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  1. R

    Need thoughts on GI issues for 34 month old CF

    What is he on Flagyl for?
  2. R

    g551d mutations on Kalydeco

    Tom, That is wonderful news. Please keep us updated on your son's progress.
  3. R

    g551d mutations on Kalydeco

    Tom, That is wonderful news. Please keep us updated on your son's progress.
  4. R

    Children affected by CF

    Actually, I like the pictures. Cystic Fibrosis is not lollipops and roses. I often have even people very close to me forget that CF can rear it's ugly head at any minute, and it's serious and there is no cure. I try to be very positive, my daughter excels at lots of things, but CF can wear us...
  5. R

    Children affected by CF

    Actually, I like the pictures. Cystic Fibrosis is not lollipops and roses. I often have even people very close to me forget that CF can rear it's ugly head at any minute, and it's serious and there is no cure. I try to be very positive, my daughter excels at lots of things, but CF can wear us...
  6. R

    Do any of you still feel your lungs shaking

    My 9 year old finished her Vest and sat down on the couch and said I am still shaking, I assume she means her lungs inside. Just curious if any of you have had that sensation. She came down with yet another cold, so I wonder if it's more noticeable when she has extra mucous?
  7. R

    Do any of you still feel your lungs shaking

    My 9 year old finished her Vest and sat down on the couch and said I am still shaking, I assume she means her lungs inside. Just curious if any of you have had that sensation. She came down with yet another cold, so I wonder if it's more noticeable when she has extra mucous?
  8. R

    Forbes article

    http://www.forbes.com/sites/matthewherper/2012/05/07/a-one-two-punch-against-cystic-fibrosis-and-maybe-someday-other-diseases-too/
  9. R

    Forbes article

    http://www.forbes.com/sites/matthewherper/2012/05/07/a-one-two-punch-against-cystic-fibrosis-and-maybe-someday-other-diseases-too/
  10. R

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I was wondering about single Delta F508...Thanks for the info
  11. R

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    I was wondering about single Delta F508...Thanks for the info
  12. R

    School rampant with strep throat

    Julissa, Strep throat is transferred by saliva. So, the way kids can get each other sick with it is by sharing food, drink, or coughing on each other when the child has strep throat and is not on antibitiotics and has a fever. Have you spoken with your child's pediatrician about your daughter...
  13. R

    School rampant with strep throat

    Julissa, Strep throat is transferred by saliva. So, the way kids can get each other sick with it is by sharing food, drink, or coughing on each other when the child has strep throat and is not on antibitiotics and has a fever. Have you spoken with your child's pediatrician about your daughter...
  14. R

    IV zyvox vs oral

    Doing some reading. Anyone know which is more effective for MRSA, oral zyvox or IV. Just curious. I was reading that Zyvox penetrates lung tissue better than IV Vanco.
  15. R

    IV zyvox vs oral

    Doing some reading. Anyone know which is more effective for MRSA, oral zyvox or IV. Just curious. I was reading that Zyvox penetrates lung tissue better than IV Vanco.
  16. R

    Need some fundraising help

    Oh also, does anyone have any luck with those pinups? Do businesses feel they are just a pain? I have yet to have a business want to do them.
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