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  1. H

    Whether to get a feeding tube or not?

    I understand what you are saying about wanting to wait until the child can understand what the tube is for and therefore being able to help participate in the decision-making process. In an ideal world, we wouldn't put our kids through any procedures until they were old enough to be able to...
  2. H

    Whether to get a feeding tube or not?

    I understand what you are saying about wanting to wait until the child can understand what the tube is for and therefore being able to help participate in the decision-making process. In an ideal world, we wouldn't put our kids through any procedures until they were old enough to be able to...
  3. H

    Two CFers in same musical

    I agree it is vital the other child's parents know. Your son states that he has been keeping his distance from her; however, does the girl w/CF know your son has it as well so she can cooperate with cross-contamination measures? I think I would want to talk to the other child's parents on...
  4. H

    Two CFers in same musical

    I agree it is vital the other child's parents know. Your son states that he has been keeping his distance from her; however, does the girl w/CF know your son has it as well so she can cooperate with cross-contamination measures? I think I would want to talk to the other child's parents on...
  5. H

    Two CFers in same musical

    I agree it is vital the other child's parents know. Your son states that he has been keeping his distance from her; however, does the girl w/CF know your son has it as well so she can cooperate with cross-contamination measures? <br /> <br />I think I would want to talk to the other child's...
  6. H

    Hospital Indemnity Policy for CFers

    I understand that if I were to get one of these plans that I would have to wait a year before any of Emily's CF-related ER or hospital stays were covered. However, what difference in premium is there between having healthy children vs. one with a severe illness? Do they look back at your...
  7. H

    Hospital Indemnity Policy for CFers

    I understand that if I were to get one of these plans that I would have to wait a year before any of Emily's CF-related ER or hospital stays were covered. However, what difference in premium is there between having healthy children vs. one with a severe illness? Do they look back at your...
  8. H

    Hospital Indemnity Policy for CFers

    I understand that if I were to get one of these plans that I would have to wait a year before any of Emily's CF-related ER or hospital stays were covered. However, what difference in premium is there between having healthy children vs. one with a severe illness? Do they look back at your...
  9. H

    newborn screening false negatives???

    I did some searching on this and found in an article about Washington's screening a reference to research done in Colorado. This stated that newborn screening yielded false negative results 3-6% of the time. I did more research trying to find more about this and couldn't find much, until I...
  10. H

    newborn screening false negatives???

    I did some searching on this and found in an article about Washington's screening a reference to research done in Colorado. This stated that newborn screening yielded false negative results 3-6% of the time. I did more research trying to find more about this and couldn't find much, until I...
  11. H

    newborn screening false negatives???

    I did some searching on this and found in an article about Washington's screening a reference to research done in Colorado. This stated that newborn screening yielded false negative results 3-6% of the time. I did more research trying to find more about this and couldn't find much, until I...
  12. H

    Great Strides Video

    Great video!! I love the song- perfect choice. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. H

    Great Strides Video

    Great video!! I love the song- perfect choice. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. H

    Great Strides Video

    Great video!! I love the song- perfect choice. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. H

    Whether to get a feeding tube or not?

    I can certainly relate to your feelings! However, I remember feeling so relieved to have just made the decision as well- I hope you are feeling at peace with knowing that you have made up your mind to go ahead with this. I obviously have no way of knowing this for sure, but I would assume they...
  16. H

    Whether to get a feeding tube or not?

    I can certainly relate to your feelings! However, I remember feeling so relieved to have just made the decision as well- I hope you are feeling at peace with knowing that you have made up your mind to go ahead with this. I obviously have no way of knowing this for sure, but I would assume they...
  17. H

    Whether to get a feeding tube or not?

    I can certainly relate to your feelings! However, I remember feeling so relieved to have just made the decision as well- I hope you are feeling at peace with knowing that you have made up your mind to go ahead with this. I obviously have no way of knowing this for sure, but I would assume they...
  18. H

    Parents Perspective

    Emily is a special education student and has been since the age of three; a neurological condition left her with developmental disabilities. She is now in 4th grade, is academically on about a 1st-2nd grade level with speech/auditory processing disabilities a bit more extensive than that. She...
  19. H

    Parents Perspective

    Emily is a special education student and has been since the age of three; a neurological condition left her with developmental disabilities. She is now in 4th grade, is academically on about a 1st-2nd grade level with speech/auditory processing disabilities a bit more extensive than that. She...
  20. H

    Parents Perspective

    Emily is a special education student and has been since the age of three; a neurological condition left her with developmental disabilities. She is now in 4th grade, is academically on about a 1st-2nd grade level with speech/auditory processing disabilities a bit more extensive than that. She...
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