Search results

Sounds like you have a plan in place with you doc; thats good! When my daughter is having issues; I usually keep a daily log of her symptoms; it helps me figure out what to ask the doc and how to explain what is going on. Questions I ask my daughter when she starts with cough; She does NOT have...

Are you sure it is allergies causing his issue? Sounds like your son is young; can he not tell you how he feels? Has he had a throat/cough swab to check for CF bacteria? It's hard when they are little and can't tell you how they feel. It is always ok to call the CF doc to check in; your...

Are you sure it is allergies causing his issue? Sounds like your son is young; can he not tell you how he feels? Has he had a throat/cough swab to check for CF bacteria? It's hard when they are little and can't tell you how they feel. It is always ok to call the CF doc to check in; your...

Exactly what I was thinking! Do you think the ones with the alcohol base are ok for CF kids?

Exactly what I was thinking! Do you think the ones with the alcohol base are ok for CF kids?

Just curious if any of you use this for your CF kids? It is a non alcohol fluoride mouthwash. Our dentist suggested it for my CF daughter. I am always hesitant to use these types of mouthwashes because of contaminants or risks of getting bacteria cause it is not alcohol based. What do you all...

Just curious if any of you use this for your CF kids? It is a non alcohol fluoride mouthwash. Our dentist suggested it for my CF daughter. I am always hesitant to use these types of mouthwashes because of contaminants or risks of getting bacteria cause it is not alcohol based. What do you all...

Hi there, My daughter is 9 years old. I remember squirting a little flax seed oil in Yo baby yogurt. My daughter did not eat baby food; she pretty much went right to big people food(must have been cause she was a 2nd child). She loved(still does) meat, pulled pork, rice and beans. If I was...

Hi there, My daughter is 9 years old. I remember squirting a little flax seed oil in Yo baby yogurt. My daughter did not eat baby food; she pretty much went right to big people food(must have been cause she was a 2nd child). She loved(still does) meat, pulled pork, rice and beans. If I was...

Jessy, That's wonderful! Does your insurance cover the Kalydeco? I would be up my insurance co butt if they did not cover a bronchodilator for my child with CF. That makes absolutely NO sense and makes me very angry for you. However, I am so glad you are doing well!

Jessy, That's wonderful! Does your insurance cover the Kalydeco? I would be up my insurance co butt if they did not cover a bronchodilator for my child with CF. That makes absolutely NO sense and makes me very angry for you. However, I am so glad you are doing well!

Liza, We get the Myoplex Chocolate Chocolate chip. They are Yummy! And filling. My daughter can only eat 1/2 a bar at a time. We cut it in half and save the other half for the next day.

Liza, We get the Myoplex Chocolate Chocolate chip. They are Yummy! And filling. My daughter can only eat 1/2 a bar at a time. We cut it in half and save the other half for the next day.

Beef jerky, almonds, protein bars(they have sooo many kinds) My daughter likes Promax bars the cookies and cream flavor. You can even get FREE protein bars if you use Creon enzymes with their CF careforward program. Oreos and whole milk.

Beef jerky, almonds, protein bars(they have sooo many kinds) My daughter likes Promax bars the cookies and cream flavor. You can even get FREE protein bars if you use Creon enzymes with their CF careforward program. Oreos and whole milk.

And also, thank you so much to those individuals who took time to participate in the trial. My daughter has had Cf progression these past years and we need something to intervene.

And also, thank you so much to those individuals who took time to participate in the trial. My daughter has had Cf progression these past years and we need something to intervene.

My daughter is W1282X and Delta F508. I think they are analyzing the data from the ataluren clinical trial. Hoping the information will be released soon; I wonder if it will be at the next CF conference in the fall or for the spring thoracic conference. No facts here; just wondering aloud.

My daughter is W1282X and Delta F508. I think they are analyzing the data from the ataluren clinical trial. Hoping the information will be released soon; I wonder if it will be at the next CF conference in the fall or for the spring thoracic conference. No facts here; just wondering aloud.

http://health.yahoo.net/news/s/hsn/should-cystic-fibrosis-patients-get-so-many-antibiotics