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  1. R

    New Cayston Uses and Existing users possible delays and shortage! Read here!

    <a href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm">http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm</a>
  2. R

    New Cayston Uses and Existing users possible delays and shortage! Read here!

    <a href="http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm">http://www.cff.org/aboutCFFoundation/NewsEvents/2-15-Cayston-Patients-May-Face-Treatment-Delays.cfm</a>
  3. R

    Am I overreacting?

    Talk to you child care provider that you don't want your child drinking anyone's cup but his own. I remember when my daughter was a toddler this happened during playdates. I would just keep the cup up high out of reach so it won't be a problem. To be honest, I was concerned cause my daughter...
  4. R

    Am I overreacting?

    Talk to you child care provider that you don't want your child drinking anyone's cup but his own. I remember when my daughter was a toddler this happened during playdates. I would just keep the cup up high out of reach so it won't be a problem. To be honest, I was concerned cause my daughter...
  5. R

    Hospital for IV's

    Thank you for your ideas! I forgot about stuff like Lysol wipes and Purell. I have less than 2 weeks to get her PFT's up or we are going in(hopefully only for a few days) to get a PICC and drug levels up then we would be home for the rest(that's the plan anyway). This weekend I will make a...
  6. R

    Hospital for IV's

    Thank you for your ideas! I forgot about stuff like Lysol wipes and Purell. I have less than 2 weeks to get her PFT's up or we are going in(hopefully only for a few days) to get a PICC and drug levels up then we would be home for the rest(that's the plan anyway). This weekend I will make a...
  7. R

    Sorry to go missing for so long- update on the kids!

    Hoping things improve. You are such a good mom; it's so hard when you are doing everything you can and things still aren't where they should be.
  8. R

    Sorry to go missing for so long- update on the kids!

    Hoping things improve. You are such a good mom; it's so hard when you are doing everything you can and things still aren't where they should be.
  9. R

    Rough few weeks

    I am sorry Micah has been so sick. You guys have been through alot. I don't have any answers but I hope things improve.
  10. R

    Rough few weeks

    I am sorry Micah has been so sick. You guys have been through alot. I don't have any answers but I hope things improve.
  11. R

    Hospital for IV's

    I know this topic has been asked before; but we are getting close to needing an admission for PICC and IV's. Depends how the next 2 weeks go and the next PFT result. Anywho, my daughter has not been admitted for a long time(since she was 2 1/2 years old). She is 9 now. What do you bring? Meds...
  12. R

    Hospital for IV's

    I know this topic has been asked before; but we are getting close to needing an admission for PICC and IV's. Depends how the next 2 weeks go and the next PFT result. Anywho, my daughter has not been admitted for a long time(since she was 2 1/2 years old). She is 9 now. What do you bring? Meds...
  13. R

    Do you ever feel inadequate?

    Ugh, I feel like banging my head against the wall. My daughter was almost better from the last CF exacerbation..Due for a follow-up on Tuesday(4 days from now). I came home from work and she has a Bad cold; congestion COUGH, tightness in her chest. Always on the weekend<img...
  14. R

    Do you ever feel inadequate?

    Ugh, I feel like banging my head against the wall. My daughter was almost better from the last CF exacerbation..Due for a follow-up on Tuesday(4 days from now). I came home from work and she has a Bad cold; congestion COUGH, tightness in her chest. Always on the weekend<img...
  15. R

    Cystic Fibrosis/Great Strides 2012 Video!

    I thought your video was very good. I did watch the whole thing. I think it's great to see and hear a real person with CF explain it so articulately. I do think the general public is misinformed about MRSA and and can have a stigma to it. You look great, speak well, I hope you raise...
  16. R

    Cystic Fibrosis/Great Strides 2012 Video!

    I thought your video was very good. I did watch the whole thing. I think it's great to see and hear a real person with CF explain it so articulately. I do think the general public is misinformed about MRSA and and can have a stigma to it. You look great, speak well, I hope you raise...
  17. R

    Do you ever feel inadequate?

    Sheli, I am there with ya! My daughter has had some progression of her CF this past year or two. We had a really good fall with alot of hard work and now we are having issues again. It was only a few months of reprieve...Ugh, Chronic illness takes a toll on all of us. As well as I am in...
  18. R

    Do you ever feel inadequate?

    Sheli, I am there with ya! My daughter has had some progression of her CF this past year or two. We had a really good fall with alot of hard work and now we are having issues again. It was only a few months of reprieve...Ugh, Chronic illness takes a toll on all of us. As well as I am in...
  19. R

    770 approved!!!!!!!!!

    http://www.cff.org/aboutCFFoundation/NewsEvents/1-31-FDA-Approves-Kalydeco.cfm
  20. R

    770 approved!!!!!!!!!

    http://www.cff.org/aboutCFFoundation/NewsEvents/1-31-FDA-Approves-Kalydeco.cfm
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