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Our insurance co. paid for my daughter's vest 100%. She got her's when she has 2 1/2 years old. When we first got the VEST a couple times a year for the beginning; someone would call to find out how many hours were logged onto the vest but after that nada. <br /> <br />I would do a couple...

Mobilaire compressor question I was going to order a filter from the company I bought the machine from. The filter costs $10; then they said it's a special order from the company and shipping is $35!! She also said that the company who makes the Mobilaire 50PSI is not going to make it...

Mobilaire compressor question I was going to order a filter from the company I bought the machine from. The filter costs $10; then they said it's a special order from the company and shipping is $35!! She also said that the company who makes the Mobilaire 50PSI is not going to make it...

Mobilaire compressor question I was going to order a filter from the company I bought the machine from. The filter costs $10; then they said it's a special order from the company and shipping is $35!! She also said that the company who makes the Mobilaire 50PSI is not going to make it...

Just finished the book Sister.  Had alot of CF genetics as part of the storyline.  I found it VERY interesting.  The story is about a sister that dies while involved in a medical trial and her sister's quest at finding out the truth about her death.<div><br></div><div>Wondering if anyone read...

Just finished the book Sister. Had alot of CF genetics as part of the storyline. I found it VERY interesting. The story is about a sister that dies while involved in a medical trial and her sister's quest at finding out the truth about her death.<br>Wondering if anyone read it? If you haven't...

Just finished the book Sister. Had alot of CF genetics as part of the storyline. I found it VERY interesting. The story is about a sister that dies while involved in a medical trial and her sister's quest at finding out the truth about her death.<br>Wondering if anyone read it? If you haven't...

I have not yet changed/checked  the filter on my daughter's compressor, the Mobilaire.  How often do you change the filter.  the instructions say to wash it with soapy water and let air dry.  What do you all do and where the heck is the filter on the machine anyway?  TIA

I have not yet changed/checked the filter on my daughter's compressor, the Mobilaire. How often do you change the filter. the instructions say to wash it with soapy water and let air dry. What do you all do and where the heck is the filter on the machine anyway? TIA

I have not yet changed/checked the filter on my daughter's compressor, the Mobilaire. How often do you change the filter. the instructions say to wash it with soapy water and let air dry. What do you all do and where the heck is the filter on the machine anyway? TIA

Well, we got back yesterday from going pretty much across country, flew by plane to CA then drove in an RV for 9 days with hubby son and daughter with CF.  It was amazing!!!!!!  I feel so lucky we were able to do this vacation; I can't really express it in words; but you all understand.  We...

Well, we got back yesterday from going pretty much across country, flew by plane to CA then drove in an RV for 9 days with hubby son and daughter with CF. It was amazing!!!!!! I feel so lucky we were able to do this vacation; I can't really express it in words; but you all understand. We never...

Well, we got back yesterday from going pretty much across country, flew by plane to CA then drove in an RV for 9 days with hubby son and daughter with CF. It was amazing!!!!!! I feel so lucky we were able to do this vacation; I can't really express it in words; but you all understand. We never...

We got a Mobilaire this winter when Maggie was having a CF exacerbation and it is SOOOO much better than the Pari Vios which broke down for us every 2-6 months. The way I think of it is we spend alot of $ and time on these nebs might as well get a worthwhile machine to inhale them. It was...

We got a Mobilaire this winter when Maggie was having a CF exacerbation and it is SOOOO much better than the Pari Vios which broke down for us every 2-6 months. The way I think of it is we spend alot of $ and time on these nebs might as well get a worthwhile machine to inhale them. It was...

We got a Mobilaire this winter when Maggie was having a CF exacerbation and it is SOOOO much better than the Pari Vios which broke down for us every 2-6 months. The way I think of it is we spend alot of $ and time on these nebs might as well get a worthwhile machine to inhale them. It was...

I am sorry your mother has been sick. I would call your child's CF doctor to ask for their input. Is your mother being treated with IV antibiotics? If your mother has an active cough then there is a risk of your child picking up MRSA, however if this has been going on with your mother for a...

I am sorry your mother has been sick. I would call your child's CF doctor to ask for their input. Is your mother being treated with IV antibiotics? If your mother has an active cough then there is a risk of your child picking up MRSA, however if this has been going on with your mother for a...

I am sorry your mother has been sick. I would call your child's CF doctor to ask for their input. Is your mother being treated with IV antibiotics? If your mother has an active cough then there is a risk of your child picking up MRSA, however if this has been going on with your mother for a...

Maggie and her big brother and Maggie's friend had a lemonade stand yesterday.  They made $47 for the CF Foundation in 2 hours!  People were being so generous and the kids had a great time! I had to force them to stop.  <div><br></div><div>Next hot day we'll be out there again to sell lemonade...