Search results

  1. D

    ADVICE NEEDED

    Hi Donna, I just wanted to tell you that the Children's Hospital in St.Louis is an accredited CF clinic. It is one of the best actually. I grew up at Childrens...they have wonderful doctors. If you have any questions...there is a pediatrician there who specializes in CF...her name is Pam...
  2. D

    PARENT WITH CF

    Hi there, I am 31, have CF and CFRD and also have a 6 yr old daughter. It definitely is harder to take of one's self when there is a child. I also have a wonderful husband when it comes to our daughter. When I'm not feeling well...he takes care of her. When I've been in the hospital, he...
  3. D

    CF and adoption

    Just from my own personal opinion...I do not believe it is legal. But...I do know a CF man and his wife who have adopted 2 children from another country...so it is possible! Good luck! Dea
  4. D

    Women only question

    I am on the depo-provera shot...and have been on it now for almost 6 yrs. I love it! I dont have to worry about antibiotics interfering with its effectiveness. When I was on the pill I always had to use another form of contraception when on antibiotics. Also, my mom has had breast cancer...
  5. D

    MRSA and Tiredness

    I think that any type of infection...know matter what the bug...zaps us of our energy. Our bodies are using energy to try to fight it off....so it makes us tired. Just get lots of rest...it will take time. Take Care!Dea
  6. D

    Pssing of my husband

    Melissa,I am so sorry to hear about the passing of your husband...I know nothing we say can make it better. I know he is no pain and is breathing freely....but it doesnt help the loss that you feel. You are such a great person to have been through all you did with your husband. I know it can...
  7. D

    CFRD

    A person with CF becomes diabetic when the pancreas (usually already affected) quits producing insulin as it should. It just depends on the severity of the disease on the pancreas. Medicines do increase blood sugars....but if your pancreas works correctly...it regulates it without any...
  8. D

    2 yr. old nephew to be tested for CF

    Just wanted to say that I too hope that your nephew comes up with a negative diagnosis of CF....but if he does, he is lucky to be born it todays society where so much research and new meds are coming about every day. I wanted to give you some hope as well...I am 30..will be 31 in July and doing...
  9. D

    Confusion about Sinuses

    Unfortunately sinus problems are very common with CFers. The severity varies from person to person...as with the lungs. Chronic means that it persists and/or progresses over a long period of time. In CF...they usually label it as chronic sinusitis. Have a question for you though...has your...
  10. D

    enzyme survey

    I take 2-3 Ultrase MT 18s w/meals and weigh about 95 lbs.Dea30 w/CF
  11. D

    IS THIS CF RELATED?

    Low potassium levels can also cause leg cramps. Bananas are high in potassium. I would make sure you let your Dr. know...Dea
  12. D

    ? about cf

    Melissa,I'm sorry you are having a hard time with yours son's doc...I know it can be aggravating. I know a woman who is the youngest of 11......and she is the ONLY one with CF. The chances of having CF are 1 in 4 with EACH pregnancy...if you AND your husband are carriers. Both parents MUST be...
  13. D

    what can help me conceive?

    Yocelyn,Coming from a CFer who is also a mother......if you are younger than 18....you should not consider pregnancy at this point. It is a big responsibility to take care of yourself and a child. I am 30...and had my daughter at 24. If you are healthy ....you should wait. I was healthy...
  14. D

    good and bad barriers

    Hi,I'm 30 with CF...31 in July. I have been married now for 8 yrs...and have a beautiful daughter who is 6. I want to say dont let anything get in the way of doing what you want to do. I have been overall healthy...for a CFer....even being diagnosed just a few weeks after birth. Sure it...
  15. D

    PREGNANCY

    Well, I guess mine didnt get extremely high. I just really cut down alot of the unnecessary foods...such as sodas, candies, etc. I ate more fruits when I felt the need for something sweet. I am a pretty healthy eater anyway...so I guess that helped. Maybe try to lower some of your carb...
  16. D

    PREGNANCY

    Hi Chris,Dont think we know each other...where at in Illinois do you live? I'm in southern Illinois....and go to Barnes in St.Louis for CF clinic.Dea
  17. D

    PREGNANCY

    Hi there,I'm 30 with CF...and have a beautiful 6 yr old daughter. Most women with CF are able to conceive...as you said the mucous is thicker and makes it harder, but it is possible. It took me almost 2 yrs to conceive. I was in pretty good health when I became pregnant. My lung function was...
  18. D

    cf and infertility in men

    Just a positive note here....I know several people with CF who have adopted! It is not impossible...and legally they cannot discriminate. Most men with CF actually do not develop a vas deferens....not sure if that is spelled correctly. You can do some research on the internet....for the...
  19. D

    Lots of questions, lots of fear

    Hi Jeff,I'm Dea...I am 30 with CF and live in Illinois. Congratulations first of all on the upcoming birth of your new baby! I was diagnosed with CF at 6 weeks of age and have 2 copies of the Delta F508. I want to say that by asking these questions you are not overstepping any bounds by any...
  20. D

    Good News

    Hey Jake,When I get light headed my sugar levels are usually low...meaning under 75 for me. My sugars range from 85-100 after I wake up in the morning to about 150 throughout the day. If your sugars get close to 200...I would be concerned. I dont know when you check them...but the best time...
Top