Search results

  1. G

    Which gene type are you?

    I am DDF508. It is the most common CF mutation. But there are so many others. I think it all depends on the person how they fair in life. Some people have the same mutations but have very different symptoms. Weird....
  2. G

    Which gene type are you?

    I am DDF508. It is the most common CF mutation. But there are so many others. I think it all depends on the person how they fair in life. Some people have the same mutations but have very different symptoms. Weird....
  3. G

    Which gene type are you?

    I am DDF508. It is the most common CF mutation. But there are so many others. I think it all depends on the person how they fair in life. Some people have the same mutations but have very different symptoms. Weird....
  4. G

    Coughing through the night, time for hospital?

    For me if I am coughing through the night that is a CLEAR indication it is time for Oral Cipro and if that does not work after 5 days and not improving then tune up time. I just went through that and I am finishing up 2 weeks of IV's. Go see doc, get a pft and tell them how you feel, maybe it is...
  5. G

    Coughing through the night, time for hospital?

    For me if I am coughing through the night that is a CLEAR indication it is time for Oral Cipro and if that does not work after 5 days and not improving then tune up time. I just went through that and I am finishing up 2 weeks of IV's. Go see doc, get a pft and tell them how you feel, maybe it is...
  6. G

    Coughing through the night, time for hospital?

    For me if I am coughing through the night that is a CLEAR indication it is time for Oral Cipro and if that does not work after 5 days and not improving then tune up time. I just went through that and I am finishing up 2 weeks of IV's. Go see doc, get a pft and tell them how you feel, maybe it is...
  7. G

    CFRD

    I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and...
  8. G

    CFRD

    I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and...
  9. G

    CFRD

    I was dx with CFRD in 2005 but still pretty mild only did 10 units of lantus at bed and around 3-5 units of novolog with meals. well since starting colistin and cayston I am not needing as much lantus only 7 units at bed and only 1-3 units of novolog with meals. NOt sure what the deal is and...
  10. G

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it I use the Pari LC Plus Nebulizers and also the Alterra and TRIO nebulizers and I put them in the Avent IQ steamer everyday and have no problems and have been doing it for probably almost 6 or more months now...
  11. G

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it I use the Pari LC Plus Nebulizers and also the Alterra and TRIO nebulizers and I put them in the Avent IQ steamer everyday and have no problems and have been doing it for probably almost 6 or more months now...
  12. G

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it I use the Pari LC Plus Nebulizers and also the Alterra and TRIO nebulizers and I put them in the Avent IQ steamer everyday and have no problems and have been doing it for probably almost 6 or more months now..... <br...
  13. G

    stomach acid in lungs

    So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want...
  14. G

    stomach acid in lungs

    So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want...
  15. G

    stomach acid in lungs

    So has anyone seen this in their sputum culture? My new doc is seeing stomach acid from acid reflux in his CF transplant patients and now is testing all CF'rs sputum for the stomach acid in the lungs. They are concerned because this acid causes it to kill the lung tissue and they do not want...
  16. G

    65_ RedRoses picked up by OPRAH WINFREY

    Awesome! If anyone can create awareness that is OPRAH! Awesome for the CF community and EVA was such a light! This is great news!!!!! Jennifer 38 with CF and CFRD
  17. G

    65_ RedRoses picked up by OPRAH WINFREY

    Awesome! If anyone can create awareness that is OPRAH! Awesome for the CF community and EVA was such a light! This is great news!!!!! Jennifer 38 with CF and CFRD
  18. G

    65_ RedRoses picked up by OPRAH WINFREY

    Awesome! If anyone can create awareness that is OPRAH! Awesome for the CF community and EVA was such a light! This is great news!!!!! <br /> <br />Jennifer 38 with CF and CFRD
  19. G

    Hyper-Sal????

    If you get your meds from Foundation Care Pharmacy which they will mail them to you they give HyperSal for Free. Try giving them a call and see what they can do for ya. 1-877-291-1122 Good luck! Jennifer 38 with CF and CFRD
  20. G

    Hyper-Sal????

    If you get your meds from Foundation Care Pharmacy which they will mail them to you they give HyperSal for Free. Try giving them a call and see what they can do for ya. 1-877-291-1122 Good luck! Jennifer 38 with CF and CFRD
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