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Heidikk, Pseudomonas grows in water and has even been found to grow in distilled water. I have always been told that any source of water runs the risk of being contaminated with the bacteria. Kmhbeauty was told the same thing I was, it seems. Pseudo can even be found growing on plants. There's...

Your daughter is just as likely to contract pseudomonas from taking a bath at home as she is from swimming. It can be found in any source of water. Let her be a kid and swim. My parents never shielded me from anything growing up. They wanted me to live life without fear instead of cowering in...

LL, I do agree with you that too much of anything can end up being a bad thing, I have read from multiple sources, that because CFers can sweat as much as 10 times the amount of salt, we may need to increase our salt intake by small amounts. From the National Library of Health and the National...

Like others have said, your body craves the things it needs. In the summer, when I'm outside and sweating more, I crave salt to a crazy degree. I will put salt on nearly anything, going as far as just eating plain salt. In the winter, when I'm not really sweating and losing that salt, I don't...

The only time I ever somewhat willingly left a bounce house was when I twisted my ankle in one, and I only left them because it was either bounce and cry or get ice cream and cry. Other than that, I went in every bounce house I could. It is fantastic exercise and I can't remember ever getting...

I agree with Calimom. Growing up, I was never told that I had to do every single treatment, every day. As long as I wasn't sick, I could miss two or three treatments a week and they wouldn't bother me about it. I usually saved those misses for the weekend, when I wanted to sleep in or spend the...

I really have two problem areas in my lungs, with the rest of it being relatively healthy. When I'm in the hospital, I do two treatments of vest and two of PD. I make sure that the RTs target my problem areas especially hard to hopefully get that gunk moving. Of course, I ask for those spots to...

I took all honors classes, as well as 5 Advanced Placement classes during my 4 years of high school. I was hospitalized 4 times a year starting my sophomore year, with 3 of those 4 coming during the school year. I say, if she wants to take them, let her. But starting working with her teachers...

I'm currently a patient at NJH and will be participating in the study as soon as it is available to me. I've been talking with the research coordinator already and can't wait to get on this trial.

Justinsmama, thank you for clearing that up. It can be hard for tone and all the nuances of speech to translate over the Internet. I read your post as two different problems. One being held inside during recess for not completing his work and the other for not being able to completed missed...

My parents raised me almost identically to how they raised my non-CF sister. The only differences were they made me take pills and do my therapy treatments. And even then, if I was having a sleepover with my friends, they let me have a night off from the vest treatments. I played soccer and...

I was first told about Make-A-Wish when I was about 12. I didn't take advantage of it then because I didn't know what to do with it, not because I felt I was too healthy. In my mind, I may have felt good and healthy, but in reality, my body was fighting against me. I just did a good job of...

Of course he should only have consequences for the things he can control. From how I read the original post, it sounded like his writing difficulty was being addressed and the missed recess was due to assignments not being finished anyway. I also read the post as saying that even though this was...

My opinion may not be a popular one, but as long as this is not happening every single day, I'd say let him miss the recess. If it is the teacher's policy that work must be done before going to recess, then if one day he does not get his work finished, then he should not be allowed recess. I...

Thanks for your input everyone. I have an appointment next Monday, so hopefully we'll get things figured out then.

I recently had to cut sugar out of my diet and I thought soda was going to be my downfall. But I found that using seltzer water or club soda along with some of the Mio water flavoring was just as good as soda, but without the sugar. Hope this helps!

I was in the same place a couple years ago. I started college thinking I would become an elementary school teacher, but after spending a semester helping in my cousin's class, I knew I couldn't do enough to keep myself healthy and support myself at the same time. So I took two years off to...

Hi all. I'm wondering what your symptoms/life was like just prior to needing sinus surgery. I've thankfully never had to undergo this, but lately I've been wondering if some of my health issues lately have been related to my sinuses. I've been coughing up small amounts of blood lately, the most...

Nocode's post has made me think. I know I have always been an introvert, I find more peace being in my own mind than I do when I'm with others. Being around people that aren't my close friends just drains me. I was thinking about this because I'm also a writer and I find it interesting that...

I am a pretty laid back patient when I'm hospitalized. I try to remember that I'm not the only patient these people are taking care of. However, waiting an hour for a treatment you obviously need is ridiculous. I don't wait an hour for treatment even when it is not an emergency type situation...