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Hi Liz, Welcome. I think it's great that as a grandparent you are being supportive. CF is a time consuming disease and having a support system can really make a difference. You had asked how to avoid bacteria, specifically pseudomonas? Unfortunately, it is really hard to avoid some of these...

Pancreacarb is back on the market, I heard. It has a new name(can't remember right now). This helped my daughter alot when she was maxed out on doses. Do you use a probiotic daily? Also, using a acid blocker can help as well. What I have done that has immensely helped my daughter is when...

My daughter has been on HTS since she was about 4; She is now 9. I remember when she started Hypersal at 4 years old she ended up gaining a few pounds; she coughed like crazy for a month, needed some oral antibitotics and then felt better. My daughter is of course over 6 years old and does...

Yum!

http://www.businesswire.com/news/home/20120529005664/en/Vertex-Corrects-Additional-Data-Interim-Analysis-Phase Anyone care to explain what this means?

http://www.npr.org/blogs/money/2012/05/18/153004617/how-do-you-decide-who-gets-lungs

http://www.npr.org/blogs/money/2012/05/18/153004617/how-do-you-decide-who-gets-lungs

Thank you for posting this Liza. Fortunately through trial and error we figured out that Creon and combining sodium bicarb is effective for digestion for my daughter. Now I would be afraid to switch off this plan at this point. She is in the 93% fr her weight(just went to clinic Tues) It is...

Wondering if anyone heard of these? What would be the benefit of taking this vs Culturelle.

Wondering if anyone heard of these? What would be the benefit of taking this vs Culturelle.

Tom, That's great! Is Kalydeco metabolized by the liver?

Tom, That's great! Is Kalydeco metabolized by the liver?

Our clinic is going to start screening patients for this. I was told it has to be a expectorated sputum sample(not cough swab)...My daughter has yet to cough up a sputum sample into a cup(well maybe one but it was mixed with saliva). Sorry to hijack this thread but do you know if a sample...

Our clinic is going to start screening patients for this. I was told it has to be a expectorated sputum sample(not cough swab)...My daughter has yet to cough up a sputum sample into a cup(well maybe one but it was mixed with saliva). Sorry to hijack this thread but do you know if a sample...

http://www.savarapharma.com/news_Ph1a.html Thought this was interesting as there is no approved inhaled treatment for MRSA in lung

http://www.savarapharma.com/news_Ph1a.html Thought this was interesting as there is no approved inhaled treatment for MRSA in lung

Decided to make kale chips today. So easy and my 9 year ld daughter is eating a big bowl of homemade kale chips with a little salt and olive oil. <img src="i/expressions/face-icon-small-smile.gif" border="0"> She loves them; so happy

Alot of this post is cut off, I would love to be able to read it. Help!

Alot of this post is cut off, I would love to be able to read it. Help!

What is he on Flagyl for?