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Would someone like Red Cross help hmw; don't they do Pulmozyme, Hypersal, and Tube feeds? They must need eletricity for that?

Does anyone know how they are managing to do treatments etc?

I am not sure what you are asking, but no my daughter had no side effects from Pancrecarb. However, she does have increase stomach issues with the other enzymes.

I am not sure what you are asking, but no my daughter had no side effects from Pancrecarb. However, she does have increase stomach issues with the other enzymes.

I am not sure what you are asking, but no my daughter had no side effects from Pancrecarb. However, she does have increase stomach issues with the other enzymes.

Funny how little things make you happy.  My daughter drinks G2 especially after gym or recess at school.  It always was terrible colors, looked like she was drinking anti-freeze.  I just saw at the supermarket, G2 with no artificial colors! yeah!  The teachers like it so much better cause if it...

Funny how little things make you happy. My daughter drinks G2 especially after gym or recess at school. It always was terrible colors, looked like she was drinking anti-freeze. I just saw at the supermarket, G2 with no artificial colors! yeah! The teachers like it so much better cause if it...

Funny how little things make you happy. My daughter drinks G2 especially after gym or recess at school. It always was terrible colors, looked like she was drinking anti-freeze. I just saw at the supermarket, G2 with no artificial colors! yeah! The teachers like it so much better cause if it...

Still no word on FDA approval on Pancrecarb enzyme.  It truly is the enzyme that works for my daughter.  I called Digestive Care Inc, and they still have not gotten approval.  It would be helpful for those who want this enzyme to make their voice heard.  I gave them my name and phone #; let them...

Still no word on FDA approval on Pancrecarb enzyme. It truly is the enzyme that works for my daughter. I called Digestive Care Inc, and they still have not gotten approval. It would be helpful for those who want this enzyme to make their voice heard. I gave them my name and phone #; let them...

Still no word on FDA approval on Pancrecarb enzyme. It truly is the enzyme that works for my daughter. I called Digestive Care Inc, and they still have not gotten approval. It would be helpful for those who want this enzyme to make their voice heard. I gave them my name and phone #; let them...

I love Green Day.  They are also my son's favorite band.  I love them even more now that they support the Cystic Fibrosis Foundation.  Wish I could have gone to this show they did to fundraise for CF.  Hopefully it'll copy...

I love Green Day. They are also my son's favorite band. I love them even more now that they support the Cystic Fibrosis Foundation. Wish I could have gone to this show they did to fundraise for CF. Hopefully it'll copy...

I love Green Day. They are also my son's favorite band. I love them even more now that they support the Cystic Fibrosis Foundation. Wish I could have gone to this show they did to fundraise for CF. Hopefully it'll copy...

Missa, What is the dosage of the sodium bicarb pills; how often do your boys take them? My daughter thrives on Pancreacarb as well; She's been feeling gassy lately on the Creon and our nutritionist suggested sodium bicarb as well; I will diiscuss it with her as well; next clinic appointment...

Missa, What is the dosage of the sodium bicarb pills; how often do your boys take them? My daughter thrives on Pancreacarb as well; She's been feeling gassy lately on the Creon and our nutritionist suggested sodium bicarb as well; I will diiscuss it with her as well; next clinic appointment...

Missa, <br /> <br />What is the dosage of the sodium bicarb pills; how often do your boys take them? My daughter thrives on Pancreacarb as well; She's been feeling gassy lately on the Creon and our nutritionist suggested sodium bicarb as well; I will diiscuss it with her as well; next clinic...

I think that is a strange answer your doc gave you. I guess it depends on which doc you speak to; but I know some CF docs like to use Pulmozyme as "preventative" to break up those strands of DNA to cough up. <br> <br>As far as time; I would say with a good compressor; Pulmozyme nebulizes really...

I think that is a strange answer your doc gave you. I guess it depends on which doc you speak to; but I know some CF docs like to use Pulmozyme as "preventative" to break up those strands of DNA to cough up. <br> <br>As far as time; I would say with a good compressor; Pulmozyme nebulizes really...

I think that is a strange answer your doc gave you. I guess it depends on which doc you speak to; but I know some CF docs like to use Pulmozyme as "preventative" to break up those strands of DNA to cough up. <br> <br>As far as time; I would say with a good compressor; Pulmozyme nebulizes really...