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Hey Annie..Dont let stats get you down. Everyone with this disease is so different. I also know several CFers who are older than me. I am a 30 yr old female with it...as well as CF related diabetes...and other probs also related. You just have to be stronger than the disease. There is also...

This is a subject that I believe needs more research....I have 2 copies of the delta F508 mutations....so of course...my mom carries 1 copy as well as my dad. My mom has never had any problems of any "CF like symptoms". However....my dad has had chronic sinus problems for as long as I can...

I agree that pulmo works for many CFers....but just like any medicine.....the same meds dont work for everyone and they have different affects on everyone. Pulmo makes my breathing more difficult....and I wheeze more...and it doesnt help me to cough mucous up. So I also no longer use it...

By the way Im 30 now...so I've had it for about 20 years!Dea

I also have CF related arthritis....I have had it since I was about 10....it is now an extreme pain when I have a flare up....ibuprofen and regular meds...dont even touch it. Mine is suca an extreme pain that I cant move at all! But when I was younger before it got too bad...ibuprofen...

Pills DO work...but only for certain people. I have had CF related diabetes now for over 5 years....I was on insulin for about 6 mos after diagnosis...then switched to the pills. And I have great control ...my last A1C was a 5.6%. My average blood sugars are between 100 and 130. But I...

Just wanted to say I am also on the dep proveral shot and have been since the birth of my daughter almost 6 yrs ago...I love it. I dont have to worry about another form of protection while on antibiotics...which can be a big thing with cfers. I have done well on it and have had no side...

To All women with CF...who are pregnant or trying to have a baby.Just wanted to give u a brief summary of my story. I am now 30 with CF...and have a 5 yr old daughter (NO CF.....of course shes a carrier) My husband and I had a hard time trying to conceive also....2 yrs. I had decided that I...

Did your CF doc tell you not to exceed 3000 calories? If so...I'm amazed. I also have diabetes...and my CF doc says I should be taking in at LEAST 3500 calories...because I'm also small. My diabetes doc....has never said anything to restrict my diet at all.Dea

Unfortunately....there is no way to prevent or delay diabetes.....it is just the way the pancreas is affected. With some....it may never happen....I am 30 and was diagnosed with it little over 5 yrs ago. You just have to take what u are given and deal with it the best you can. Keep thinking...

To whomever wrote that last post.....that was beautifully written....I like the way you said "these are very special children that have chosen us". I was one of those children with CF. I am now 30 and have my own family. I agree that you dont want your child to be sick....being I have one of...

I am one of those ppl with CF and arthritis...but the rash is totally different than what is described here. These little red bumps do not itch...they hurt...they are red and they are very hot...and they raise above the skin .....and there is fever and pain involved. Its not like an alllergic...

Hi,I'm a 30 yr old female with CF. I have known all my life that I have had it....I would be glad to happy any questions you might have. I'm at dea_mason2002@yahoo.com or deamason@msn.com

I agree about not wanting to eat while in the hospital. Lets face it the food is absolutely awful! I am a 30 yr old female with CF. I was in the hospital during the first week of November ...and only for 4 days. I lost 10 pounds while there...and I couldnt afford to lose any. I'm 5'3 and...

Hmmm....Are you a CF carrier?

Karen,I am a 30 yr old female with CF. When pulmozyme first came out on the market...my doc put me on it right away. My lungs got worse when I was on it. I had more difficuty breathing...I was wheezing alot...and fevs did not improve with it. I also have found that I do better without the...

Hi Ang, I am a 30 yr old female with CF....and I have 2 copies of the delta F508. I also am on enzymes...and will be for the rest of my life. I have been on them ever since I was just a few weeks old....when I was diagnosed. As far as Zithromax goes....everyone is different....but it didnt do...

I am 30 yr old female. I also have a double delta F508. My lungs are doing ok now...however that was how I was diagnosed. When I was born my lung probs were pretty severe. I almost didnt make it and had my lungs collapse several times as an infant. My digestive probs were mild at that time...

Congrats Franky!Thats great that your wife is expecting! I have a CF male friend who also has a child...I'm not sure what his mutations are...I'll have to ask him sometime...but I know he and his wife also had their child naturally. Good luck to you and your wife!Dea

That is an interesting site...wish I could understand more of it. With all the medical terms...is kind of hard. I have 2 copies of the delta F508 and know that others with the same mutations are definitely affected differently. Even when it comes to my brother and me....he is 23 with CF...I...