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For me, the worst day has nothing to do with IVs. My worst day usually hits around day 10 or 11, when I am feeling better but not ready to be released, the reality of the outside world continuing without me hits, and I've run out of things to do. My family and I call it my depressed day. It's...

This isn't really all that surprising to me. I've never thought hotels were very clean. I'm going to continue to stay at hotels, but I'll also continue to do my own cleaning once I check in. I bring cleaning wipes and clean everything I can with them. It's the best I can do and so far it's worked.

This is something I can somewhat relate to, in a way. I am no where near being ready to have children as I'm single, living at home, and haven't gotten a firm grasp of my health yet. But whenever I see friends my age, or even family members, pregnant and having children, it gives me a shock. It...

I am not near a transplant yet, but my hospital stays are getting more and more frequent and I can try to understand the up and down feelings around the time of hospitalization. I'm about to go in for my second hospitalization in as many months and I was feeling extremely discouraged. What helps...

I second the bad teeth. Part of my problem was the lack of enzyme, and the other was staining from the vitamin I was on. I take care of my teeth religiously now in order to try and prevent as many cavities as possible and after trying several different options, I got veneers on the top front...

I get temporary passes about a month, sometimes a month and a half, before my hospitalizations. For 8 months a year, I don't need the passes at all and would never think to use them. It's only for right before I go in, and even then I use it sparingly.

Hi Enzo, I get what you're saying, but I disagree just a little bit. I have absolutely no jealousy over the other diseases, because to have a disease, any disease, is horrible. I wouldn't wish CF on anyone else just as I hope others wouldn't wish their disease on others. Where I agree with you...

I take two fibercon a day and have since I was in the third grade and had to be hospitalized for an obstruction. When I go on vacation, because stuff like that really messes with me anyway, I add a cup of Metamucil every night. This routine usually works like a charm, but if I haven't gone for...

When I started to push back against my parents, they decided to give me a certain number of treatments I had to do a week. If I had a total of 14 treatments to do each week, I had to do 11. I could pick which ones I missed and which ones I did, but I had to do 11. I also got control of the TV...

Did they get samples during the bronch from everywhere in her lungs? I only grow Pseudo in two area of my lungs, so if I cough up a sample from somewhere else, it shows up as me not having pseudo. I'm not trying to be negative, just saying it might not be completely gone. The swimming may cause...

Gunelle, I made the choice to miss four treatments. My sister, father, grandfather, cousin, and a friend of my sister were going on a canoe camping trip where we would be in the middle of nowhere, on the banks of a lake, and I wanted to go. Those canoe camping trips mean so much to me, in terms...

Thanks for the replies everyone. The thing is, they understand I need more sleep when we're at home, but someone, just because they were feeling okay on the lack of sleep, they thought I should be fine. I ended up having a bit of a breakdown after I asked for a later start theist day and they...

I know I've seen a question like this on here, but I don't have my computer to search for it. Do other CFers need as much sleep as I seem to need, even when healthy? My family and I are currently on a trip (I won't call it a vacation because those are supposed to be relaxing) and I am...

I buy breast pump microwave cleaning bags and use those for daily use. Once a week, I boil them for 7-10 minutes. And completely replace them after 6 months.

They taste even worse than they smell. And if you have even a small burn after taking them...oh boy. I haven't been on those vitamins in a little over six months. I finally could no longer stand the taste and decided taking multiple vitamins but not having that taste was worth it. My family...

A few months ago the nutritionist talked about my dose being a little high, and she tried to bring the dose down. I tried it and my digestive system became a mess. I definitely think it can be possible to take too many, so talking to your team would be a good idea.

I have always been told the mucus is thick because the chloride channels do not function properly. Of course, I do not understand the differences between different mutations, but I have never heard that the thick mucus is a result of having infections. Where were you told this? I'm interested in...

For me, I will not leave the hospital until I am close to baseline. I know that my cycle of a health 5 months followed by a horrible month is doing damage to my lungs, so I take full advantage of tune-ups and focus on getting me as close to baseline as I can possibly get. Usually that takes...

I agree with jshet. I was diagnosed at 8 weeks old, so I grew up knowing I had the disease. However, when I was 18 I had a meltdown and just stopped taking care of myself. Nothing my family, friends, or doctors could get through to me. Eventually, I started seeing a therapist. Her outside point...

Essentially, you've got it right. The thick mucus CFer's have makes it a prime breeding ground for all sorts of stuff and it also makes it hard to clear that stuff out of our bodies. As for lung exacerbations, different things can cause them. For me, there's nothing that really triggers them, I...