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Thank you SO much for posting this! It is difficult to find information about this as it relates to CF that doesn't assume the person is diabetic. Emily has post-breakfast levels shown a couple times on labs in the past in the low 50's and her 2-hr post on the ogtt was 45! She was so jittery...

Thank you SO much for posting this! It is difficult to find information about this as it relates to CF that doesn't assume the person is diabetic. Emily has post-breakfast levels shown a couple times on labs in the past in the low 50's and her 2-hr post on the ogtt was 45! She was so jittery...

Eating certain foods resulting in gas and belching is a digestive thing, not a lung thing (despite feeling that 'tightness.') When asking about respiratory symptoms, I meant more like... do you get frequent respiratory infections, or when you do get a cold/virus does it typically progress to...

Eating certain foods resulting in gas and belching is a digestive thing, not a lung thing (despite feeling that 'tightness.') When asking about respiratory symptoms, I meant more like... do you get frequent respiratory infections, or when you do get a cold/virus does it typically progress to...

Eating certain foods resulting in gas and belching is a digestive thing, not a lung thing (despite feeling that 'tightness.') <br /> <br />When asking about respiratory symptoms, I meant more like... do you get frequent respiratory infections, or when you do get a cold/virus does it typically...

Fat malabsorption is common in CF but not diagnostic (there can be other causes for that.) Especially since no one knows how to interpret your test results (at this point I would wonder if the test was even done properly), I would ask for a fecal ELASTASE test, which tests for pancreatic...

Fat malabsorption is common in CF but not diagnostic (there can be other causes for that.) Especially since no one knows how to interpret your test results (at this point I would wonder if the test was even done properly), I would ask for a fecal ELASTASE test, which tests for pancreatic...

Fat malabsorption is common in CF but not diagnostic (there can be other causes for that.) Especially since no one knows how to interpret your test results (at this point I would wonder if the test was even done properly), I would ask for a fecal ELASTASE test, which tests for pancreatic...

Emily is older but we had a prolonged experience with growth failure so I'll share our experience anyway. In our experience, by the time our child fell below the 10th% it was very hard to climb out of that hole. This was because even with decent gain... they are just gaining what a kid...

Emily is older but we had a prolonged experience with growth failure so I'll share our experience anyway. In our experience, by the time our child fell below the 10th% it was very hard to climb out of that hole. This was because even with decent gain... they are just gaining what a kid...

Emily is older but we had a prolonged experience with growth failure so I'll share our experience anyway. <br /> <br />In our experience, by the time our child fell below the 10th% it was very hard to climb out of that hole. This was because even with decent gain... they are just gaining what a...

I am sorry that your clinic appt was so frustrating. Esp after all the hard work you've put into maintaining your lung function for so many years, to have this doctor picking at you about it must have been very frustrating. I agree with Stacey about showing him YOUR documentation of how you've...

I am sorry that your clinic appt was so frustrating. Esp after all the hard work you've put into maintaining your lung function for so many years, to have this doctor picking at you about it must have been very frustrating. I agree with Stacey about showing him YOUR documentation of how you've...

I am sorry that your clinic appt was so frustrating. Esp after all the hard work you've put into maintaining your lung function for so many years, to have this doctor picking at you about it must have been very frustrating. I agree with Stacey about showing him YOUR documentation of how you've...

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

I think the most progress has been made with the e-flow type technology. Now what they need to do is make it more widely AVAILABLE instead of on the ridiculous 'lease' basis from only specialty pharmacies, etc the way it is now. It ought to be as available as the other nebs and more affordable.

Has she had a 72hr fecal test for fecal fat & elastase to test for malabsorption and pancreatic insufficiency? Considering she's both small and has had GI issues (and is seen by a GI who can very easily order this test) I would ask for this. Quest, for example, has a CF-specific stool test...

Has she had a 72hr fecal test for fecal fat & elastase to test for malabsorption and pancreatic insufficiency? Considering she's both small and has had GI issues (and is seen by a GI who can very easily order this test) I would ask for this. Quest, for example, has a CF-specific stool test...

Has she had a 72hr fecal test for fecal fat & elastase to test for malabsorption and pancreatic insufficiency? Considering she's both small and has had GI issues (and is seen by a GI who can very easily order this test) I would ask for this. Quest, for example, has a CF-specific stool test...