Search results

  1. D

    STAPH

    I have cultured staph all my life......except once....which was pseudomonas. I am 30 yrs old now. Luckily, it hasnt really caused to many problems for me. My docs use Cipro.Dea
  2. D

    Good News

    Hi Jake,I'm 30...and have had CFRD for 5 1/2 yrs now. My symptoms were fatigue, being abnormally thirsty (didnt matter what I drank, just could not quench the thirst), having to urinate more than normal, and weight loss. I had these symptoms for about 2 weeks before I went to the doctor. Do...
  3. D

    leg swelling and bruising

    I agree with the last post...although I have had it since I was 9, but dont think it usually affects people that early. Another thing that I have found out...is that it is more common in females. Dea
  4. D

    leg swelling and bruising

    Yea,Unfortunately they dont know much about CF related arthritis to this point. It hadnt been very common before....but seems to be getting that way. My flare ups having so frequently now...is unbearable without the use of prednisone. We are talking at least every 2 weeks ......I use to be...
  5. D

    What to eat to gain weight

    I am positive....Diabetes can not be caused by what we eat. It just depends on how badly the pancreas is affected. I'm sure you can look it up on the internet somewhere as well...and get specifics. Not everyone with CF will develop diabetes....meaning their pancreas is working better...than...
  6. D

    leg swelling and bruising

    Hi Christian,It sounds like CF related arthritis to me.....I am 30 and have had it since I was 9 yrs old. I dont get the red splotches...like I did when I was younger, but I still have the same pain from it...and is getting worse as I get older. I have started seeing a rheumatologist...and so...
  7. D

    Doea any of this sound familiar?

    I think that can be said for the majority of us....we dont look sick, but it doesnt mean we arent. That is a HUGE thing with people. Why do they think you have to "look" sick to be sick.Dea
  8. D

    Tobi Question

    I as well notice hoarseness wit TOBI...have even completely lost my voice before. Hopefully the coughing is the TOBI loosening the mucous! Good luck!Dea
  9. D

    What to eat to gain weight

    Actually,Just wanted to say....what you eat does NOT increase the risk of CF related diabetes. I made sure I asked the doctor about it. You get it when you pancreas doesnt produce the insulin like it should...and what you eat does not affect that. However, if you do get CF related diabetes...
  10. D

    Menstrual Cycle.. Do CFers start Late?

    Hi Alyssa,It is proven that CF girls mature later than other girls their age. I didnt start my period until I was 16.....I was a junior. Dont worry....it is very normal! By the way, I'm 30 with CFDea
  11. D

    CF chat rooms

    Sorry...did the link wronghttp://groups.msn.com/CysticFibrosis2chatTry that one! Let me know!Dea
  12. D

    CF chat rooms

    Hi Dave,I'm 30 with CF and a member of a CF chat. The link is www.groups.msn.com/CysticFibrosis2chat....I'm not trying to take away from this site...this site is great too....but the other has a chat room and lots of great people as well! You are welcome to join us!Dea
  13. D

    help with getting tested

    Hi Myshel,If the lung specialist doesnt want to do the testing....can he refer you to a CF clinic? You definitely want to go to a credited CF center to have him tested. If he wont, I would go to www.cff.org and go to CF centers and chapters and find the nearest CF center to you. I would do...
  14. D

    Cure for CF??? "The spice of life perhaps"

    To Amanda,I just wanted to say that it is not being naive of you at all! I think it is great that you can do all these things to help raise money for CF research. I also have hope for my future as well as everyone else out there with CF. I am now 30....and was diagnosed at about 6 weeks of...
  15. D

    your expert advice please!!!!

    Yes, I agree..Usually on a sweat test you can have the results on the same day. Also researchers have found so many mutations...some less severe that people dont show any symptoms until later in life. I was diagnosed at around 6 weeks of age....lots of probs when I was born. I also come from...
  16. D

    lung x question

    I agree that people shouldnt be put off of a list just because their fev1 is too high. I believe each individual is different...and docs of all people should know that by now. I thing going by numbers can be risky. Two people can have the same lung function and feel totally different. Just...
  17. D

    Cure for CF??? "The spice of life perhaps"

    I just want to say...that I dont believe anyone is trying to beat down this woman's hope....but as a 30 yr old female with CF myself...it is hard for us to put ourselves in a situation of "false hope" I guess one could say. Believe me...I hope that this does work....and I know everyone else...
  18. D

    discolored teeth

    Last time I checked...lasering was around $800...it doesnt take very long to do. Only thing...I cant remember how long it is supposed to last. They use laser lights to bleach the teeth. This is in the US too...Dea
  19. D

    Nasal irrigation for sinus problems

    I have just had my second sinus surgery...unfortunately I have to agree that the sinus surgeries don't help 100%, and in my case nor does sinus irrigation. The irrigations seems to help me right after surgeries...but after that...doesnt seem to help me much. The irrigations are not painful in...
  20. D

    Blood Clot - PICC Line - Now What

    To the one with blood clots in the picc lines.... I also had probs with my picc the last time. My doctor had me flushing with heparin after I would finish a med. Have u tried this yet? Heparin is used in helping to thin the blood...so it helped my picc line to stay clear. Good Luck!Dea
Top