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Really. I talked to Beth Sufian who is an attorney for CF patients and has helped a ton of people to get SSDI and SSI. She said if they did not get their act together it would affect the checks. And on the news Obama himself says so. I hope it is a scare tactic only... I guess we shall see....<br>

Really. I talked to Beth Sufian who is an attorney for CF patients and has helped a ton of people to get SSDI and SSI. She said if they did not get their act together it would affect the checks. And on the news Obama himself says so. I hope it is a scare tactic only... I guess we shall see....<br>

I do not have a link. All I did was google: emailing Obama. And that got me to the White House Website where I sent a letter to him. I also googled who was my congress rep and sent an email to him. I basically explained what CF was, how it affects me and then said I can not afford to have my...

I do not have a link. All I did was google: emailing Obama. And that got me to the White House Website where I sent a letter to him. I also googled who was my congress rep and sent an email to him. I basically explained what CF was, how it affects me and then said I can not afford to have my...

I do not have a link. All I did was google: emailing Obama. And that got me to the White House Website where I sent a letter to him. I also googled who was my congress rep and sent an email to him. I basically explained what CF was, how it affects me and then said I can not afford to have my...

So if the govt does not get their act together by the 24th we may not get our social security checks. I went to the White House website and you can email Obama. I also went to my states representative in congress's website and emailed that person too!  I emailed him about what CF is, how it...

So if the govt does not get their act together by the 24th we may not get our social security checks. I went to the White House website and you can email Obama. I also went to my states representative in congress's website and emailed that person too! I emailed him about what CF is, how it...

So if the govt does not get their act together by the 24th we may not get our social security checks. I went to the White House website and you can email Obama. I also went to my states representative in congress's website and emailed that person too! I emailed him about what CF is, how it...

That has happen to me and I am not sure why. With cayston they do send new nebs and metal heads so I just use the new ones. I am not sure why it leaks. But I have had that happen to me too. Try getting some new pieces and see if that works if you can.<br>

That has happen to me and I am not sure why. With cayston they do send new nebs and metal heads so I just use the new ones. I am not sure why it leaks. But I have had that happen to me too. Try getting some new pieces and see if that works if you can.<br>

That has happen to me and I am not sure why. With cayston they do send new nebs and metal heads so I just use the new ones. I am not sure why it leaks. But I have had that happen to me too. Try getting some new pieces and see if that works if you can.<br>

Have they done another sputum culture to make sure what drugs are showing sensitive to what you are growing? Also, my docs do not go past 2 weeks on a particular drug either. The idea is you do not want to get resistant. But what they could do is give you another drug that shows will work...

Have they done another sputum culture to make sure what drugs are showing sensitive to what you are growing? Also, my docs do not go past 2 weeks on a particular drug either. The idea is you do not want to get resistant. But what they could do is give you another drug that shows will work...

Have they done another sputum culture to make sure what drugs are showing sensitive to what you are growing? Also, my docs do not go past 2 weeks on a particular drug either. The idea is you do not want to get resistant. But what they could do is give you another drug that shows will work...

I have traveled in the us and outside. For drugs that need refrigeration I just put the ampules wrapped in tinfoil in a sandwich plastic baggies along with an icepack and it stays cold and easy to transport. I also carry a letter from doc about my cf and drugs I carry, yet I have NEVER had to...

I have traveled in the us and outside. For drugs that need refrigeration I just put the ampules wrapped in tinfoil in a sandwich plastic baggies along with an icepack and it stays cold and easy to transport. I also carry a letter from doc about my cf and drugs I carry, yet I have NEVER had to...

I have traveled in the us and outside. For drugs that need refrigeration I just put the ampules wrapped in tinfoil in a sandwich plastic baggies along with an icepack and it stays cold and easy to transport. I also carry a letter from doc about my cf and drugs I carry, yet I have NEVER had to...

Yeah you will get a 1099 cause they do not withhold the taxes. Although, I am not sure what they do or not do if you are getting money for a child too. But yours they will send you at the end of the year what your total money was paid and then you have to pay taxes on that....<br>

Yeah you will get a 1099 cause they do not withhold the taxes. Although, I am not sure what they do or not do if you are getting money for a child too. But yours they will send you at the end of the year what your total money was paid and then you have to pay taxes on that....<br>

Yeah you will get a 1099 cause they do not withhold the taxes. Although, I am not sure what they do or not do if you are getting money for a child too. But yours they will send you at the end of the year what your total money was paid and then you have to pay taxes on that....<br>