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CFTechnology our 501 (C) (3) is looking to find out what our community wants and need most. Please take our survey (8-10 minutes). Let us know what you think! SURVEY Thank you, Salt and Light, Imogene

The University of Texas brings us this good news: http://www.infectioncontroltoday.com/news/2015/03/new-cystic-fibrosis-research-takes-aim-at-pseudomonas-aeruginosa.aspx

Hi Everyone, Ennio is back working to make sure we are up and running. We had a server problem...we ran out of space! Lucky for us, Ennio is helping with this. We will be on a new server in a short bit, hopefully without any more down time! I wish everyone in the United States a break from...

You may learn something about tax forms and CF from Lauren, Julie, and Victoria on our KNOWCF videos: http://www.cysticfibrosis.com/knowCF/details.cfm?articleID=7

Love Michael Graves for this!

http://cysticfibrosisnewstoday.com/2015/02/11/arkansas-medicaid-settles-lawsuit-kalydeco-cystic-fibrosis-drug/

Thank you for sharing Vincent's life with us! This is a beautiful tribute. It looks like there was time for joy and fun in his life. May you be surrounded with beautiful memories and evidence of things unseen. Salt and Light and Blessings, Imogene

Recent activity

http://www.pbs.org/newshour/bb/push-use-human-genome-make-medicine-precise/

Omg. I hope LOVE doesn't see these comments!! About her beloved Fords!!

http://www.house.gov/representatives/find/ http://www.senate.gov/pagelayout/general/one_item_and_teasers/file_not_found.htm Also, use the above links to write directly to your own congresspeople.

Today Peter and I are at church. Marble collegiate church, nyc Participating in our annual tri faith worship service. Excellent representatives of three faiths. Christian: rev Robert chase, (he has professed an interest in helping us get cf supplies to Pakistan) Rabbi Angela Buchdahl...

All: This is really an incredible study of empathy and how far we come everyday as a community...and how far we want to go! When this thread first came up, I was puzzled, wondering how this thread would play out and I thought...hmmm people are always so responsive and well- spoken. I think...

​http://mobile.nytimes.com/2015/01/08/health/from-a-pile-of-dirt-hope-for-a-powerful-new-antibiotic.html

On this the first day of 2015....we (the leadership team) at cysticfibrosis.com wish you and yours a happy and healthy new year! We are planning many new opportunities for our community this year! Salt and Light, Jeanne

Good luck in PT school too!

We wish you a beautiful holiday season! For us, it's Christmas with the family. You are our family and know we have many great new things planned for 2015 and you are always on our minds and hearts! Blessings, Jeanne and Peter Barnett

Prayer for Melissa on her 40th birthday! She remains as light for me! Salt and Light, Jeanne

Mel dancing at her 40th!

Today is Mel’s five year anniversary…a perfect day to install the new Remembering page which can be found on the main website http://www.cysticfibrosis.com/remembering/ ! (Thanks Chris Baldwin for doing this important work) Melissa joined cysticfibrosis.com in 1996. She was one of the first...