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This is SO overwhelming. Emily is home on IV's for the first time and trying to manage her care, plus 2 other children, plus anything else (hah! everything else is a disaster) just feels impossible. She's on 2 meds that take almost 2hrs to run (total); the first of the day starts at 6 and...

This is SO overwhelming. Emily is home on IV's for the first time and trying to manage her care, plus 2 other children, plus anything else (hah! everything else is a disaster) just feels impossible. She's on 2 meds that take almost 2hrs to run (total); the first of the day starts at 6 and...

This is SO overwhelming. Emily is home on IV's for the first time and trying to manage her care, plus 2 other children, plus anything else (hah! everything else is a disaster) just feels impossible. <br /> <br />She's on 2 meds that take almost 2hrs to run (total); the first of the day starts...

Yes, you absolutely can do nebs with the vest. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Inhaling the mist while vesting can make it more productive, actually... with the exception of inhaled abx of course. Those must be done afterward. Emily does albuterol first...

Yes, you absolutely can do nebs with the vest. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Inhaling the mist while vesting can make it more productive, actually... with the exception of inhaled abx of course. Those must be done afterward. Emily does albuterol first...

Yes, you absolutely can do nebs with the vest. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Inhaling the mist while vesting can make it more productive, actually... with the exception of inhaled abx of course. Those must be done afterward. <br /> <br />Emily does albuterol...

Thank you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> They fiddled w/dose twice to get her levels right before discharge and the nurse who will come to do the dressing changes will draw levels again at some point. They did tell me to be on the lookout for dizziness/loss of...

Thank you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> They fiddled w/dose twice to get her levels right before discharge and the nurse who will come to do the dressing changes will draw levels again at some point. They did tell me to be on the lookout for dizziness/loss of...

Thank you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br />They fiddled w/dose twice to get her levels right before discharge and the nurse who will come to do the dressing changes will draw levels again at some point. They did tell me to be on the lookout for...

My hopes are that this corrector will work in a slightly different way than 809, so that those with other mutations will benefit and/or if results vary for different people- if the 770/809 combo doesn't work well, maybe this new one with 770 will or vice versa.

My hopes are that this corrector will work in a slightly different way than 809, so that those with other mutations will benefit and/or if results vary for different people- if the 770/809 combo doesn't work well, maybe this new one with 770 will or vice versa.

My hopes are that this corrector will work in a slightly different way than 809, so that those with other mutations will benefit and/or if results vary for different people- if the 770/809 combo doesn't work well, maybe this new one with 770 will or vice versa.

Oh m goodness... I am so sorry to hear this. I had no idea she was so sick, either. <img src="i/expressions/brokenheart.gif" border="0"> All her family and loved ones are in my thoughts. <img src="i/expressions/rose.gif" border="0">

Oh m goodness... I am so sorry to hear this. I had no idea she was so sick, either. <img src="i/expressions/brokenheart.gif" border="0"> All her family and loved ones are in my thoughts. <img src="i/expressions/rose.gif" border="0">

Oh m goodness... I am so sorry to hear this. I had no idea she was so sick, either. <img src="i/expressions/brokenheart.gif" border="0"> All her family and loved ones are in my thoughts. <img src="i/expressions/rose.gif" border="0">

After a never-ending exacerbation that a month of oral abx (Bactrim and Levaquin) just didn't do anything to help her get over, they had us bring her in on Monday. Her pft's were down a lot... fev1 down 18% vs. before she got sick, etc. She was admitted for IV's and put on tobra and...

After a never-ending exacerbation that a month of oral abx (Bactrim and Levaquin) just didn't do anything to help her get over, they had us bring her in on Monday. Her pft's were down a lot... fev1 down 18% vs. before she got sick, etc. She was admitted for IV's and put on tobra and...

After a never-ending exacerbation that a month of oral abx (Bactrim and Levaquin) just didn't do anything to help her get over, they had us bring her in on Monday. Her pft's were down a lot... fev1 down 18% vs. before she got sick, etc. She was admitted for IV's and put on tobra and...

WHAT?! Even telling you cpt won't help tells me how misinformed he is. CPT is routinely prescribed for those with pneumonia and for those on vents, etc.. nothing to do with CF. This really, REALLY concerns me. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I echo others here-...

WHAT?! Even telling you cpt won't help tells me how misinformed he is. CPT is routinely prescribed for those with pneumonia and for those on vents, etc.. nothing to do with CF. This really, REALLY concerns me. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I echo others here-...