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Oh also, does anyone have any luck with those pinups? Do businesses feel they are just a pain? I have yet to have a business want to do them.

I went to our local icecream shop. I asked the manager about doing Great Strides pinups. She did not want to do that but gave us a gift card for $20 to the icecream shop for a raffle or something like that. She was very sweet. What do you all think about me using the gift card to give to...

I went to our local icecream shop. I asked the manager about doing Great Strides pinups. She did not want to do that but gave us a gift card for $20 to the icecream shop for a raffle or something like that. She was very sweet. What do you all think about me using the gift card to give to...

Sharon, It shows the reality of CF; you will be sad. It was a wonderfully done documentary in so many ways.

Sharon, It shows the reality of CF; you will be sad. It was a wonderfully done documentary in so many ways.

So my daughter is on her "liquid gold" antibiotics. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Went to fill the script and I guess our insurance co computer was down the whole day. The pharmacy we go to is a family pharmacy(for the particular antibiotic). They let us pick up...

So my daughter is on her "liquid gold" antibiotics. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Went to fill the script and I guess our insurance co computer was down the whole day. The pharmacy we go to is a family pharmacy(for the particular antibiotic). They let us pick up...

Set my DVR thanks!

Set my DVR thanks!

We do our yearly fundraising for the CFF. I need to send out a mass email to family and friends. Basically I send a link for My daughter web page for Great Strides. I also put in how this month is Cystic Fibrosis awareness month. I know finances are hard for lots of people lately. I feel like I...

We do our yearly fundraising for the CFF. I need to send out a mass email to family and friends. Basically I send a link for My daughter web page for Great Strides. I also put in how this month is Cystic Fibrosis awareness month. I know finances are hard for lots of people lately. I feel like I...

Is your child's doctor a CF doctor? Are you at a hospital with a CF center? The Cystic Fibrosis Foundation has a list of accredited centers on their website at www.cff.org. There are ALOT of CF mutations; I think over 1800 and usually they first screen for the most common and then go...

Is your child's doctor a CF doctor? Are you at a hospital with a CF center? The Cystic Fibrosis Foundation has a list of accredited centers on their website at www.cff.org. There are ALOT of CF mutations; I think over 1800 and usually they first screen for the most common and then go...

It sounds like your child is newly diagnosed with CF? Take the opportunity to learn as much as you can while in the hospital. Not sure if there is a CF team, nutritionist, social worker, respiratory therapist, pharmacist. It takes a village to care for a CF kid<img...

It sounds like your child is newly diagnosed with CF? Take the opportunity to learn as much as you can while in the hospital. Not sure if there is a CF team, nutritionist, social worker, respiratory therapist, pharmacist. It takes a village to care for a CF kid<img...

Dr Roe, Wow! those numbers are significant!

Dr Roe, Wow! those numbers are significant!

Curious if Kalydeco can help you get rid of bacteria you are culturing? Anyone keeping track of their sputum cultures and the type of bacteria they culture? I know people are tracking their PFT's but it would be also interesting to track amount and type of bacteria in sputum cultures.

Curious if Kalydeco can help you get rid of bacteria you are culturing? Anyone keeping track of their sputum cultures and the type of bacteria they culture? I know people are tracking their PFT's but it would be also interesting to track amount and type of bacteria in sputum cultures.

Those Pari masks are expensive; but I like to use the Pari baby size 2. For some reason I don't like the bubbles mask cause you can't boil it. Whenever I did the colors on the mask come off. My daughter likes to bite the bottom of the mask so she can use both hands to do stuff; when I tell...