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  1. R

    Sinus/Nasal Issues

    Maybe the nasonex will help, shrink the inflamed tissue. Years ago, I remember our CF doc said he has never seen a CF patient with a normal sinus xray. This was when my daughter's regular ped had ordered sinus films. Glad it's not polyps/or adenoids. Keep us updated!
  2. R

    Sinus/Nasal Issues

    Maybe the nasonex will help, shrink the inflamed tissue. Years ago, I remember our CF doc said he has never seen a CF patient with a normal sinus xray. This was when my daughter's regular ped had ordered sinus films. Glad it's not polyps/or adenoids. Keep us updated!
  3. R

    Left over goo

    Ed, My daughter loves to sing. She had been taking voice lessons then stopped(her "teacher" is a young music major in college). We plan on doing voice lessons again during her summer break. When we drive to her doctor's appointment it takes an hour and half, she usually is singing songs on...
  4. R

    Left over goo

    Ed, My daughter loves to sing. She had been taking voice lessons then stopped(her "teacher" is a young music major in college). We plan on doing voice lessons again during her summer break. When we drive to her doctor's appointment it takes an hour and half, she usually is singing songs on...
  5. R

    Sinus/Nasal Issues

    Hope your appointment goes smoothly. You made me smile with your rock comment.
  6. R

    Sinus/Nasal Issues

    Hope your appointment goes smoothly. You made me smile with your rock comment.
  7. R

    Left over goo

    My daughter is 9. She drinks tons of fluids, she has not been exercizing as much as she usually does cause the antibiotics and steroids make her feel yucky, but now she's off them and I want to her get rid of that left over gunk. It's not alot just she usually does not have it. She does...
  8. R

    Left over goo

    My daughter is 9. She drinks tons of fluids, she has not been exercizing as much as she usually does cause the antibiotics and steroids make her feel yucky, but now she's off them and I want to her get rid of that left over gunk. It's not alot just she usually does not have it. She does...
  9. R

    Left over goo

    So, My daughter has had an exacerbation, treated her with steroids and anti's(for over a month)..Her follow-up PFT's are better but still about 6% less than in December when they were at her all time best. She has a bit of mucus left(she's ALOT better) but I am afraid with the next cold/resp...
  10. R

    Left over goo

    So, My daughter has had an exacerbation, treated her with steroids and anti's(for over a month)..Her follow-up PFT's are better but still about 6% less than in December when they were at her all time best. She has a bit of mucus left(she's ALOT better) but I am afraid with the next cold/resp...
  11. R

    Back into the hospital tonight

    This must be so hard for all of you. Keeping you and your family in my thoughts.
  12. R

    Back into the hospital tonight

    This must be so hard for all of you. Keeping you and your family in my thoughts.
  13. R

    CF article

    <a href="http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2">http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2</a>
  14. R

    CF article

    <a href="http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2">http://www.lhj.com/health/news/choosing-my-life-or-my-unborn-child/?page=2</a>
  15. R

    sodium bicarbonate

    Blythe, Does your daughter swallow pills? Sodium bicarbonate tablets is over the counter. It is very"old fashioned" so our drug store does not carry it but if you talk to your pharmacist they can order it for you or you can get it online. Sodium bicarbonate is just baking soda. The dosage...
  16. R

    sodium bicarbonate

    Blythe, Does your daughter swallow pills? Sodium bicarbonate tablets is over the counter. It is very"old fashioned" so our drug store does not carry it but if you talk to your pharmacist they can order it for you or you can get it online. Sodium bicarbonate is just baking soda. The dosage...
  17. R

    Breastfeeding help please!

    I breastfed my both my children as well. I have one with CF and one without. CF babies need more calories than non CF babies. My daughter with CF nurse all the time. I would give her her enzymes prior to a feeding and if she was going through a growth spurt and wanted to nurse again 1 and half...
  18. R

    Breastfeeding help please!

    I breastfed my both my children as well. I have one with CF and one without. CF babies need more calories than non CF babies. My daughter with CF nurse all the time. I would give her her enzymes prior to a feeding and if she was going through a growth spurt and wanted to nurse again 1 and half...
  19. R

    sodium bicarbonate

    Sodium Bicarbonate has helped my 9 year old daughter with CF as well. We give her 1/4 of a 650 mg tablet as well with her Creon enzymes when she has a meal and or snack. We got the ok from our CF doc prior to starting this. The reason we started this was because my daughter's enzyme...
  20. R

    sodium bicarbonate

    Sodium Bicarbonate has helped my 9 year old daughter with CF as well. We give her 1/4 of a 650 mg tablet as well with her Creon enzymes when she has a meal and or snack. We got the ok from our CF doc prior to starting this. The reason we started this was because my daughter's enzyme...
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