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Matt, so sorry to hear you haven't been able to get in at your CF Center for 6 months. I would definitely check out the Cystic Fibrosis Patient Assistance Foundation I mentioned in my previous post. Another option is the Tobi copay card that brings your copay down to $10. Here is the...

Awe! Funny but a little sad at the same time. I'm 32 and it feels like I do treatments all day, so I can imagine for a 3 year old that's absolutely what it feels like! Glad he is doing well, keep up the good work mom! Take care, Autumn 32 w/CF

Thanks for posting this Lena! I'm currently under review after receiving benefits for about 4 years. I'm super nervous because I'm just teetering on the edge of meeting the impairment listing for CF. When I applied it was more clear because I had had many hospitalizations that year and I...

Hey everyone, Just thought this was kind of cool. Last week when my husband and I were watching the Ohio State vs. Iona game we noticed the Iona head coach and coaching staff were wearing warm ups, as opposed to a suit and tie. The announcers went on to say that the Iona basketball team and...

Wow, very interesting! Thanks for sharing! This is kinda weird because I normally don't watch this type of show (scary) but the other night it came on after something else we were watching so I actually caught a couple minutes of it, but wasn't really listening. I noticed a girl with oxygen...

Hi Matt, I second what Pat said above ^. The social worker at your CF center should be able to help you find and apply for assistance programs. Also, you can check out the Cystic Fibrosis Patient Assistance Foundation: http://www.cfpaf.org/ They offer copay assistance for many CF drugs...

AMEN Pat!!! I couldn't have put it any better myself!! I get so darn sick of wading through the 8 million medical bills and making sure they are correct and my insurance paid what they should etc. I also resent the fact that people in the US should have to go broke because of the fact that we...

Hi Caden, I'm certainly not an expert in this area but just wanted to chime in regarding the concern about whey and digestion etc. I use a vegan protein powder that has plant based protein as opposed to whey. It is surprisingly yummy (in my opinion). It also contains 8 billion probiotics per...

Oops, I'm back! :) Eliana, Just checked out the website and see that it does include the prices. So please disregard my previous post. Looks like they are out of stock on the 10 ml vials and only have the 30 ml vials. The problem with those is that I don't use it fast enough as the label...

Starfall, Thanks for updating us! I'm glad you got it! I've actually NEVER gotten brand name Mucomyst (always generic) so that would be new to me. Would you mind PMing me how much it cost you? I can also check their website, but wondering if they include price? Thanks again for posting...

Ya, wow, the level of spamming today is super annoying! As to the OT, I'm still extremely interested in gallium as well.

Thanks Sugarcookie! Yes, I should clarify, it's SSDI.

Ugh, just got my letter that my disability case is being reviewed. When I was initially approved four years ago my paperwork stated that I would be reviewed in 3 years. So this is a standard review but it still makes me nervous. Just a quick question, but I may have more as I start filling...

You're welcome Bill! Glad I could help! :) Take care, Autumn

Hope, Sorry no one that has gone through this has responded. The few who have gone through it have probably missed your post. The user I told you about who used IVF/PGD and was happy to share her experience user name is mneville. I would suggest PMing her on here. Sometimes people miss...

Hi Hope, Sorry, I don't have any experience in this area. I know of one member though who used IVF/PGD for her second child. Her name is Megan and I think she's more than happy to share her experience. She hasn't posted anything in a while it doesn't look like, so hopefully she is still...

Hi Ralika, I'm SO sorry to hear your docs won't let you go home without mucomyst. However, I think they may have no choice. Right now it doesn't look like we may be able to get any anytime soon. I've been continuously checking the FDA's website and currently 2 out of the 3 manufacturers are...

That's awesome, thanks a bunch Steph!! Autumn 32 w/cf

Yay, glad Hill Rom is taking care of you! Also glad she could use your machine in the meantime. :) Hope the clean up is going ok!! Take care, Autumn

I'm with Bigstar, my wedding ring is gold and I've never had a problem with it. I've worn it for almost 7 years now with no tarnishing etc. Congrats on the upcoming engagement! Very exciting! :) Autumn 32 w/cf