Search results

Keep the discussions going......let's form guilds as you wish...We'll be collating more information...I know of the 150 who answered there are 34 double delta508del... 20 patients signed in and 14 caregivers. 3 caregivers...posting g542x

sorry Jenny....we are just getting this up and running after our survey...Jeanne

Welcome to our newest feature: DNA Guilds. Thank You! 150 of you agreed to "hear more" about DNA Guilds in our latest Survey. We have over 50 mutations represented in our survey: F508del, 3849+10kbC->T R668C L558S I1027T R117C 621+1G->T L206W S489X N1303K...

Thanks Ennio: I know this was a "heavy Lift"....getting all of these back with the newer software. J

Ennio has been working on getting the archived blogs back...glad G-Man is doing so well...we remember!

Thank you 150 members who "want to hearmore" about our Mutation Guild Project! http://www.surveygizmo.com/s3/1129460/Genetics-US (survey still open) CF.com has been about support, education and hopesince 1996. Privacy has always been important to thiscommunity, especially when Pre-Existing...

I know that some of the professional grade spirometers, we sell here at Medrise, are used with Transplant Patients. http://www.medrise.com/spirometer.html The QRS is actually used with a live connection from home to the clinic. So the HCP watches as the patient takes the test at home on their...

Members of CysticFibrosis.com, Here, at cysticfibrosis.com, you come to tell your stories. Since 1996, the stories have been about diagnosis, treatments, and environment. You have come here to depend on friend to help you with adherence and daily living. A newer addition to the story is your...

Hi Ben, hmmmm I have sent this to Ennio. It use to be we could access our old blogs from the home page. I'll have to find out where they are archived! Your pictures are beautiful. I hope we find them soon! Jeanne

Happy birthday jonie, so happy for you today! enjoy so many gifts your beautiful family brings you! salt and light, jeanne

Jonie: Is it really your birthday today...I had Ennio FIX Birthdays...just for you...birthday girl! We will get this place in order soon! Love, Jeanne

Thanks Joni, We have made note and prayers for his family! Jeanne

Merry Holy Peter sent me this this morning: It's worth a look http://www.nytimes.com/video/2012/12/24/science/100000001947354/wrights-law.html You have to stay with it to see the relevance...wow! I hope the NYTimes let's us watch it.... Salt and Light, Jeanne

I am so sorry to see this. Brad is a long time friend of cf.com and to me. He joins many angels who I know greet him with open arms. I will miss him. salt and light, Jeanne

Awesome, Wonderful News!

This community is my church, but on Sundays and sometimes during the week, I attend CHURCH services at Marble Collegiate Church in NYC. Peter is a deacon there and I belong to small groups and I've grown close to the ladies in the group and they teach me how to pray. One, even donated an iPad...

Learn more with this video. Imagine having so much information, to help to know what medications you need! Salt and Light, Jeanne

LouLou, Thanks for posting. This is a place for prayers for all with CF...Many will join in with thoughts and blessings. Salt and Light, Jeanne

http://www.linkedin.com/today/post/article/20121210110858-146036479-dna-codes-turning-scientific-breakthrough-into-life-saving-reality?_mSplash=1

http://www.youtube.com/watch?v=sbUhw...ature=youtu.be The patient centered genome. What do you think you would do with you genome, if you owned it?