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For me Tobi causes severe bronchospasms/shortness of breath. So my guess would be her airways are reacting a little to the Tobi, causing the lower 02. I think a lot of people have mild problems (reactive airways)with Tobi, but the benefits outweigh the negatives. For me it got so bad that I...

I'm so sorry to hear you had a fire! :( I really thought Hill rom had a 24 hour customer service number but I must be crazy. That's really stinky that you have to wait until Monday now. I guess I would agree w/Love and say to do manual CPT til Monday. Sorry I don't have any better advice...

Wow Pat, how scary!! I'm so glad you are on the mend and thankful for the excellent care that you received! It's always so scary to go to a different hospital, so it's awesome to hear you had a good experience with them. How cool about the flight there and them letting you wear a headset. At...

BLAH Eliana! I'm having the same problem and it's SOOO frustrating!!! Ugh. Walgreens stopped being able to get it for me months ago (maybe almost a year?). Then I was able to find it at my hospital pharmacy. They supplied me for a few months and now they can no longer get it either. I was...

Hey everyone, I've recently had an exacerbation and am not bouncing back like I normally do. I am going to try to really step-up the exercise in hopes to gain the lung function back. The problem is that I have an old foot injury that really acts up after using the treadmill (walk/light jog)...

Thanks, and a belated right back atcha!! Autumn

I'm sorry, I'm not in California so I can't help you at all on the GHPP. I really just wanted to say welcome to the forum! I hope you get some replies. I have seen posts on here in the past of people in Cali having a really tough time with the GHPP program, quite similar to what you are...

I have the NUK sterilizer and I put all the parts of the Altera handset into it. Never had a prob with melting.

You're welcome! So glad you're feeling better about it. Insurance stuff is SO stressful. I literally lost sleep over it last year when we made the switch. I was just so worried and stressed but it all turned out for the best! Once again, Doglover is correct! :) I'm not sure why insurance...

I was typing at the same time Doglover responded. I second everything he/she said. Good info. One point that I forgot to mention was the considerably lower premiums. That helps a lot too!

Hi Lindsey! I have been on a High Deductible plan w/HSA for a year now. Your thinking is exactly right! You will save a lot due to the fact that prescriptions apply to the deductible and out-of-pocket max, so once you've met that you won't pay a dime for prescriptions (or medical)! It is so...

Hi Node, sorry you are having to stress over health insurance and student loans! Ugh. I can definitely relate! Like Martha, I worked for our local public school system for many years. I was part-time (for a while I was only working 3-4 hours day) but got full benefits. The benefits were...

It's me again! I just noticed this is posted in the Global Healthcare category. I would suggest you repost this in the CFTR Modulation section and/or the Adults section. Those sections get a lot more traffic and you'd have a better chance of getting more replies. Autumn

Hi and welcome hurry up vertex!! I feel the exact same way! There is a member on here who took her case to the state appeals level and won. Her name is Martha and her user name is lifeisgood729. She has a residual function mutation, not G551D. I know you said you were looking for others who...

Hey everyone, me AGAIN! I'm still sitting here on the fence about the Denver study. I wanted to run a couple things by the experts on here. So, first question I have is that if someone participates in a phase 2 trial does that automatically exclude them from participating in a phase 3? Just...

Lol Carrie, I'm cheap too! I know Bed Bath and Beyond carries them and I always have those 20% off coupons. If you have a BB & B around you could check it out. :)

Hi Sarah, I'm so sorry you are having to go through this! Insurance issues are SO stressful. I don't think I can be of much help but I will mention my scenario just in case it helps at all. I have a 15% (nowhere near 50%)copay after our deductible is met. However, we have a $3,300...

This. Nope, your teenagers are not lying to you. ;) To be honest, I laughed when I first saw the commercials and thought they looked absolutely ridiculous. Now my mom has a pair and they honestly look like a nice, dark wash jean. I have yet to try them myself, but I do know my mom has worn...

Wow, that is great news!! So happy for those that this will effect! autumn 32 w/CF

This. SUCH a loaded question. It's definitely okay to feel overwhelmed at times. For me, the worst was after we were married and as the years passed the question "when are you guys gonna have a baby?" or said "oh, now it's your turn!" after someone else was pregnant or had a baby...