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Great job fundraising. A thank you letter with pictures from the walk is good. I have given out CF blue bracelets. For the kids last year I gave out CF silly bands. <br /> <br />Another idea, depending on the age of your child is having your child draw a picture. My daughter (she's 8) drew...

Seems like I am full of questions... I brought my daughter back to clinic today; we have been going monthly for one reason or another. Daughter still not back to baseline in my opinion... She got a culture done again and the doc went through her nebs meds with me and suggested doing Pulmozyme...

Seems like I am full of questions... I brought my daughter back to clinic today; we have been going monthly for one reason or another. Daughter still not back to baseline in my opinion... She got a culture done again and the doc went through her nebs meds with me and suggested doing Pulmozyme...

Seems like I am full of questions... I brought my daughter back to clinic today; we have been going monthly for one reason or another. Daughter still not back to baseline in my opinion... She got a culture done again and the doc went through her nebs meds with me and suggested doing Pulmozyme...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cincinnatichildrens.org/health/info/chest/home/minnesota-protocol.htm ">http://www.cincinnatichildrens...innesota-protocol.htm </a> This is what I followed for those interested. I felt really confused at first but I think I am...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cincinnatichildrens.org/health/info/chest/home/minnesota-protocol.htm ">http://www.cincinnatichildrens...innesota-protocol.htm </a> This is what I followed for those interested. I felt really confused at first but I think I am...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cincinnatichildrens.org/health/info/chest/home/minnesota-protocol.htm ">http://www.cincinnatichildrens...innesota-protocol.htm </a><br /> <br />This is what I followed for those interested. I felt really confused at first but I...

So I finally looked into the Minnesota way of doing vest airway clearance. We had always just done one setting and then pause and cough. I started doing the Minnesota way, following their way for adjusting htz and pressure. The downside is it makes my daughter really itchy!. Is there benefit...

So I finally looked into the Minnesota way of doing vest airway clearance. We had always just done one setting and then pause and cough. I started doing the Minnesota way, following their way for adjusting htz and pressure. The downside is it makes my daughter really itchy!. Is there benefit...

So I finally looked into the Minnesota way of doing vest airway clearance. We had always just done one setting and then pause and cough. I started doing the Minnesota way, following their way for adjusting htz and pressure. The downside is it makes my daughter really itchy!. Is there benefit...

My husband does it. He does not have CF but needed to lose weight. he followed the diet and exersize program religiously and he has lost at least 25 pounds..He loves it. You definately need to make sure you eat and drink enough. I am a runner but when i get bored I'll do one of the "easy"...

My husband does it. He does not have CF but needed to lose weight. he followed the diet and exersize program religiously and he has lost at least 25 pounds..He loves it. You definately need to make sure you eat and drink enough. I am a runner but when i get bored I'll do one of the "easy"...

My husband does it. He does not have CF but needed to lose weight. he followed the diet and exersize program religiously and he has lost at least 25 pounds..He loves it. You definately need to make sure you eat and drink enough. <br /> <br />I am a runner but when i get bored I'll do one of...

Harriet, It is hard. Maggie had IV's when she was 2 1/2 and it was hard. She was only on one every 8 hours. It was summer and my son had soccer camp to break up the day. If you have any friends/family who offer help take it. A play date for the older ones, a friend to keep you older...

Harriet, It is hard. Maggie had IV's when she was 2 1/2 and it was hard. She was only on one every 8 hours. It was summer and my son had soccer camp to break up the day. If you have any friends/family who offer help take it. A play date for the older ones, a friend to keep you older...

Harriet, <br /> <br />It is hard. Maggie had IV's when she was 2 1/2 and it was hard. She was only on one every 8 hours. It was summer and my son had soccer camp to break up the day. <br /> <br />If you have any friends/family who offer help take it. A play date for the older ones, a...

Just curious if you are always on antibiotics? My daughter is always on Bactrim once a day, but it can change depending on what she grows. So, she never has a break from antis..Just wondering if there are people with CF that aren't on anti's on a daily basis. This includes things like TOBI...

Just curious if you are always on antibiotics? My daughter is always on Bactrim once a day, but it can change depending on what she grows. So, she never has a break from antis..Just wondering if there are people with CF that aren't on anti's on a daily basis. This includes things like TOBI...

Just curious if you are always on antibiotics? My daughter is always on Bactrim once a day, but it can change depending on what she grows. So, she never has a break from antis..Just wondering if there are people with CF that aren't on anti's on a daily basis. This includes things like TOBI...

I don't have answers to your question, I just wanted to offer some support. A couple questions I would have for the Pulmonologist would be #1 Did he take cultures from the mucus from the bronchoscopy? I am assuming that he did but I would want to know what those cultures grow; what type of...