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Yes Andrea, Please check your email. I am happy to speak with you. Salt and Light, Jeanne

http://news.mit.edu/2015/stretchable-hydrogel-electronics-1207

We are getting ready to launch our new site...which the HOLs agree is wonderful! At cysticfibrosis.com we have been CF Awareness for 20 years from the patients up! Through our CFTechnology.org 501 C 3 we can give away technology and we are always about education! We have been approached from...

And I was trying to THINK of a Thanksgiving Message for all of you! You have been to me the embodiment of the Beatitudes to each other and to the world! You bring peace, comfort, discovery, justice, empathy and aboveallLOVE~ I am honored that my work can have a place in all your efforts. We...

We have been working hard behind the scenes creating our NEW WEBSITE! Every few years, we bring everything to new software. It is an amazing journey! 2016 is our 20th YEAR~ Here are some stats you may find surprising! Registered Users: 17,584 Forums: 28 Topics: 150, 231 Replies...

Happy Birthday WelshWitch! And thanks for being an awesome, generous 10 year member... Your positive presence is important. Look for our new site within the month. Lots new! Salt and light, Jeanne

Hi Lilro, Thanks for venting here! It is so true that for CFers the risk of infection in a simple hospital visit is very real and MRSA is big to contend with. You are not alone as this has happened to many of our members and they struggle. I listened to Mark Nepo at the Open Center last night...

Hi Amber: I am so glad you found this cost effective way to make beautiful pictures and to keep depression and anxiety at bay! You are always so helpful and creative! Little Lab suggested a new book to me that in a roundabout way discusses depression...based not on what automatically comes to...

https://www.ibm.com/smarterplanet/global/files/ca__en_us__healthcare__smarter_healthcare_transforming_case_digital_hospital.pdf

This is all so exciting DANK...thanks for taking the lead...I can't wait till our new website is ready and we can feature videos! Salt and Light, Jeanne

Amber: I LOVE your art!! and remember you are God's art supply! You have designed your life into something beautiful for us all to model after! Even your honesty in this blog is a gift! It is our "Duty of Delight" as Dorothy Day reminds us (I am reading her diaries). I am praying the new...

Welcome CFinTX...it was actually a GREAT question and one that has been asked many times and I imagine others are thinking. I don't always have the opportunity to express my personal goals and mission for this community and this was an opportunity that came just at the right time as the HOLs...

Hi my friends! As I was reading through the threads this morning (my initial activity for the last 20 years!) I came across CFinTX question and I thought this would be a good time to reply to his question about the Pertze email sent out so here goes: Great Question...

My time with Teri and her family was so special. Her daughter Emma is a doll....16 years old...home schooled and totally focused on her studies. The home schooling for Sarah wCF and Emma made a big difference and was brought on by all the time it takes to do do the CF treatments. Their dad is...

Love, you are so right..everyday we solve problems...i will send that thread to Pari. I already sent it to my friends at Healthcare at Home! Pari asked to partner with us...we'll see if they have what it takes to answer all our questions... Salt and Light, jeanne

This morning I will have breakfast with my friends from Healthcare at Home of the UK they are our sponsors to this amazing conference. Then at 10:30 I will meet 2005CFMom Teri! Our long time member and Supermoderator. I am so honored. Tonight is the Blue tie Gala...I will be at the Healthcare at...

I have also met many interesting professionals. One of them is Mary Dixon Drake whose company www.Innovenn.com is based in Wisconsin. So i did not miss the opportunity to send her our thread: http://forum.cysticfibrosis.com/threads/149228-So-confused-no-diagnosis-stop-looking Wonder if she will...

Meet Grace Wilsey. And hear oh so many times..."rare is not an excuse". Her dad Matt and her mom leave "no stone unturned" https://gracewilsey.org

This is James. There are only 46 children in the world so far diagnosed with AHC. Alternating hemiplegia o childhood. I had the honor of meeting his dad Jeffrey Thursday. It was a long journey to diagnosis but they are proud that they can now get on with a community and a cure. what is ACH...

Getting a diagnosis is a struggle we see evidence of every day...so many families come here and question us..... yesterday, i had lunch with catrina frost. Her daughter cailee 5 years old has a rare eye disease...they are preparing her to be blind. She may even lose her eyes...