Search results

  1. N

    Thinking obsessively about cf

    Ok so we have another thing in common, we were both diagnosed at ages that made it even worse to accept it. I definatelly feel that 15 was a terrible time to be diagnosed with such an illness, i was also starting highschool, it was in September and as i found out that i had a shorter life...
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    Thinking obsessively about cf

    Hey everyone.. As the title says, i have always been obsessed with my illness, it seems like there isn't one day that goes by when i'm not thinking obsessively about it, i can't seem to make it go away, as a consequence of focusing so much on my breathes etc, i sometimes feel i can barely...
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    Thinking obsessively about cf

    Hey everyone.. As the title says, i have always been obsessed with my illness, it seems like there isn't one day that goes by when i'm not thinking obsessively about it, i can't seem to make it go away, as a consequence of focusing so much on my breathes etc, i sometimes feel i can barely...
  4. N

    Thinking obsessively about cf

    Hey everyone.. As the title says, i have always been obsessed with my illness, it seems like there isn't one day that goes by when i'm not thinking obsessively about it, i can't seem to make it go away, as a consequence of focusing so much on my breathes etc, i sometimes feel i can barely...
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    Which one of these is correct?

    Ok, which one of these is the most correct, i'm confused here: - When your lungs are badly affected, most likely your pancreatic situation will be better; or - The more affected your pancreas is, the better your lungs are. Meaning, is the amount of mucus that is distributed throughout the...
  6. N

    Which one of these is correct?

    Ok, which one of these is the most correct, i'm confused here: - When your lungs are badly affected, most likely your pancreatic situation will be better; or - The more affected your pancreas is, the better your lungs are. Meaning, is the amount of mucus that is distributed throughout the...
  7. N

    Which one of these is correct?

    Ok, which one of these is the most correct, i'm confused here: - When your lungs are badly affected, most likely your pancreatic situation will be better; or - The more affected your pancreas is, the better your lungs are. Meaning, is the amount of mucus that is distributed throughout the...
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    Who are you in a nut shell

    -
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    My mutations..

    nocode, how do you know you your pancreas is working completely? Have you recently had a fecal fat test? If you eat a low fat diet you could very well not experience belly aches and such. Being that you are thin is a huge sign things could maybe not be working. Where do you live? Its very rare...
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    My mutations..

    Hum..i had no idea what the story was with the mutations, sometimes i preffer to "stay in the dark" when it comes to knowing too much about cf, you know guys, every case is unique and we could feel very down by reading statistics etc.. Allie, thanks for you information, is there any way to...
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    My mutations..

    :) hello mutation sister. i actually don't have pancreatic insufficience(although i've always been quite thin) and my lungs have been relatively ok, i have only been hospitalized once when i was 17 , i was only diagnosed at age 15, but had had the symptoms since i was 9! so my health was very...
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    My mutations..

    My mutations are: N 1303K and R 334W... i just found out recently. Does anyone know what kind they are, ever heard of them? Common, not common? Thanks.
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    The older u get, the worse ur CF gets???

    Hi. I haven't felt worse throught the years, i have been feeling better than ever before to be honest. I'm only 23 but i know it could be getting worse, but it's not, at least so far. I know that our attitude towards the illness and the way we live life has a lot to do with it, i had a...
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    The older u get, the worse ur CF gets???

    Hi. I haven't felt worse throught the years, i have been feeling better than ever before to be honest. I'm only 23 but i know it could be getting worse, but it's not, at least so far. I know that our attitude towards the illness and the way we live life has a lot to do with it, i had a...
  15. N

    The older u get, the worse ur CF gets???

    Hi. I haven't felt worse throught the years, i have been feeling better than ever before to be honest. I'm only 23 but i know it could be getting worse, but it's not, at least so far. I know that our attitude towards the illness and the way we live life has a lot to do with it, i had a...
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    HELLO MY NAME IS:

    Vera 23 years old Portugal Cf Yoga and Reiki practitioner. I encourage everyone to try different kinds of medicine and/or treatments. It works <img src="i/expressions/face-icon-small-smile.gif" border="0"> And to keep an open mind and positive, as many times as possible. (Easier said than done...
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    HELLO MY NAME IS:

    Vera 23 years old Portugal Cf Yoga and Reiki practitioner. I encourage everyone to try different kinds of medicine and/or treatments. It works <img src="i/expressions/face-icon-small-smile.gif" border="0"> And to keep an open mind and positive, as many times as possible. (Easier said than done...
  18. N

    HELLO MY NAME IS:

    Vera 23 years old Portugal Cf Yoga and Reiki practitioner. I encourage everyone to try different kinds of medicine and/or treatments. It works <img src="i/expressions/face-icon-small-smile.gif" border="0"> And to keep an open mind and positive, as many times as possible. (Easier said than done...
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    Cystic Fibrosis in all languages

    Portuguese: Fibrose Quistica
  20. N

    Cystic Fibrosis in all languages

    Portuguese: Fibrose Quistica
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