Search results

  1. I

    Happy New Year 2014

    Teri: love to send it....just email me jeanne@medrise.com
  2. I

    Happy New Year 2014

    Great because I have another one...any takers? J
  3. I

    Happy New Year 2014

    Wonderful. I'll send it out! Hope all is well with him and Jesse! Jeanne
  4. I

    Happy New Year 2014

    It's new...in the box...are you sure?
  5. I

    Happy New Year 2014

    May the year bring peace, health and joy! This year we will be donating to the community from our inventory. Today I have a Trek S Portable Aerosol System. If you have posted at least one hundred messages hefd at cystic fibrosis.com and know you could use this equipment, just email...
  6. I

    Long time!

    Wow Mammahuff...time flies! I'm so happy you doing well and able to enjoy the beach with Austin...I remember. Salt and Light, Jeanne
  7. I

    Blessed Christmas!

    Correction: Atul Gawandi is leading the new Medical Technology center in Boston: http://www.ariadnelabs.org/ The Center in NYC is on Roosevelt Island...lots of Bloomberg money? http://www.dnainfo.com/new-york/20111219/midtown/cornell-wins-100-million-bid-build-campus-on-roosevelt-island The...
  8. I

    Your Environmental Minute with Dr. Adrienne

    My good friend, Dr. Adrienne Sprouse has some warnings for the holidays... As she says...it's good to just be aware: http://www.youtube.com/watch?v=8JqQx2tUI0k
  9. I

    Blessed Christmas!

    Thank you for letting us host this beautiful community. Someone said it best: She had come to a great source for answers to her questions concerning her treatment routine. It is amazing how you receive each other (usually with grace), appreciate the responses, summarize the conclusions and...
  10. I

    Liliana is struggling.... :(

    Dear Lord, These are beautiful girls. It is a privilege to pray for Liliana today, to offer some time and thoughts up for her struggle to breathe. May we take the time and love to remember this family in their struggles. Salt and Light and Love, Jeanne
  11. I

    Getting used to change....

    Hi Teri, Nice blog...great memories of Mel...yes let's post her 40th! Loved that day...now i just pray to her. What a wonderful lady. Glad to hear you found love in of all places Oregon? I think you pronounce it Oregin...right? I hope Kaylee is doing well as well as your teenager! I have...
  12. I

    From CFlawyer

    Thank you. CFLawyer for giving us this information. I imagine you are busy and this is a very good opportunity for CFers to get the best info.
  13. I

    From CFlawyer

    cflawyer Junior Member Join Date Nov 2013 Posts If a person with CF needs information on accessing insurance coverage they can contact the CF Legal Information Hotline at 1-800-622-0385. All calls are free and confidential. The Hotline is sponsored by a grant from the CF Foundation and was...
  14. I

    Thankfulness

    http://sethgodin.typepad.com/seths_blog/2013/11/culture-and-selfishness.html for those of you trying to builds business (and more of you will be in this economy). Here is my "mentor"..
  15. I

    Thanksgiving

    Happy Thanksgiving everyone! It is a beautiful holiday here in the U.S. just hoping the weather calms down across the country. Usually (as long as I can remember) Beleache has been our holiday well wisher. This year, she is recovering from an exacerbation. I texted with her and she is...
  16. I

    Asia Musical Academy in NY

    Hi Aleksandra, Would love to attend. Let me know the details. The link isn't working. Will you and Asia travel to the NYC too? Thanks for the info! Jeanne
  17. I

    3d cftr

    Hey Jeanne, Thanks for showing interest and sharing AOTC: 4D on your discussion forum. We often do get patients with CF or family of patients with CF who ask about availability to patients. The educational program is free and available to anyone, but the program is originally geared towards...
  18. I

    3d cftr

    I sent them a request...we'll see what they say!
  19. I

    3d cftr

    http://www.aotc4d.org/
  20. I

    wearable technologies

    changing healthcare? http://www.healthtechviews.com/2013/10/03/how-wearable-technologies-could-change-healthcare/#! I love the one for the woman with the artificial eye.... wearable spirometry? we have wearable vests... ?? others for CF??
Top