Maggie and her big brother and Maggie's friend had a lemonade stand yesterday. They made $47 for the CF Foundation in 2 hours! People were being so generous and the kids had a great time! I had to force them to stop. <br>Next hot day we'll be out there again to sell lemonade for CF!
Maggie and her big brother and Maggie's friend had a lemonade stand yesterday. They made $47 for the CF Foundation in 2 hours! People were being so generous and the kids had a great time! I had to force them to stop. <br>Next hot day we'll be out there again to sell lemonade for CF!
We are getting ready for an RV vacation. Flying first then renting an RV and traveling. <div><br></div><div>Any advice on traveling in an RV with a CF child.</div><div><br></div><div>Feeling a little overwhelmed with getting organized and packed.</div><div><br></div><div>I have disposable nebs...
We are getting ready for an RV vacation. Flying first then renting an RV and traveling. <br>Any advice on traveling in an RV with a CF child.<br>Feeling a little overwhelmed with getting organized and packed.<br>I have disposable nebs, regular boiling nebs(I will buy bottled H@0 and boil nebs...
We are getting ready for an RV vacation. Flying first then renting an RV and traveling. <br>Any advice on traveling in an RV with a CF child.<br>Feeling a little overwhelmed with getting organized and packed.<br>I have disposable nebs, regular boiling nebs(I will buy bottled H@0 and boil nebs...
What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
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