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My daughter cultured Pseudomaonas for the first time this winter, too. She was treated with 2 weeks oral cipro and 28 inhaled TOBI. We did reculture her after the TOBI and cipro and she only grew staph areus. I asked lots of questions to our CF doc so if you are at all concerned write down your...

<p>My daughter cultured Pseudomaonas for the first time this winter, too. She was treated with 2 weeks oral cipro and 28 inhaled TOBI. We did reculture her after the TOBI and cipro and she only grew staph areus. I asked lots of questions to our CF doc so if you are at all concerned write down...

Teri, I love what you said ,too! One things that annoys me and I KNOW they don't mean too, but because I am a nurse people always say how my daughter is so lucky I am her mom. One time someone said it; she was actually being very sweet and I looked at her and said "I think I'm pretty lucky to...

Teri, I love what you said ,too! One things that annoys me and I KNOW they don't mean too, but because I am a nurse people always say how my daughter is so lucky I am her mom. One time someone said it; she was actually being very sweet and I looked at her and said "I think I'm pretty lucky to...

Teri, <br /> <br />I love what you said ,too! One things that annoys me and I KNOW they don't mean too, but because I am a nurse people always say how my daughter is so lucky I am her mom. One time someone said it; she was actually being very sweet and I looked at her and said "I think I'm...

Just want to pipe in, I recently got the Mobilaire for my daughter and we love it! It cost $275 and insurance did not cover it but if you have a FSA you could use it for tax purposes. It is a heavy duty machine. We still have our Pari for back up cause it's under warrantee....

Just want to pipe in, I recently got the Mobilaire for my daughter and we love it! It cost $275 and insurance did not cover it but if you have a FSA you could use it for tax purposes. It is a heavy duty machine. We still have our Pari for back up cause it's under warrantee....

Just want to pipe in, I recently got the Mobilaire for my daughter and we love it! It cost $275 and insurance did not cover it but if you have a FSA you could use it for tax purposes. It is a heavy duty machine. We still have our Pari for back up cause it's under warrantee....

He might already know about life expectancy. I said to him when he said he picked CF that to please be careful because alot of info about CF can be outdated. I pushed him toward the info on the CFF website, he has a good understanding, explaining the CFTR and treatments. He said "mom I don't...

He might already know about life expectancy. I said to him when he said he picked CF that to please be careful because alot of info about CF can be outdated. I pushed him toward the info on the CFF website, he has a good understanding, explaining the CFTR and treatments. He said "mom I don't...

He might already know about life expectancy. I said to him when he said he picked CF that to please be careful because alot of info about CF can be outdated. I pushed him toward the info on the CFF website, he has a good understanding, explaining the CFTR and treatments. He said "mom I don't...

The only thing about the pressure cooker; we are taking a plane trip first; I guess between the VEST, compressor, meds etc, the pressure cooker would throw the airline and my husband for a loop!

The only thing about the pressure cooker; we are taking a plane trip first; I guess between the VEST, compressor, meds etc, the pressure cooker would throw the airline and my husband for a loop!

The only thing about the pressure cooker; we are taking a plane trip first; I guess between the VEST, compressor, meds etc, the pressure cooker would throw the airline and my husband for a loop!

We will be gone for 2 weeks. The RV I think has a fridge, I am assuming a microwave, and a stove top but I guess I should check on that. Trying to think of the easiest way to do it; something about the water from camping makes me squeamish, maybe boiling bottled water is the way to go?

We will be gone for 2 weeks. The RV I think has a fridge, I am assuming a microwave, and a stove top but I guess I should check on that. Trying to think of the easiest way to do it; something about the water from camping makes me squeamish, maybe boiling bottled water is the way to go?

We will be gone for 2 weeks. The RV I think has a fridge, I am assuming a microwave, and a stove top but I guess I should check on that. Trying to think of the easiest way to do it; something about the water from camping makes me squeamish, maybe boiling bottled water is the way to go?

Wondering how to clean nebs on RV vacation.  At home we boil and when we travel we usually boil too.  Just  thinking about water supply and cleanliness of water.  I have some disposable nebs, a couple inhalers, but will still need to use Pari nebs too.  Would you use Control 3 solution?  Ideas?

Wondering how to clean nebs on RV vacation. At home we boil and when we travel we usually boil too. Just thinking about water supply and cleanliness of water. I have some disposable nebs, a couple inhalers, but will still need to use Pari nebs too. Would you use Control 3 solution? Ideas?

<p>Wondering how to clean nebs on RV vacation. At home we boil and when we travel we usually boil too. Just thinking about water supply and cleanliness of water. I have some disposable nebs, a couple inhalers, but will still need to use Pari nebs too. Would you use Control 3 solution? Ideas?