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    ANYONE ELSE PREGNANT WITH A BABY THAT HAS CF?

    Hi Blythe,I have a child who is thankfully CF free...as I am the one with CF. I am 30 yrs old and became pregnant when I was 24. It was a very nervous time for me...because we did not have my husband tested to see if he was a carrier....so everyday I wondered if I would have a child with CF...
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    17 yr old female w/ CF needs to talk to other teens!

    Hi Stephanie,I think what your dad did was great! I never got the opportunity to go to a camp as a kid...I wish I could have. I definitely dont believe a child is wasting their life by going to a camp...there are so many great things to learn...not to mention meeting great friends! Anyway...
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    Where are we all from?

    I live in southern Illinois. I am 30 with CF and CFRD among other complications. I also have 2 copies of the delta F508. I also have a brother with CF who is 23 and the same mutations. Our fev1 our very similar....mine is at 71%, while his is at 75%....but this is because he hasnt taken care...
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    trying to do it all

    My fev1 is at 71%. I havent tried vioxx, but have been on celebrex which is a similar med. The celebrex did help for about 2 yrs....but no longer.Dea
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    CF related Arthritis

    Hi Michelle,I'm Dea...and 30 yrs old. I also have CF related arthritis...and have had it since I was about 9. Mine comes and goes also...and without prednisone I get NO relief. Mine gets soooo bad I cannot move at all. It is very very painful. I have started seeing a rheumatologist...and the...
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    What Mutations do you have?

    I have 2 copies of the delta F508 Dea
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    trying to do it all

    Hi Jessica,I am 30 with CF. I have been married for almost 8 yrs and have a beatiful daughter who is 6 (CF free). I also work full time in an office. I am kind of in the same situation right now as you seem to be. My energy level is just shot. I feel like I am dverdoing it at times. By the...
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    pregnancy and FEV1

    I am going to have to agree with the last person on this one. I have CF..and am a mother. It was one of the hardest choices that I have ever made in my life....because I also felt that someday I would leave her motherless. I love my daughter with everything I am....and would not change it for...
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    Pregnant and need advice/suggestions

    First of all...congratulations! It is good that you are usually healthy. I was 24..almost 25 when I gave birth to my daughter...6 yrs ago this month. I was also healthy most of the time. I also became a gestational diabetic towards the end of my pregnancy...so I was induced 3 weeks early...
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    Home IVs

    It is soooo nice to be able to come home on ivs. I am now 30 and when I was in kindergarten I remember having to go in the hospital and spend 3-4 weeks at a time. I missed so much school....and missed my friends. I think this is something that you will need to decide. Health wise...I dont...
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    how much do you know

    I think the main thing is to ask, ask, ask. When you see the doc dont let him/her give you vague answers...tell them you want to know all the specifics. My doctor is very good about telling me anything I want to know.....and explains it to me if I dont understand. I also receive CF...
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    liver enzymes

    My liver enzyme levels were high a couple years ago too. They did an ultrasound on me to see what was going on. They told me that my liver had some fat build up on it and that was causing the high levels. For now they are just keeping an eye on it ...to make sure the levels dont get higher...
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    Time Waster

    Hi Kayla,I'm 30....and my mom still tries to tell me what to do! It s a parent thing......they want you to be safe...and healthy! I saw that you are from Carlinville, IL. I live north of you about 2 hrs....near Salem. I wanted to let you know of a great strides walk coming up in Mt. Vernon...
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    Prednisone

    I understand that completely!Dea
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    Prednisone

    For about 3 years I took about 10 mg of prednisone on a daily basis.and certain days took up to 30mg..even at that amount ...the docs didnt like it. Prednisone can have some very harmful long term effects. I know it can affect the kidneys...and other organs. It is a hard thing to have to cope...
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    Pregnant?

    How far along in the pregnancy are you?
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    Comments on Real World cast memeber.

    None of us know Frankie personally, so we have no idea...why she does what she does. I have to say that yes it does aggravate me. But this relates to my brother....I am 30 w/CF...he is 23 w/CF. He also smokes and really does not take care of himself. His reasoning.....I'm doing fine...it's...
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    Pregnant Carrier

    Hi Bop,The only thing that I can say is that what I have heard about the more rare mutations.....is people can show symptoms later in life. If I were you...I would definitely ask for a sweat test....just to see. But also, as you know...your body changes so much during a pregnancy and each one...
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    Swallowing Pills

    I was in kindergarten when I learned how to swallow enzymes....I dont think it is a huge issue....just be patient.Dea
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    Lost in tranlation

    Hi,I'm 30 with CF....born in 1973 the life was expectancy wasnt even in the teens. I was diagnosed just few weeks after birth, so have known all my life. I want to say that a child born today...has a chance at a wonderful and long life. I am still doing well...I have 2 copies of the delta...
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