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It just may be that Canada has Universal coverage. A one-payer system paid for with taxes and not controlled by insurance companies. I might suggest that you contact the Cystic Fibrosis Foundation and tell that their numbers are not accurate.

I was down to 43% at one time. One hour a day using my vest with a neb of 7% sal brought me up to 59%.

According to a recent Wall Street Journal article, based upon information furnished by CFF, the median age in the US is 47 and in Canada it is 59. This means that the median age has moved up 10 years in the past 10-11 years. Based upon the new meds, it will move even faster in the future.

Actually 45 is the MEDIAN age. As an RN I suspect that you studied statistics. That brings the age up to 90. I know that there are several CF patients in their 80's.

Sunny: I was dx at age 47. At age 59 I coughed up blood and went to the ER, where the Doctor told me that I was too old to have CF. We actually fought, when I told him to call the Dr who dx me (the head of the CF dept at Bostn Children's Hospital) he walked out of the room, never to be seen...

Sunny, it sounds like your son is on the right track. Good luck and please keep in touch. Bill

bleedblue: jricci said almost everything that I would say in replying to your post. I will repeat that it is critical that you contact an APPROVED CYSTIC FIBROSIS CENTER and see a CF SPECIALIST. You will see my mutations on my signature below and I showed the same symptoms that you show...

Pat: I too am one of four children and the only one with CF. Two younger siblings have passed with cancer, so maybe my deck is not so bad. If you google MAC you will find that night sweats is a symptom. Bill

Sunny: Don't beat yourself, most Doctors can't spell CF much less diagnose or treat it. Unless you were a nurse on a CF floor you would not have enough knowledge to suspect it in your son. There are almost 2000 known mutations, any 2 will cause CF. 2000 X 2000= 4,000,000 different "strains"...

Are you taking enzymes, like Creon, with meals?

Gibson: There are almost 2000 known mutations, any two will cause CF. In the US is is usual for limited testing to be done at first. They test for 32 most common, then for 250 etc. Your children should be tested for every mutation. Request a FULL CYSTIC FIBROSIS SEQUENCING. Bill

BM There are almost 2000 known mutations, any 2 will cause CF. This means that there are 4,000.000 (2000 X 2000) possible combinations of mutations that cause CF. In other words, there are up to 4,000,000 versions of CF. It is fruitless to compare patients with different mutations. The...

If your child has tested positive for two known mutations, it is pretty certain that she has CF. She should be seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CYSTIC FIBROSIS SPECIALIST. If you would post the name of a large city near you, we will help you find an approved center.

MAC, in the past was called ATYPICAL TB. Basically TB but not contagious. It is treated with a cocktail of 3 antibiotics for up to 9 months. Does cause night sweats and is upper respiratory. In Massachusetts, it requires a sputum sample to be sent to the state lab for dx. Actually I had it...

Simba: If it is not "a woman thing", it could be MAC. Microbacterical Atrium Complex (sp). You should discuss this with your CF Doctor. Bill

I can't digest either fats or proteins without Creon. If I were to attempt digesting either of these without Creon, I would experience severe stomach discomfort. If you don't have these issues, you may not need to be on Creon. Bill

LL I no longer suffer from pancreatites therefore my fat intake is now based upon a need to increase weight. My point was simply that we all need fats in our diet. As you know and as I stated, fat digestion with CF patients is at best difficult.

Those of us with CF have difficulty digesting fats. Most of us require Multivitamin Supplements for the fat soluble vitamins A, B, D, E and K. I go out of my way to put fats into my diet. You need to discuss this issue with your CF Specialist. Bill

db: You should consider a new CF Clinic.

In the 1960's, CF kids would go to summer camp and sleep in large rooms. As a result infections were exchanged between these kids. Twenty years ago we had the "three foot rule", CF Patients could not be within 3 feet of each other, now that rule has been extended to six feet. I was dx in...