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  1. R

    CF? Or NOT? Help.

    I don't have answers to your question, I just wanted to offer some support. A couple questions I would have for the Pulmonologist would be #1 Did he take cultures from the mucus from the bronchoscopy? I am assuming that he did but I would want to know what those cultures grow; what type of...
  2. R

    CF? Or NOT? Help.

    I don't have answers to your question, I just wanted to offer some support. A couple questions I would have for the Pulmonologist would be #1 Did he take cultures from the mucus from the bronchoscopy? I am assuming that he did but I would want to know what those cultures grow; what type of...
  3. R

    Overwhelmed with emotion waitings

    I got sweat test results for my son on the same day he had the test done. Where are you getting the sweat test done? It is important that you are having it done at a place that does them frequently; we had gone to Children's Hospital in Boston. hang in there!
  4. R

    Overwhelmed with emotion waitings

    I got sweat test results for my son on the same day he had the test done. Where are you getting the sweat test done? It is important that you are having it done at a place that does them frequently; we had gone to Children's Hospital in Boston. hang in there!
  5. R

    Overwhelmed with emotion waitings

    I got sweat test results for my son on the same day he had the test done. Where are you getting the sweat test done? It is important that you are having it done at a place that does them frequently; we had gone to Children's Hospital in Boston. hang in there!
  6. R

    wwyd?

    Kathy, I am sorry Owen's cough is back. Alot of kids with CF are also on medications that kids with asthma use. Some kids with CF also have asthma and or kids with CF have inflammation issues and need medications that treat inflammation/ wheezing, so they use things like albuterol, pulmicort...
  7. R

    wwyd?

    Kathy, I am sorry Owen's cough is back. Alot of kids with CF are also on medications that kids with asthma use. Some kids with CF also have asthma and or kids with CF have inflammation issues and need medications that treat inflammation/ wheezing, so they use things like albuterol, pulmicort...
  8. R

    wwyd?

    Kathy, <br /> <br />I am sorry Owen's cough is back. Alot of kids with CF are also on medications that kids with asthma use. Some kids with CF also have asthma and or kids with CF have inflammation issues and need medications that treat inflammation/ wheezing, so they use things like...
  9. R

    Changing our order of medications

    My daughter has had a tough winter respiratory wise this year. She seems to be almost back to baseline(knock wood), pending any cold she may pick up at school. A couple things I have done; which I think have made a difference(besides being on antibiotics constantly this winter): I pause her...
  10. R

    Changing our order of medications

    My daughter has had a tough winter respiratory wise this year. She seems to be almost back to baseline(knock wood), pending any cold she may pick up at school. A couple things I have done; which I think have made a difference(besides being on antibiotics constantly this winter): I pause her...
  11. R

    Changing our order of medications

    My daughter has had a tough winter respiratory wise this year. She seems to be almost back to baseline(knock wood), pending any cold she may pick up at school. <br /> <br />A couple things I have done; which I think have made a difference(besides being on antibiotics constantly this winter): I...
  12. R

    Should the Vest make my daughter cough?

    Lauren, I would love to see a video of the huff cough pause routine with your vest. We have been doing this with maggie and I feel it has helped her; but sometimes she doesn't want to do it. I am sure Maggie would like to see too.
  13. R

    Should the Vest make my daughter cough?

    Lauren, I would love to see a video of the huff cough pause routine with your vest. We have been doing this with maggie and I feel it has helped her; but sometimes she doesn't want to do it. I am sure Maggie would like to see too.
  14. R

    Should the Vest make my daughter cough?

    Lauren, <br /> <br />I would love to see a video of the huff cough pause routine with your vest. We have been doing this with maggie and I feel it has helped her; but sometimes she doesn't want to do it. I am sure Maggie would like to see too. <br /> <br />
  15. R

    step daughter sick

    I dont' have step children, however pertussis would be very dangerous for a child with CF. They used to call pertussis the 100 day cough. Was your daughter not vaccinated? I know that in certain areas, there have been a few cases of pertussis outbreaks because of delayed vaccination and or...
  16. R

    step daughter sick

    I dont' have step children, however pertussis would be very dangerous for a child with CF. They used to call pertussis the 100 day cough. Was your daughter not vaccinated? I know that in certain areas, there have been a few cases of pertussis outbreaks because of delayed vaccination and or...
  17. R

    step daughter sick

    I dont' have step children, however pertussis would be very dangerous for a child with CF. They used to call pertussis the 100 day cough. Was your daughter not vaccinated? I know that in certain areas, there have been a few cases of pertussis outbreaks because of delayed vaccination and or...
  18. R

    Article

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2011/03/31/us/31intravenous.html?_r=1&hpw">http://www.nytimes.com/2011/03...ravenous.html?_r=1&hpw</a>
  19. R

    Article

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2011/03/31/us/31intravenous.html?_r=1&hpw">http://www.nytimes.com/2011/03...ravenous.html?_r=1&hpw</a>
  20. R

    Article

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2011/03/31/us/31intravenous.html?_r=1&hpw">http://www.nytimes.com/2011/03...ravenous.html?_r=1&hpw</a>
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