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    newly diagnosed

    Hi Rebecca,My email is address dea_mason2002@yahoo.com. Feel free to add me to your friend list and we can chat since we are both on yahoo!Dea
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    Vitamin A Deficiency

    Unfortunately, thats a bad thing about CF...the fat soluble vitamins not being absorbed. I have a deficiency in Vitamin, A,D, and E. And when theres a high deficiency is hard to get what you need by just getting them out of the foods you eat. I have always ate healthy and still have the...
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    Vitamin A Deficiency

    Unfortunately, thats a bad thing about CF...the fat soluble vitamins not being absorbed. I have a deficiency in Vitamin, A,D, and E. And when theres a high deficiency is hard to get what you need by just getting them out of the foods you eat. I have always ate healthy and still have the...
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    cheap genomic testing?

    Have you ever been tested to see if you have CF? A sweat test is definitely the easiest and least expensive way. It is also pretty accurate if you have it done at a CF center. How old are you and what kind of symptoms do you have that makes you wonder whether or not you have CF....just...
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    cheap genomic testing?

    Have you ever been tested to see if you have CF? A sweat test is definitely the easiest and least expensive way. It is also pretty accurate if you have it done at a CF center. How old are you and what kind of symptoms do you have that makes you wonder whether or not you have CF....just...
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    newly diagnosed

    Hi Rebecca,Wow...32 and just diagnosed...is amazing to me. I will be 30 on Sunday...and was diagnosed at just a few months old. I agree with the other post if you have just been diagnosed means your overall health is fairly good.....which is a good thing. I can imagine the shock because...
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    Cystic Fibrosis Hang Out

    I am a 30 yr old female with CF. I started kindergarten at age 5 just like everyone else my age. I am glad my mom didn't keep me from going to school....this is just my opinion...but I believe school is great. It's great social interaction for kids...and your little girl will get exercise...
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    Need help finding ANSWERS!

    Hi Hannah,My name is Dea....I'm quite a bit older than you....I'm 30, but I also have CF and diabetes. Unfortunately, is becoming pretty common. I have had the diabetes now for almost 5 years. I know is a big blow to find out...but I promise it does get easier! You should talk to your...
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    Mutations

    Hi Mary,I am almost 30...this month...I am a female with CF. I also have 2 copies of the delta F508. My fev usually stays in the 80% range. Lately its a little lower as I'm just getting over a small infection. I know for at least the last 10 yrs my fev's have stayed in this range. I guess I...
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    To have a lung tx or not?

    Hi Joanne,I am so glad for you that your transplant has been a successful one! I am an almost 30 yr old female with CF (my birthday is the 27th of this month). Right now, my lung function is good. It tends to stay around 80%. Little less right now as I'm just getting over a small infection...
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    Vest Available

    Hi Jeremy,I replied to this post on the adults board...please read! Thank You!Dea
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    Vest Available

    Hi Jeremy,My name is Dea...I am 30 with CF, but I have a friend who lives in the UK. She is 23 with CF..she is on disability and lives on her own...so she cannot afford to buy one. They are not available in the UK. Her docs tell her that she needs something more than just chest percussion...
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    Leg Pain

    Wow...thats really strange about being a side effect of Cipro. I know mine is not Cipro related because when I was about 10 was when my pain started happening...I didnt even start taking Cipro until I was an adult...actually dont think it was around when I was 10...that was 20 yrs ago...
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    Leg Pain

    Hi Lois,I am a 30 yr old female with CF. When I was about 10 I started having problems with my legs just like you are describing. For a while it got better...and now again as I get older is getting worse. My docs have linked it to some type of arthritis that is related to the CF. They dont...
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    CF "Pen Pal"

    Hi Katrina,I am a 29 yr old mom with CF. I have a 5 yr old daughter myself. It sounds like you are doing a wonderful job with reassuring Sean about CF. He is still so young, but has many years ahead of him. Think positively about the future....you have to. My lung problems and digestive...
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    lung transplant

    Hi Liza,Just thought I would help out the question about the lung transplant. From what I understand (I have discussed it with my docs) the new lungs DO NOT have the CF, because they know how to transport the salt correctly...so the mucous doesnt bother them. The problems of lung transplants...
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    Glutathione

    The only thing that bothers me about glutathione is that there has not been enough testing with it and it has not been approved by the FDA. I know I've heard such good things about it so far! Good luck to all of you who are currently using it and hope to myself one day soon!Dea
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    Pregnancy

    I know this sounds strange and you've heard it before, but from my experience it worked! Dont try so hard....I tried to get pregnant for about 2 yrs and then finally decided that it was not meant to be.....I got pregnant! But they do say that the stress of trying to get pregnant can make your...
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    CF ARTICLE IN GLAMOUR MAGAZINE

    Hi everyone...I read the article in the magazine...I thought it was very sad, but very real for everyone with CF. I say if this helps people to realize how terrible of a disease this can be....publish it! Dea
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    TO SEAN

    Sean,Im just curious.....do you have CF? If so, what kind of complications do you have from it? Do you realize that a baby born today with CF can live a long and normal life. Even see a cure in its lifetime! I feel sorry for you in that you have such negative feelings. I am a 29 yr old...
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