completely bought and paid for, etc. If it is, ebay is...
  17. N

    i have the "vest" and cant use it

    i have the First of all, make sure YOU own it and that it's yours to sell -- with insurance sometimes this is tricky, even if you've had the thing for a couple of years and no one's ever bothered you about it. Just check to make sure it is completely bought and paid for, etc. If it is, ebay is...
  18. N

    i have the "vest" and cant use it

    i have the First of all, make sure YOU own it and that it's yours to sell -- with insurance sometimes this is tricky, even if you've had the thing for a couple of years and no one's ever bothered you about it. Just check to make sure it is completely bought and paid for, etc. If it is, ebay is...
  19. N

    i have the "vest" and cant use it

    i have the First of all, make sure YOU own it and that it's yours to sell -- with insurance sometimes this is tricky, even if you've had the thing for a couple of years and no one's ever bothered you about it. Just check to make sure it is completely bought and paid for, etc. If it is, ebay is...
  20. N

    i have the "vest" and cant use it

    i have the First of all, make sure YOU own it and that it's yours to sell -- with insurance sometimes this is tricky, even if you've had the thing for a couple of years and no one's ever bothered you about it. Just check to make sure it is completely bought and paid for, etc. <br /> <br />If it...
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