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So, my daughter's cough is much better. She is off the prednisone and still on Zyvox. Coughing is minimal. I do think that the prednisone opened her up to let the gunk out. Anyway, she is tolerating the zyvox , hates the taste. My kids have renamed Zyvox, "Dyvox", cause she hates it so much.

So, my daughter's cough is much better. She is off the prednisone and still on Zyvox. Coughing is minimal. I do think that the prednisone opened her up to let the gunk out. Anyway, she is tolerating the zyvox , hates the taste. My kids have renamed Zyvox, "Dyvox", cause she hates it so much.

Just wondering if any of you work from home and what do you do? Just thinking about things I could do from home to earn some extra money while also being there to manage my daughter's illness. Currently I am an RN working per diem. Just finding it draining to go from one caring profession and...

Just wondering if any of you work from home and what do you do? Just thinking about things I could do from home to earn some extra money while also being there to manage my daughter's illness. Currently I am an RN working per diem. Just finding it draining to go from one caring profession and...

Do they use Zyvox?

Do they use Zyvox?

Edan, We have traveled as a family quite a bit and also last summer traveled in an RV for 9 days. My daughter did not miss one treatment. We have a converter that hooks up to the battery of the car and you can use it for electricity for the compressor and VEST. We also used an albuterol inhaler...

Edan, We have traveled as a family quite a bit and also last summer traveled in an RV for 9 days. My daughter did not miss one treatment. We have a converter that hooks up to the battery of the car and you can use it for electricity for the compressor and VEST. We also used an albuterol inhaler...

I did call the office; Pretty much wants to see how the weekend goes; did say that like Harriet said; The prednisone is opening the airways to let the mucus move around. Just keep an eye on her; call back if she gets worse or I am concerned and I'll call in Monday; to check the culture. How...

I did call the office; Pretty much wants to see how the weekend goes; did say that like Harriet said; The prednisone is opening the airways to let the mucus move around. Just keep an eye on her; call back if she gets worse or I am concerned and I'll call in Monday; to check the culture. How...

I do think my daughter did/does have alot of inflammation. Most of the time; her mucus is clear; wierd I know but it is very rare for her to have color to it. Even when her MRSA is flaring; it has been clear(at least nasal stuff; she swallows it usually)... I am hemming and hawing if I should...

I do think my daughter did/does have alot of inflammation. Most of the time; her mucus is clear; wierd I know but it is very rare for her to have color to it. Even when her MRSA is flaring; it has been clear(at least nasal stuff; she swallows it usually)... I am hemming and hawing if I should...

My daughter started 5 day Prednisone burst(on 2nd day) and Zyvox (also second day). She is coughing more today than when she started! Coughed up some clear mucus, I'm guessing the Prednisone opened her up more so she could get the mucus out? I thought the prednisone would tamp down her cough...

My daughter started 5 day Prednisone burst(on 2nd day) and Zyvox (also second day). She is coughing more today than when she started! Coughed up some clear mucus, I'm guessing the Prednisone opened her up more so she could get the mucus out? I thought the prednisone would tamp down her cough...

Thanks, mamaScarlett. I checked out your thread. We had a really bad respiratory winter last winter so I was hoping for a reprieve. Ugh. My daughter is on prednisone and her hard core anti's. We have to wait for her culture to some back next week to check if something new is growing and...

Thanks, mamaScarlett. I checked out your thread. We had a really bad respiratory winter last winter so I was hoping for a reprieve. Ugh. My daughter is on prednisone and her hard core anti's. We have to wait for her culture to some back next week to check if something new is growing and...

Hi there! Breastfeeding a baby can be hard, then throw in CF, enzymes, medications, chest PT; it's alot! I breastfed my 2 children, first child no CF my daughter the second child has CF. I breastfed her for 3 1/2 years. She is 9 now. This is what I would do with the enzymes. I would open the...

Hi there! Breastfeeding a baby can be hard, then throw in CF, enzymes, medications, chest PT; it's alot! I breastfed my 2 children, first child no CF my daughter the second child has CF. I breastfed her for 3 1/2 years. She is 9 now. This is what I would do with the enzymes. I would open the...

Loong day! PFT's were down, by 20%. Her lungs were wheezy too. Prednisone, and Stronger antibiotics, culture done, followup in 3 weeks. Basically home cleanout time. Bummer. Usually, we are doing this in March. Hoping the meds do the job and no unusual bugs show up in the culture.

Loong day! PFT's were down, by 20%. Her lungs were wheezy too. Prednisone, and Stronger antibiotics, culture done, followup in 3 weeks. Basically home cleanout time. Bummer. Usually, we are doing this in March. Hoping the meds do the job and no unusual bugs show up in the culture.