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I have to agree....dont be embarassed about it. We need to talk about it more to make more people aware of this disease. Being that it affects about 30,000 of the population..it is not as widely known as other diseases. I wear my CF awareness pin everyday....just so someone might ask...and I...

I have to agree....dont be embarassed about it. We need to talk about it more to make more people aware of this disease. Being that it affects about 30,000 of the population..it is not as widely known as other diseases. I wear my CF awareness pin everyday....just so someone might ask...and I...

Not everyone takes enzymes...but if they take enzymes...more than likely they need A,D, E, K as well. It depends on how bad the pancreas is affected. When the pancreas isnt working correctly...the body does not absorb the fats that it needs. Vitamins A, D, E, K....are fat soluble vitamins so...

Alcohol does not lower the blood sugar...its full of carbohydrates...so it actually increases blood sugar.... Dea

I too will be voting for Kerry...I want a cure to be found for this disease! Dea 31 w/CF and CFRD

Well... I just found out yesterday that my CF clinic is NOT receiving any shots...and I live in a small community where no flu shots are being sent. By the way...I go to the CF Clinic at Washington University in St.Louis at Barnes Jewish North...Its a pretty good size clinic...I cant believe...

Hi Again, Would it help if you got a written note from your doctor stating that your son needs the flu shot...Is a shame they go by age and not by need. Yes...my docs office is first come first serve among the high risk...thank goodness! Thank you! Dea

I live in Illinois..and am definitely having the same prob. I just found out today that the clinics that were scheduled for this year...have all been cancelled due to the shortage. I have called local hospitals..and they are either out or only giving them to employees. My doctor s office is...

I'm 5'3 and (3/4 <img src="i/expressions/face-icon-small-happy.gif" border="0">) and am tipping the scales at 99 right now. Dea 31 w/CF

Yes...antibiotics affect birth control pills...definitely use another form while on antibiotics. Have you thought about the depo-provera injection. I have been on it now for 6 yrs and love it! It is not affected by any antibiotics! Dea

Hi Wendy, I'm so sorry that you have lost a sis and friends to CF...it makes me so sad. I also have a brother (24) with CF and a sis (29) without. Everyday I wish I could take it away from my brother because when I see him not doing well...it scares me to death. It has just been over the last...

I had my daughter when I was 24. I talked to my doctor extensively before my hubby and I even started trying. I was in pretty good health...so I got the OK. My fevs were at about 75% and actually increased during my pregnancy! I started having trouble with my blood sugars toward the last...

I am 31 with CF. I am very small in size...5'3 and weigh about 95 lbs (on a good day). In high school I was even smaller. I was 16 when I started my period (I was a junior). The docs told me that it has to do alot with size. The CF docs told me that it is common for CF girls to mature later...

It has to do with the bacteria that live in hot tubs. If not properly cleaned....bacteria thrive in hot and moist areas..therefore..they thrive in hot tubs. I believe...only my opinion...that if it is a personal hot tub...it is ok. I also LOVE hot tubs...I have CF related arthritis...so they...

Donna, I sent you an email for Dr. Pam Schuler's number...I hope everything goes well! Good Luck..and keep us posted! Dea

I just wanted to throw my thought in here...I'm 31 and have always been 2 hrs away from my CF clinic..even as a child. I go to St.Louis...and it is the nearest one to me. But....I also believe that it is a very good clinic and I am being well taken care of. I would drive longer if I had...

I take 1000 mg of glucophage in the a.m. along with 2.5 mg of glucotrol and 500 mg of glucophage in the p.m. Have been on the same dose for over 5 yrs! Its working well...my last A1C was 6.2 Dea

Hi Miesl, Just curious...does either of them have cystic fibrosis as well? I'm on so many medications as is..I have CF of course...CFRD, CF related arthritis, CF related thyroid problems and CF related sinusitis. <img src="i/expressions/face-icon-small-confused.gif" border="0"> So many probs...

Hi, My pfts are in the high 60s to low 70s range....they have remained the same for well over 5 yrs. They did not decrease during my pregnancy...in fact they increased! It was the healthiest that I have ever been...except for the blood sugars toward the end. I did not have diabetes before the...

I am 31...and have developed Raynaud's syndrome over the last few years. It gets a little worse each year. To be honest...theres nothing really the docs can do for it. But the symptoms you describe dont sound like Raynauds to me. I get cold much easier...and the tips of my fingers turn...