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  1. G

    Airplane Travel

    I have always used one carry on just filled with meds, therapies, equipement etc. and according to the airline they are not suppose to count that as a carry on. So you should be fine. You can call the airline and explain and hear it from them if that makes you feel better. But I have travelled...
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    TOBI not working?

    Give it more time. I tend to feel yucko and junky the first 10 days of my Colistin month and then I feel great! I would try it for a whole month and then see how your off month goes and then try it again and then determine if you want to stop. Maybe try doing a PFT after your TOBI month and then...
  3. G

    TOBI not working?

    Give it more time. I tend to feel yucko and junky the first 10 days of my Colistin month and then I feel great! I would try it for a whole month and then see how your off month goes and then try it again and then determine if you want to stop. Maybe try doing a PFT after your TOBI month and then...
  4. G

    TOBI not working?

    Give it more time. I tend to feel yucko and junky the first 10 days of my Colistin month and then I feel great! I would try it for a whole month and then see how your off month goes and then try it again and then determine if you want to stop. Maybe try doing a PFT after your TOBI month and then...
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    Where/how can I get an eFlow?

    Try calling Foundation Care Pharmacy and see if they can help and/or work with you! They are great! 1-877-291-1122 Jennifer 38 with CF and CFRD
  6. G

    Where/how can I get an eFlow?

    Try calling Foundation Care Pharmacy and see if they can help and/or work with you! They are great! 1-877-291-1122 Jennifer 38 with CF and CFRD
  7. G

    Where/how can I get an eFlow?

    Try calling Foundation Care Pharmacy and see if they can help and/or work with you! They are great! 1-877-291-1122 <br /> <br /> <br />Jennifer 38 with CF and CFRD
  8. G

    Medicare and home IVs

    Yeah it sucks Medicare does not pick up homehealthcare but I still do it cause I can not STAND the hospital. However, I did luck out and I am not 100% sure how someone else can see if your homehealthcare company will do this but the one I used last time did not bill me for the balance that...
  9. G

    Medicare and home IVs

    Yeah it sucks Medicare does not pick up homehealthcare but I still do it cause I can not STAND the hospital. However, I did luck out and I am not 100% sure how someone else can see if your homehealthcare company will do this but the one I used last time did not bill me for the balance that...
  10. G

    Medicare and home IVs

    Yeah it sucks Medicare does not pick up homehealthcare but I still do it cause I can not STAND the hospital. However, I did luck out and I am not 100% sure how someone else can see if your homehealthcare company will do this but the one I used last time did not bill me for the balance that...
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    Offered Medicare as part of SSDI benefits - should I decline it?

    Well I too have Medicare with my SSDI. I was told to take it cause if I was ever in a position to need a transplant then it would be good to have the Medicare cause Medicare does not care what facility you go to for the transplant where your primary group insurance may care and IF you had to you...
  12. G

    Offered Medicare as part of SSDI benefits - should I decline it?

    Well I too have Medicare with my SSDI. I was told to take it cause if I was ever in a position to need a transplant then it would be good to have the Medicare cause Medicare does not care what facility you go to for the transplant where your primary group insurance may care and IF you had to you...
  13. G

    Offered Medicare as part of SSDI benefits - should I decline it?

    Well I too have Medicare with my SSDI. I was told to take it cause if I was ever in a position to need a transplant then it would be good to have the Medicare cause Medicare does not care what facility you go to for the transplant where your primary group insurance may care and IF you had to you...
  14. G

    Happy Birthday to me!

    Happy Belated Birthday and many many more healthy ones!!!! Jennifer 38 with CF and CFRD
  15. G

    Happy Birthday to me!

    Happy Belated Birthday and many many more healthy ones!!!! Jennifer 38 with CF and CFRD
  16. G

    Happy Birthday to me!

    Happy Belated Birthday and many many more healthy ones!!!! <br /> <br /> <br /> <br />Jennifer 38 with CF and CFRD
  17. G

    Annual health status required by employer

    This just can not be legal. Gotta be against HIPPA and American Disability Act!! I would not send such a letter, it is none of their business. I would get a lawyer involved! Employers are not allowed to ask about your health. Jennifer 38 with CF and CFRD
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    Annual health status required by employer

    This just can not be legal. Gotta be against HIPPA and American Disability Act!! I would not send such a letter, it is none of their business. I would get a lawyer involved! Employers are not allowed to ask about your health. Jennifer 38 with CF and CFRD
  19. G

    Annual health status required by employer

    This just can not be legal. Gotta be against HIPPA and American Disability Act!! I would not send such a letter, it is none of their business. I would get a lawyer involved! Employers are not allowed to ask about your health. <br /> <br />Jennifer 38 with CF and CFRD
  20. G

    keeping up with treatments

    It is so tough to keep doin all the treatments but I have never skipped much cause when I do I feel it and it is just not worth it. Routine is good advice. You really just have to plan for it and suck it up and do it cause the alternative is just too costly. The only thing I might skip on is the...
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