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So Grateful! 193 Participants. Closing at 200! And the 175th participant was from Germany. Hopefully, they received a 25 euro card from amazon.de! It was my first time trying... Thanks to all! I have so much of your good words and survey results to bring to Glasgow and beyond. I will share...

New Enzymes for CF https://azurrx.com/index.php/investors/press-releases/2018/117- Phase 2 study to begin! Help for patients with chronic pancreatitis! Salt and Light, Imogene

135~ Wow ! You are psyched! 50 people took the survey since Monday afternoon! The 100th participant is from PA and the 125th participant is from Wisconsin. Both received $25.00 Amazon Gift Cards. The 150th, 175th, and 200th will also receive Gift Cards. Let's keep it rolling If you haven't...

We have 85 participants! The 75th participants is from north central USA and received a $25.00 Gift Card! $25.00 for 100th and 125th participants. Keep this rolling as I am preparing for the conference in Scotland! Bringing your voices! Salt and Light, Jeanne

Thanks to everyone taking our survey: Blockchain and Clinical Trials! The 25th participant was from the Mid Atlantic states. They will receive a $25.00 Gift Card This is the topic of the Conference in Scotland! Jeanne Barnett will bring the survey results! You have lots of opportunities to...

https://pharmaphorum.com/news/patients-call-for-cf-drug-price-agreement-ahead-of-meeting/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=7374c4d6f5-EMAIL_CAMPAIGN_2018_03_14_COPY_02&utm_medium=email&utm_term=0_a54496134b-7374c4d6f5-431716241 Good Luck to the UK Patients/Caregivers! Salt...

I received this link from my minister at MarbleChurch.org...Reverend Gregory Johnson...he is a caregiver extroadinaire! Thanks Rev! https://www.caregiving.org/wp-content/uploads/2018/02/NAC-RareDiseaseReport_February-2018_WEB.pdf

Hi All! Know I will bring your words, the surveys! this is about Blockchain and Clinical Trials! https://blockchain.ieee.org/standards/clinicaltrialseurope18/speakers This is exciting. I will keep you updated. Salt and Light, Imogene

Vinny: Thanks for reaching out! I did send this link to CF Nurse Tamika Grubbs. She quickly sent me this link: https://www.facebook.com/groups/cysticfibrosisgroup/permalink/10154039003039082/ Checking it out, it is from 2016. Yet, there may be a real mom from Texas who can answer some of your...

Learn more about Blockchain easy 2 minute video from Consensys salt and light imogene

Happy birthday beautiful soul! Your journey is an amazing one and thank you for all your help with the news! Love the pics. Salt and light imogene

https://pharmaphorum.com/news/vertexs-orkambi-cf-drug-okayed-for-funding-in-australia/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082017%29&utm_campaign=c377ffe5c9-EMAIL_CAMPAIGN_2018_03_14_COPY_114&utm_medium=email&utm_term=0_a54496134b-c377ffe5c9-431716241

https://www.fiercebiotech.com/biotech/boehringer-lands-option-cystic-fibrosis-gene-therapy

https://pharmaphorum.com/news/us-regulators-expand-label-for-vertexs-kalydeco-cf-drug/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082017%29&utm_campaign=277d258e06-EMAIL_CAMPAIGN_2018_03_14_COPY_112&utm_medium=email&utm_term=0_a54496134b-277d258e06-431716241

Hi LittleLab! Thanks for posting this. We have been working hard behind the scenes. We are working on finding the right app to connect to Blockchain for our community. There are apps out there for diseases like Diabetes and Alzheimers but none comprehensive enough for our community! A kind...

Amber: These are amazing pictures! I am sure the art is helping you in the battle. I can feel your feelings through your art! May angels lift you up and carry you on...We need help here and love your work! Salt and Light, Imogene

Are you wondering.... How Can Blockchain Help Patients? Read what our new partner: Robert Chu has to say and STAY TUNED as our Health Opinion Leaders work with Embeema.com to create a Blockchain App for all where patients data is safe and patients get paid! Coming Soon within the next few...

Blockchain can lower our uncertainties. Listen to Bettina Warburg https://www.ted.com/talks/bettina_warburg_how_the_blockchain_will_radically_transform_the_economy/transcript See if you agree! The very thing that makes it work is our "Mutual Distrust" says Warburg! Collecting uncertainties...

This Survey Closed at 208 Participants! Thank YOU! We will be reporting on this survey. The 200th participant was sent a $50.00 gift card. This went to a Caregiver from Michigan! Stay tuned...Survey#4 will be on Spirometry. Salt and Light, Jeanne

Ali: I am not sure if this matters for you...I did receive this from Christine Noke of the Middle East CF foundation: "I missed that but if its saudi then he doesnt need any help, it has a very high level of care, more so than most of eastern europe and the middle east, they even offer lung...