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  1. R

    Neb Supplies online

    Those Pari masks are expensive; but I like to use the Pari baby size 2. For some reason I don't like the bubbles mask cause you can't boil it. Whenever I did the colors on the mask come off. My daughter likes to bite the bottom of the mask so she can use both hands to do stuff; when I tell...
  2. R

    Neb Supplies online

    looking to stock up on some neb supplies. I tried American Allergy Supply but they only had 3 of the Pari baby neb masks. I would like to order about a dozen. figure if I am going to pay for shipping might as well buy them in bulk. My daughter tends to chew on the bottom of the mask so...
  3. R

    Neb Supplies online

    looking to stock up on some neb supplies. I tried American Allergy Supply but they only had 3 of the Pari baby neb masks. I would like to order about a dozen. figure if I am going to pay for shipping might as well buy them in bulk. My daughter tends to chew on the bottom of the mask so...
  4. R

    Mucus question

    Had to take her to the doc, PFT's slightly down and she was wheezy. Back on prednisone <img src="i/expressions/face-icon-small-sad.gif" border="0"> and waiting for culture report before changing much of anything else.
  5. R

    Mucus question

    Had to take her to the doc, PFT's slightly down and she was wheezy. Back on prednisone <img src="i/expressions/face-icon-small-sad.gif" border="0"> and waiting for culture report before changing much of anything else.
  6. R

    Mucus question

    Typically after a cold how long does it take for you or your child to get rid of the leftover gunk? Seems like it becoming more frequent occurance for us. My daughter had a cold over Easter weekend, with a slight temp at first, really stuffy nose and congested head cold. It did not seem to...
  7. R

    Mucus question

    Typically after a cold how long does it take for you or your child to get rid of the leftover gunk? Seems like it becoming more frequent occurance for us. My daughter had a cold over Easter weekend, with a slight temp at first, really stuffy nose and congested head cold. It did not seem to...
  8. R

    Neumathorax and colapsed lung? Heres my story i never had one before

    I have not experienced this with my daughter; just wanted you to know I so glad you got to the hospital ok. That does sound scary; I will be thinking of you and hoping the doctors figure this out soon!
  9. R

    Neumathorax and colapsed lung? Heres my story i never had one before

    I have not experienced this with my daughter; just wanted you to know I so glad you got to the hospital ok. That does sound scary; I will be thinking of you and hoping the doctors figure this out soon!
  10. R

    Contaminated Ultrasound gel

    http://health.yahoo.net/news/s/nm/u-s-officials-seize-contaminated-ultrasound-gel Yuck
  11. R

    Contaminated Ultrasound gel

    http://health.yahoo.net/news/s/nm/u-s-officials-seize-contaminated-ultrasound-gel Yuck
  12. R

    Hill Rom VEST died :(

    The VEST came today! My arm was killing me, however I learned some new things from this experience. Manual CHEST pt is good. My daughter felt that I hit her harder than the VEST. SHe said the VEST just vibrates her but my manual pounding hits her better. Also, THe Hill Rom VEST co does...
  13. R

    Hill Rom VEST died :(

    The VEST came today! My arm was killing me, however I learned some new things from this experience. Manual CHEST pt is good. My daughter felt that I hit her harder than the VEST. SHe said the VEST just vibrates her but my manual pounding hits her better. Also, THe Hill Rom VEST co does...
  14. R

    Hill Rom VEST died :(

    Yeah, I thought I could really pound on her in a more focused way. I did some manual this am and when I was done she let out one good cough. So maybe it'll be good to do this manual stuff this weekend. I need the upper body workout <img src="i/expressions/face-icon-small-smile.gif" border="0">...
  15. R

    Hill Rom VEST died :(

    Yeah, I thought I could really pound on her in a more focused way. I did some manual this am and when I was done she let out one good cough. So maybe it'll be good to do this manual stuff this weekend. I need the upper body workout <img src="i/expressions/face-icon-small-smile.gif" border="0">...
  16. R

    Hill Rom VEST died :(

    My daughter's VEST made a really weird noise during her morning treatment and just Died! of course it's weekend and customer service at Hillrom is not available(as far as I know) til Monday. I left a message on their customer service line. Looking for advice if there is anyting else I can do. We...
  17. R

    Hill Rom VEST died :(

    My daughter's VEST made a really weird noise during her morning treatment and just Died! of course it's weekend and customer service at Hillrom is not available(as far as I know) til Monday. I left a message on their customer service line. Looking for advice if there is anyting else I can do. We...
  18. R

    Coughing judgment at the gym (or any public space)

    Eric, I think wearing your Great Strides t shirt is a great idea. You can spread awareness; while you are working out and doing what you need to do to keep yourself healthy. My daughter is the one with CF; we've gotten some weird looks at times; One woman told me her son had that cough and...
  19. R

    Coughing judgment at the gym (or any public space)

    Eric, I think wearing your Great Strides t shirt is a great idea. You can spread awareness; while you are working out and doing what you need to do to keep yourself healthy. My daughter is the one with CF; we've gotten some weird looks at times; One woman told me her son had that cough and...
  20. R

    allergies, allergy meds, black circles

    Sounds like you have a plan in place with you doc; thats good! When my daughter is having issues; I usually keep a daily log of her symptoms; it helps me figure out what to ask the doc and how to explain what is going on. Questions I ask my daughter when she starts with cough; She does NOT have...
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