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We are a global community. I am sure there are brilliant doctors and researchers working on CF in India. At CysticFibrosis.com there are 44 registered members from India! Thoughts and prayers for the best care!

http://www.sciencedaily.com/releases/2013/08/130825171520.htm This article has to be purchased. http://www.sciencedaily.com/releases/2013/08/130825171520.htm $32.00

Yesterday, some of the posts didn't get posted to the home page. I have asked Ennio to look into this. Thanks for your patience. Jeanne

Craig, I just saw this and I'm so sorry to hear how you are all struggling know there are thoughts and prayers heading your way to Scotland from cf.com here in NJ. imogene

These are some remediation ideas from my good friend Adrienne Sprouse's website...sounds pretty tedious! http://doctorsprouse.wordpress.com/2013/06/06/remediating-mold/

Kevin Kelly made it a fad to measure all aspects of our aliveness. He calls it "the quantified self." Patients have always kept records using pencils and sheets of scrap paper, notebooks, file folders and cabinets, and computer files. Patients with a complicated disease like cystic fibrosis...

As a teacher, I know the best way to learn is to ASK Questions. The trouble with being in a doctor’s office, getting a serious diagnosis or learning about a comorbidity for the first time, as so often happens with cystic fibrosis, is a person can become flooded. The emotions may take over and...

Lurkers are so important! Not everyone can jump in...But all are in the learning curve! Thanks for being with us...and saying a prayer!

thank you both...the community matters! And both of you are brave ones who help others to cope and and have hope! Jane, I remember those scary times with the boys! We all prayed hard too. It is wonderful to watch them grow. See you soon Stacey! Salt and Light and Love, Jeanne

Patients joining the conversations at a site like cysticfibrosis.com may come with hesitation. They wonder if they’ll hear things that are too scary. (There is a good chance their own health care providers told them that)! Patient communities aren’t for all patients and care givers…but for many...

With the latest scientific advances it’s becoming clear: personal genetics are becoming defined, accessible and affordable. One of the most popular conversations patients have at cysticfibrosis.com is about genetics…their personal mutations. Patients receive a mutation from their mother and...

This is a presentation Alice Rathjen gave in San Diego this week...to 12k people! Jeanne http://www.slideshare.net/dnatimes/dna-guide-genomemapping

Surely, I don't know much about what you are going through, but I have seen many variations of coping with CF over the past 16 years on this site every day. Seth Godin usually gets it right for me.... There is a possibility his blog today will help...

http://www.youtube.com/watch?v=sMR8UPeGrgU

The human genome has been mapped for over 10 years. The cost started out at $100,000.00 dollars +…and now can be done for 5 or 6 thousand dollars and less but the prediction is that within the next months, the cost could fall to as low as $100.00. The cost of a whole mapping would fall in the...

http://m.soundcloud.com/catherine-lazen/seth-godin-on-2013-04-29-at-10 love Seth godin on education things to think about for everyone

bookworm: Thanks for posting. These are hard questions but I know what I believe....that patients should be in the financial loop too if there are large profits to be made from their participation i.e. DNA/mutations. Patients have the most to gain in this research and development...healthwise...

Grossology Isn’t a word with an exact definition in Webster’s Dictionary. It doesn’t work for my Scrabble game… But it is a traveling exhibition coming to Liberty Science Center, here in New Jersey. I think our members could have designed the whole exhibition. We spend so much time learning...

I love to know this...I remember the hard times. How blessed I am to be a witness to all the special moms on this site, offering compassion and love to one another! Happy Mothers Day to CF moms around the world.

In this installment of Your Environmental Minute, Dr. Adrienne Sprouse helps identify some of the symptoms that could be triggered simply by the use of your gas stove. http://www.youtube.com/watch?v=8fcAzgL9rBo for more information go to www.dradriennesprouse.com