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  1. R

    Lemonade Stand

    Maggie and her big brother and Maggie's friend had a lemonade stand yesterday. They made $47 for the CF Foundation in 2 hours! People were being so generous and the kids had a great time! I had to force them to stop. <br>Next hot day we'll be out there again to sell lemonade for CF!
  2. R

    Lemonade Stand

    Maggie and her big brother and Maggie's friend had a lemonade stand yesterday. They made $47 for the CF Foundation in 2 hours! People were being so generous and the kids had a great time! I had to force them to stop. <br>Next hot day we'll be out there again to sell lemonade for CF!
  3. R

    Awesome deal for those in Maine

    Still have some left; any takers?
  4. R

    Awesome deal for those in Maine

    Still have some left; any takers?
  5. R

    Awesome deal for those in Maine

    Still have some left; any takers?
  6. R

    Plane, RV, automobile

    The Microwave bags are a great idea; are they big enough for more than one neb though? And can you reuse the bag?
  7. R

    Plane, RV, automobile

    The Microwave bags are a great idea; are they big enough for more than one neb though? And can you reuse the bag?
  8. R

    Plane, RV, automobile

    The Microwave bags are a great idea; are they big enough for more than one neb though? And can you reuse the bag?
  9. R

    Plane, RV, automobile

    We are getting ready for an RV vacation. Flying first then renting an RV and traveling.  <div><br></div><div>Any advice on traveling in an RV with a CF child.</div><div><br></div><div>Feeling a little overwhelmed with getting organized and packed.</div><div><br></div><div>I have disposable nebs...
  10. R

    Plane, RV, automobile

    We are getting ready for an RV vacation. Flying first then renting an RV and traveling. <br>Any advice on traveling in an RV with a CF child.<br>Feeling a little overwhelmed with getting organized and packed.<br>I have disposable nebs, regular boiling nebs(I will buy bottled H@0 and boil nebs...
  11. R

    Plane, RV, automobile

    We are getting ready for an RV vacation. Flying first then renting an RV and traveling. <br>Any advice on traveling in an RV with a CF child.<br>Feeling a little overwhelmed with getting organized and packed.<br>I have disposable nebs, regular boiling nebs(I will buy bottled H@0 and boil nebs...
  12. R

    Does skin always taste salty?

    What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
  13. R

    Does skin always taste salty?

    What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
  14. R

    Does skin always taste salty?

    What are your baby's symptoms of CF? No I think you can have CF and not always have salty tasting skin, especially in a baby who may not sweat much and or may still have some function in the CFTR mutation. Not all doctors are up to date on Cystic Fibrosis information so if you feel something...
  15. R

    Awesome deal for those in Maine

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just got a box of 20 mugs. Any takers? If so PM me, thanks
  16. R

    Awesome deal for those in Maine

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just got a box of 20 mugs. Any takers? If so PM me, thanks
  17. R

    Awesome deal for those in Maine

    <img src="i/expressions/face-icon-small-smile.gif" border="0"> Just got a box of 20 mugs. Any takers? If so PM me, thanks
  18. R

    Danger if vest settings too high?

    I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
  19. R

    Danger if vest settings too high?

    I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
  20. R

    Danger if vest settings too high?

    I have found that along with doing the Minnesota protocol, using huff coughing, deep breathing at 5 minute intervals pausing the VEST to do so to help my daughter cough up the mucus and clear it herself.
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