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  1. N

    one day wout cf

    Interesting topic. I have thought about this so many times. I would run a lot anyway,for sure. I would run until i'd feel breathless.. (hum, in that case whats the point? eheh).. I dont know what else id do,its weird.
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    Dying...

    Risa, what is Bipap? How do you feel presently? Before you were found with respiratory failure, had you been feeling very bad the previous months,like you couldn't breath? Were you on oxygen? Sorry for the questions, reply only if you feel comfortable talking about it. Thanks.
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    Dying...

    Risa, what is Bipap? How do you feel presently? Before you were found with respiratory failure, had you been feeling very bad the previous months,like you couldn't breath? Were you on oxygen? Sorry for the questions, reply only if you feel comfortable talking about it. Thanks.
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    Eyes,hair and skin colour - cf related

    Melleemac, can you explain that a little bit better? The cf was kind of a defense against cholera?
  5. N

    Eyes,hair and skin colour - cf related

    Melleemac, can you explain that a little bit better? The cf was kind of a defense against cholera?
  6. N

    Dying...

    I might as well share something i read once, even though i dont like talking about this.. To answer one of your questions.. I read once on a website (i dont remember which one now) that cf patients have a peaceful death. I think the worst could be the way to get there , the final stages. I'm so...
  7. N

    Dying...

    I might as well share something i read once, even though i dont like talking about this.. To answer one of your questions.. I read once on a website (i dont remember which one now) that cf patients have a peaceful death. I think the worst could be the way to get there , the final stages. I'm so...
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    Dying...

    Hi Tara.. I think that the questions you're asking here have been asked by all of us,to ourselves. I think the idea of dying is always very present in our lives, even if just in the back of our heads.. So trust me, you're not alone. I think the process differs from person to person. I know of...
  9. N

    Dying...

    Hi Tara.. I think that the questions you're asking here have been asked by all of us,to ourselves. I think the idea of dying is always very present in our lives, even if just in the back of our heads.. So trust me, you're not alone. I think the process differs from person to person. I know of...
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    Feeling guilty for not doing much!

    Just to let you know that, somehow , since i started this post (only 4 days ago) i got so motivated to exercise that i bought a few stuff and have been using it at home, so ive been exercising at home for about 2 hours a day now! I guess that the fact that i posted that here already meant that i...
  11. N

    Feeling guilty for not doing much!

    Just to let you know that, somehow , since i started this post (only 4 days ago) i got so motivated to exercise that i bought a few stuff and have been using it at home, so ive been exercising at home for about 2 hours a day now! I guess that the fact that i posted that here already meant that i...
  12. N

    Yahoo

    My yahoo ID is seven_purplecats <img src="i/expressions/face-icon-small-wink.gif" border="0">
  13. N

    Yahoo

    My yahoo ID is seven_purplecats <img src="i/expressions/face-icon-small-wink.gif" border="0">
  14. N

    don,t want to be insensative but.....

    Hi Janet. This is ,indeed, a very delicate matter. I was only diagnosed when i was 15 and ,at that age, i wasnt told by anyone how serious my condition was, i dont blame anyone because my parents, themselves, were still learning what it was and it comes as a big shock to find out something like...
  15. N

    don,t want to be insensative but.....

    Hi Janet. This is ,indeed, a very delicate matter. I was only diagnosed when i was 15 and ,at that age, i wasnt told by anyone how serious my condition was, i dont blame anyone because my parents, themselves, were still learning what it was and it comes as a big shock to find out something like...
  16. N

    My baby has stopped eating - any ideas

    I'm sorry eli ,i really don't know what could help and anything i could say would be a guess really. I would advise you to talk to her doctor. Hope everything goes well for you and your daughter.
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    My baby has stopped eating - any ideas

    I'm sorry eli ,i really don't know what could help and anything i could say would be a guess really. I would advise you to talk to her doctor. Hope everything goes well for you and your daughter.
  18. N

    hi5 anybody?

    If any of you uses Hi5 dont hesitate to add me as a friend, look up the email veramolko@hotmail.com .. thanks
  19. N

    hi5 anybody?

    If any of you uses Hi5 dont hesitate to add me as a friend, look up the email veramolko@hotmail.com .. thanks
  20. N

    hi5 anybody?

    If any of you uses Hi5 dont hesitate to add me as a friend, look up the email veramolko@hotmail.com .. thanks
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